Patient and Public Involvement Publications

Here we have collected links to the publications that we in CHAP have written about patient and public involvement research.

Aside from the publications in scientific journals, a handbook on co-creative research has been developed. You can read it on the link below (only available in Swedish).

Handbook on co-creative research pdf, 6 MB.

A Trauma Support App for Young People: Co-design and Usability Study

Thell, Maria; Edvardsson, Kerstin; Aljeshy, Reem; Ibrahim, Kalid et al.

Part of JMIR Formative Research, 2025
- DOI for A Trauma Support App for Young People: Co-design and Usability Study
- Download full text (pdf) of A Trauma Support App for Young People: Co-design and Usability Study
Adaptation of the trauma group intervention 'Teaching Recovery Techniques' for online delivery: A participatory design and usability study

Perez Aronsson, Anna; Thell, Maria; Lampa, Elin; Gupta Löfving, Sandra et al.

Part of Internet Interventions, 2022
- DOI for Adaptation of the trauma group intervention 'Teaching Recovery Techniques' for online delivery: A participatory design and usability study
- Download full text (pdf) of Adaptation of the trauma group intervention 'Teaching Recovery Techniques' for online delivery: A participatory design and usability study
Ameliorating epistemic injustice in practice: Communication strategies in a research project with refugee youth coresearchers

Inge, Elin; Pérez-Aronsson, Anna; Ibrahim, Kalid; Aljeshy, Reem et al.

Part of Health Expectations, 2023
- DOI for Ameliorating epistemic injustice in practice: Communication strategies in a research project with refugee youth coresearchers
- Download full text (pdf) of Ameliorating epistemic injustice in practice: Communication strategies in a research project with refugee youth coresearchers
Are We Ready to Really Hear the Voices of Those Concerned?: Lessons Learned from Listening to and Involving Children in Child and Family Psychology Research

Sarkadi, Anna; Thell, Maria; Fängström, Karin; Dahlberg, Anton et al.

Part of Clinical Child and Family Psychology Review, p. 994-1007, 2023
- DOI for Are We Ready to Really Hear the Voices of Those Concerned?: Lessons Learned from Listening to and Involving Children in Child and Family Psychology Research
- Download full text (pdf) of Are We Ready to Really Hear the Voices of Those Concerned?: Lessons Learned from Listening to and Involving Children in Child and Family Psychology Research
Balancing ethical and practical dilemmas: feasibility of a cluster randomised internal pilot trial of Teaching Recovery Techniques with accompanied refugee children in Sweden

Gupta Löfving, Sandra; Alsaqa, Farah; Sarkadi, Anna; Inge, Elin et al.

Part of Pilot and Feasibility Studies, 2026
- DOI for Balancing ethical and practical dilemmas: feasibility of a cluster randomised internal pilot trial of Teaching Recovery Techniques with accompanied refugee children in Sweden
- Download full text (pdf) of Balancing ethical and practical dilemmas: feasibility of a cluster randomised internal pilot trial of Teaching Recovery Techniques with accompanied refugee children in Sweden
Co‐Design Workshops to Develop a Psychosocial Support Service Model for Refugees in Sweden Affected by Gender‐Based Violence

Perez Aronsson, Anna; Inge, Elin; Alanbari, Heba; Alsalamah, Iman et al.

Part of Health Expectations, 2024
- DOI for Co‐Design Workshops to Develop a Psychosocial Support Service Model for Refugees in Sweden Affected by Gender‐Based Violence
- Download full text (pdf) of Co‐Design Workshops to Develop a Psychosocial Support Service Model for Refugees in Sweden Affected by Gender‐Based Violence
No safety without agency: Trauma-informed public involvement

Inge, Elin; Warner, Georgina; Aronsson, Anna Pérez Aronsson

Part of PLOS Mental Health, 2025
- DOI for No safety without agency: Trauma-informed public involvement
Patient and public involvement with forced migrants: An empirical exploration of ethical issues.

Inge, Elin; Mahamed Elmi, Nimo; Cumar, Yasmin; Warner, Georgina et al.
Patient and public involvement with forced migrants: Exploring communication, ethics and public contributor experiences

Inge, Elin

2024
- Download full text (pdf) of Patient and public involvement with forced migrants: Exploring communication, ethics and public contributor experiences
Promoting an Understanding of Forced Migration Among Host Country Children and Exploring Their Views on Refugee Children’s Needs

Sarkadi, Anna; Lampa, Elin; Warner, Georgina

Part of Journal of Immigrant and Minority Health, p. 237-240, 2023
- DOI for Promoting an Understanding of Forced Migration Among Host Country Children and Exploring Their Views on Refugee Children’s Needs
- Download full text (pdf) of Promoting an Understanding of Forced Migration Among Host Country Children and Exploring Their Views on Refugee Children’s Needs
Standard Involvement Is Not Enough: A Mixed Method Study of Enablers and Barriers in Research Meetings with Forced Migrants

Inge, Elin; Sarkadi, Anna; Tökés, Antónia; Warner, Georgina

Part of The Journal of Refugee Studies, 2023
- DOI for Standard Involvement Is Not Enough: A Mixed Method Study of Enablers and Barriers in Research Meetings with Forced Migrants
- Download full text (pdf) of Standard Involvement Is Not Enough: A Mixed Method Study of Enablers and Barriers in Research Meetings with Forced Migrants
"The Earth Is Becoming a Coronavirus": Children's Perceptions, Knowledge, and Experiences of the COVID-19 Pandemic as Presented in Their Drawings

Gjertsson, Sofia; Thell, Maria; Sarkadi, Anna

Part of Qualitative Health Research, 2025
- DOI for "The Earth Is Becoming a Coronavirus": Children's Perceptions, Knowledge, and Experiences of the COVID-19 Pandemic as Presented in Their Drawings
- Download full text (pdf) of "The Earth Is Becoming a Coronavirus": Children's Perceptions, Knowledge, and Experiences of the COVID-19 Pandemic as Presented in Their Drawings
The PPI project design canvas: a structured tool for planning public and patient involvement in research

Inge, Elin; Tomasson, Lotta W.

Part of European Journal of Cardiovascular Nursing, 2026
- DOI for The PPI project design canvas: a structured tool for planning public and patient involvement in research
- Download full text (pdf) of The PPI project design canvas: a structured tool for planning public and patient involvement in research
Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research

Lampa, Elin; Sarkadi, Anna; Osman, Fatumo; Kihlbom, Ulrik et al.

Part of International Journal of Qualitative Studies on Health and Well-being, 2022
- DOI for Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research
- Download full text (pdf) of Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research
Understanding Child Participation With 3-5 Year-Olds Across Professional Boundaries

Inge, Elin; Bodén, Linnea; Fängström, Karin; Öberg, Linnéa et al.

Part of International Journal of Qualitative Methods, 2026
- DOI for Understanding Child Participation With 3-5 Year-Olds Across Professional Boundaries
- Download full text (pdf) of Understanding Child Participation With 3-5 Year-Olds Across Professional Boundaries