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A growing concern: Online access to minors’ health records

Hagström, Josefin

2025

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A proof-of-concept study for patient use of open notes with large language models

Salmi, Liz; Lewis, Dana M.; Clarke, Jennifer L.; Dong, Zhiyong et al.

Ingår i JAMIA Open, 2025

• DOI för A proof-of-concept study for patient use of open notes with large language models
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Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles

Hagström, Josefin; Hägglund, Maria; Blease, Charlotte

Ingår i BMC Medical Ethics, 2025

• DOI för Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles
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An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness

Gaber, Sophie; Mattsson, Elisabet; Klarare, Anna; Dawes, Joanna et al.

Ingår i The Gerontologist, 2025

• DOI för An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness
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Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease.

Luckhaus, Jamie; Riggare, Sara; Kharko, Anna; Blease, Charlotte et al.

Ingår i Studies in Health Technology and Informatics, s. 263-267, 2025

• DOI för Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease.

eHealth: An Exploration of Adoption and Implementation in Swedish Primary Care from Patients’ and Healthcare Professionals’ Perspectives

Muli, Irene

2025

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Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study

Meier-Diedrich, Eva; Esch, Tobias; Hägglund, Maria; Heinze, Martin et al.

Ingår i JMIR Aging, 2025

• DOI för Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study
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'Getting it write' in an era of online electronic health records access in primary care: A qualitative study exploring the needs and requirements of underserved patients and carers

Davidge, Gail; Blease, Charlotte; Brown, Lindsey; Nenadic, Goran et al.

Ingår i Patient Education and Counseling, 2025

• DOI för 'Getting it write' in an era of online electronic health records access in primary care: A qualitative study exploring the needs and requirements of underserved patients and carers
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Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study

Vanka, Anita; Johnston, Katherine; Delbanco, Tom; Desroches, Catherine M. et al.

Ingår i JMIR Medical Education, 2025

• DOI för Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study
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Health Care Professionals’ Perspectives on Implementing Patient-Accessible Electronic Health Records in Primary Care: Qualitative Study

Muli, Irene; Cajander, Åsa; Scandurra, Isabella; Hägglund, Maria

Ingår i JMIR Medical Informatics, 2025

• DOI för Health Care Professionals’ Perspectives on Implementing Patient-Accessible Electronic Health Records in Primary Care: Qualitative Study

Impact of Patient Online Record Access on Documentation: Scoping Review

Meier-Diedrich, Eva; Lyckblad, Camilla; Davidge, Gail; Hägglund, Maria et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Impact of Patient Online Record Access on Documentation: Scoping Review

Implementering av egenmonitorering i primärvården: En kvalitativ studie baserad på vårdpersonalens perspektiv i Region Uppsala

Giannoglou, Fotiní; Hasso, Raha

2025

Integration of Psychiatric Advance Directives Into the Patient-Accessible Electronic Health Record: Exploring the Promise and Limitations

Schwarz, Julian; Meier-Diedrich, Eva; Scholten, Matthe; Stephenson, Lucy et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Integration of Psychiatric Advance Directives Into the Patient-Accessible Electronic Health Record: Exploring the Promise and Limitations

Noble Humbug?: Hard and soft laws on clinical placebo use

Richard, Melina; Ganz, Manuela; Hornstein, Lena Dominique; Stehlik, Bohdan et al.

Ingår i Frontiers in Psychology, 2025

• DOI för Noble Humbug?: Hard and soft laws on clinical placebo use
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Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study

Hagström, Josefin; Blease, Charlotte; Harila, Arja; Lähteenmäki, Päivi et al.

Ingår i JMIR Pediatrics and Parenting, 2025

• DOI för Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study
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Prevalence and types of errors in the electronic health record: protocol for a mixed systematic review

Kharko, Anna; Hägglund, Maria; Angelova, Dafina; Scott Duncan, Therese et al.

Ingår i BMJ Open, 2025

• DOI för Prevalence and types of errors in the electronic health record: protocol for a mixed systematic review
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Protecting Confidentiality in Online Records of Minors at Risk of Harm: Experiences in Pediatric Oncology Care.

