Journalen 10 Years Anniversary Conference!

2022 marks the 10th anniversary of “Journalen” in Sweden. It was in 2012 that Region Uppsala first give citizens online access to their electronic health records (EHR) for the first time. Since then, a lot has happened in Sweden, and today people all over Sweden have direct online access to their EHR through the e-health service “Journalen” on 1177.se.

Registration: https://doit.medfarm.uu.se/bin/kurt3/kurt/66530

Programme:

Day 1 (9:00-17:00)

Journalen 10 years! – Celebration and retrospective of development in Sweden
Maria Hägglund, Isabella Scandurra, Hanife Rexhepi

The global movement of Open notes – How did it start?
Tom Delbanco, OpenNotes, USA

Past & Present of Patient Accessible EHRs – perspectives from among others UK and Germany
Panel discussion

LUNCH and mingle 

Patient-generated data
Sara Riggare,

Coffee break (with BIRTHDAY CAKE!)

Patients access to mental health records – opportunities and barriers
Annika Bärkås & Julian Schwarz

Patient Accessible EHRs – ethics, challenges & patient perspective
Charlotte Blease & Janine Benjamins

Day 2 (9:00-17:00)

World Usability Day!
Maria Hägglund, Isabella Scandurra, Hanife Rexhepi

Usability & the Digital Divide
Irene Muli

Usability of the Nordic Patient Portals (results from NORDeHEALTH survey)

Proxy access to electronic health records – Sweden and USA
Panel discussion
Josefin Hagström & Cait DesRoches

LUNCH and poster mingle

Health Data – European Health Data Space (EHDS), primary and secondary use
Michel Silvestri, Laurent Saunier

Launch of International Research Network

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