ERN Day
- Date: 25 April 2025, 10:00–12:00
- Location: University Hospital, H:son Holmdahl Hall, entrance 100/101, Uppsala University Hospital
- Type: Seminar
- Lecturer: Daniel Nowinski
- Organiser: Uppsala University with Uppsala University Hospital
- Contact person: Daniel Nowinski
The European Reference Networks (ERN) is a European network organisation that works for the development of care, research and knowledge dissemination in rare diseases. A so-called Joint Action, JARDIN, works to integrate the ERN networks into the national health systems.
The purpose of this day is to spread knowledge about ERN and JARDIN, and to create an understanding of how Uppsala University Hospital can operate within the European system of health and medical care.
Time and place: Friday 25 April at 10:00–12:00 in the H:son Holmdahl Hall, entrance 100/101, 2nd floor, Uppsala University Hospital
The seminar is open to all interested. For employees at Uppsala University Hospital, please register in Pingpong.
Programme
- Welcome! – Marianne van Rooijen, Hospital Director
- ERN in 10 minutes – Daniel Nowinski, contact person National Highly Specialized Care, Region Uppsala, Uppsala University Hospital
- The ERN organisation and the role of the National Board of Health and Welfare – Lena Lövqvist, Investigator, Swedish National Board of Health and Welfare
- Why ERN is important for Swedish university hospitals – Eva Tiensuu Janson, Professor and Deputy Vice-Rector of the Faculty of Medicine
- Perspectives from the Netherlands – Irene Mathijsen, Prof.Dr., Coordinator ERN CRANIO
- JARDIN – integration into Swedish healthcare – Lena Lövqvist, investigator, Swedish National Board of Health and Welfare and Cecilia Soussi Zander, Centre Director Centre for Rare Diseases
- Concluding reflections – Daniel Nowinski, contact person National Highly Specialized Care, Region Uppsala, Uppsala University Hospital
Welcome!