Hagström, Josefin; Blease, Charlotte; Harila, Arja; Hägglund, Maria

Ingår i Studies in Health Technology and Informatics, s. 929-933, 2025

• DOI för Protecting Confidentiality in Online Records of Minors at Risk of Harm: Experiences in Pediatric Oncology Care.

Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review

Terceiro, Luciana; Mustafa, Mudassir Imran; Hägglund, Maria; Kharko, Anna

Ingår i JMIR Research Protocols, 2025

• DOI för Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review
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Seeking public assistance to escape violence: a study on relocation co-created with women with lived experience of homelessness

Vamstad, Johan; Klarare, Anna; Agius, Josefine; Mattsson, Elisabet

Ingår i International Review of Sociology, s. 72-88, 2025

• DOI för Seeking public assistance to escape violence: a study on relocation co-created with women with lived experience of homelessness
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The Evolution of Patient Empowerment and Its Impact on Health Care's Future

Mesko, Bertalan; DeBronkart, Dave; Dhunnoo, Pranavsingh; Arvai, Nora et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för The Evolution of Patient Empowerment and Its Impact on Health Care's Future
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The Gender Gap in EHR Experiences and Preferences: Results from an International Cross-Sectional Survey of Patients.

Kharko, Anna; Hagström, Josefin; Simola, Saija; Cajander, Åsa et al.

Ingår i Studies in Health Technology and Informatics, s. 939-943, 2025

• DOI för The Gender Gap in EHR Experiences and Preferences: Results from an International Cross-Sectional Survey of Patients.

To connect or not connect: long-term adoption of video consultations, and reasons for discontinuing use

Muli, Irene; Hvitfeldt, Helena; Cajander, Åsa; Jäderlund Hagstedt, Lovisa et al.

Ingår i Journal of Telemedicine and Telecare, s. 572-584, 2025

• DOI för To connect or not connect: long-term adoption of video consultations, and reasons for discontinuing use
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A Nordic Perspective on Patient Online Record Access and the European Health Data Space

Hägglund, Maria; Kharko, Anna; Bärkås, Annika; Blease, Charlotte et al.

Ingår i Journal of Medical Internet Research, 2024

• DOI för A Nordic Perspective on Patient Online Record Access and the European Health Data Space
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A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study

Mazzocato, Pamela; Luckhaus, Jamie; Malmqvist Castillo, Moa; Burnett, Johan et al.

Ingår i Journal of Medical Internet Research, 2024

• DOI för A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
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A perspective-taking university course for cancer survivors, loved ones and healthcare professionals

Sandén, Ulrika; Nilsson, Fredrik; Thulesius, Hans; Hägglund, Maria et al.

Ingår i Social Sciences & Humanities Open, 2024

Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online

Hagström, Josefin; Blease, Charlotte; Moll, Jonas; Rexhepi, Hanife et al.

Ingår i Studies in Health Technology and Informatics, s. 1422-1423, 2024

• DOI för Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
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Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden

Hagström, Josefin; Blease, Charlotte; Scandurra, Isabella; Moll, Jonas et al.

Ingår i BMJ Paediatrics Open, 2024

• DOI för Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
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Affordance trajectories and the usefulness of online records access among older adults in Sweden

Huvila, Isto; Rexhepi, Hanife; Moll, Jonas; Zolbin, Maedeh Ghorbanian et al.

Ingår i Digital Health, 2024

• DOI för Affordance trajectories and the usefulness of online records access among older adults in Sweden
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Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Reinius, Maria; Al‐Adili, Lina; Riggare, Sara; Rodriguez, Inka Helispää et al.

Ingår i Health Expectations, 2024

• DOI för Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden

Luckhaus, Jamie L.; Clareborn, Anna; Hägglund, Maria; Riggare, Sara

Ingår i Health Expectations, 2024

• DOI för Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
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Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden

Kujala, Sari; Simola, Saija; Wang, Bo; Soone, Hedvig et al.

Ingår i International Journal of Medical Informatics, 2024

• DOI för Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
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Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Richards, Dawn P.; Mulhall, Hetty; Belton, Joletta; de Souza, Savia et al.

Ingår i Research Involvement and Engagement, 2024

• DOI för Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P et al.

Ingår i The BMJ, 2024

• DOI för Conferences led by patients facilitate democratic decision making in healthcare

Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P. et al.

Ingår i BMJ. British Medical Journal, 2024

• DOI för Conferences led by patients facilitate democratic decision making in healthcare

Digital health interventions for schizophrenia: Setting standards for mental health

Torous, John; Smith, Katharine A.; Hardy, Amy; Vinnikova, Anastasia et al.

Ingår i Schizophrenia Research, s. 392-395, 2024

• DOI för Digital health interventions for schizophrenia: Setting standards for mental health

Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions

Smith, Katharine A.; Hardy, Amy; Vinnikova, Anastasia; Blease, Charlotte et al.

Ingår i JMIR Mental Health, 2024

• DOI för Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions
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Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research

Hunt, Joanne; Blease, Charlotte

Ingår i Journal of Medical Ethics, 2024

• DOI för Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research

Experiences and opinions of general practitioners with patient online record access: an online survey in England

Blease, Charlotte; Kharko, Anna; Dong, Zhiyong; Jones, Ray B et al.

Ingår i BMJ Open, 2024

• DOI för Experiences and opinions of general practitioners with patient online record access: an online survey in England
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Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden

Fagerlund, Asbjørn; Bärkås, Annika; Kharko, Anna; Blease, Charlotte et al.

Ingår i BMC Psychiatry, 2024

• DOI för Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
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Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Hunt, Joanne; Runacres, Jessica; Herron, Daniel; Sheffield, David

Ingår i Qualitative Report, 2024

• DOI för Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
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Factors facilitating successful implementations of eye gaze devices for communication: A scoping review and case description

Büker, Stella

2024

Generative artificial intelligence in mental health care: potential benefits and current challenges

Torous, John; Blease, Charlotte

Ingår i World Psychiatry, s. 1-2, 2024

• DOI för Generative artificial intelligence in mental health care: potential benefits and current challenges

Generative artificial intelligence in primary care: an online survey of UK general practitioners

Blease, Charlotte; Locher, Cosima; Gaab, Jens; Hägglund, Maria et al.

Ingår i BMJ Health & Care Informatics, 2024

• DOI för Generative artificial intelligence in primary care: an online survey of UK general practitioners
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Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0

Kharko, Anna; McMillan, Brian; Hagström, Josefin; Muli, Irene et al.

Ingår i Digital Health, 2024

• DOI för Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0
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Generative Language Models and Open Notes: Exploring the Promise and Limitations

Blease, Charlotte; Torous, John; McMillan, Brian; Hägglund, Maria et al.

Ingår i JMIR Medical Education, 2024

• DOI för Generative Language Models and Open Notes: Exploring the Promise and Limitations

Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden

Kharko, Anna; Luckhaus, Jamie; Blease, Charlotte; Cajander, Åsa et al.

Ingår i NordiCHI '24, 2024

• DOI för Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
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Implementering av medicinsk teknik: En kvalitativ fallstudie om implementeringen av CareEvent i en komplex vårdmiljö (Neonatalavdelningen)

Chabok, Araz Anton; Erlandsson, Kewin

2024

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Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden

Söderberg, Daniel; Bonn, Stephanie E.; Sjöblom, Linnea; Dahlgren, Anna et al.

Ingår i Telemedicine journal and e-health, s. 1289-1296, 2024

• DOI för Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden
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Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: The legacy of common health problems and the future for long COVID

Hunt, Joanne

Ingår i Critical Social Policy, s. 535-547, 2024

• DOI för Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: The legacy of common health problems and the future for long COVID
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Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study

Gerger, Heike; Munder, Thomas; Kreuzer, Nicole; Locher, Cosima et al.

Ingår i Health Communication, s. 1246-1255, 2024

• DOI för Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study
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