Birgitta Johansson
Senior Lecturer/Associate Professor at Department of Immunology, Genetics and Pathology; Research programme: Cancer Precision Medicine; Research group Peter Nygren
- E-mail:
- birgitta.johansson@igp.uu.se
- Visiting address:
- Akademiska sjukhuset, ingång 61, 3 tr
751 85 Uppsala - Postal address:
- Akademiska sjukhuset, ingång 61, 3 tr
751 85 Uppsala
- CV:
- Download CV
Short presentation
Senior lecturer in oncology nursing, combined with work as a nurse at an oncology outpatient clinic . My research concerns the care of patients with cancer with a focus on psychosocial aspects, health-related quality of life, diet and exercise in cancer.

Publications
Selection of publications
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Part of Acta Oncologica, p. 888-896, 2022
- DOI for Long-term resource utilisation and associated costs of exercise during (neo)adjuvant oncological treatment: the Phys-Can project
- Download full text (pdf) of Long-term resource utilisation and associated costs of exercise during (neo)adjuvant oncological treatment: the Phys-Can project
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Part of BMJ Open, 2022
- DOI for Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
- Download full text (pdf) of Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
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Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
Part of Studies in Health Technology and Informatics, p. 214-218, 2022
- DOI for Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
- Download full text (pdf) of Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
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Part of Journal of Medical Internet Research, 2020
- DOI for Experiences of Internet-Based Stepped Care in Individuals With Cancer and Concurrent Symptoms of Anxiety and Depression: Qualitative Exploration Conducted Alongside the U-CARE AdultCan Randomized Controlled Trial
- Download full text (pdf) of Experiences of Internet-Based Stepped Care in Individuals With Cancer and Concurrent Symptoms of Anxiety and Depression: Qualitative Exploration Conducted Alongside the U-CARE AdultCan Randomized Controlled Trial
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Part of Psycho-Oncology, p. 2012-2018, 2020
- DOI for Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
- Download full text (pdf) of Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
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Part of Supportive Care in Cancer, p. 3331-3342, 2020
- DOI for Effects of a nutrition intervention on acute and late bowel symptoms and health-related quality of life up to 24 months post radiotherapy in patients with prostate cancer: a multicentre randomised controlled trial.
- Download full text (pdf) of Effects of a nutrition intervention on acute and late bowel symptoms and health-related quality of life up to 24 months post radiotherapy in patients with prostate cancer: a multicentre randomised controlled trial.
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Part of Nutrition & Dietetics, p. 223-230, 2020
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Part of Journal of Nuclear Medicine Technology, p. 36-46, 2019
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Part of The Breast, p. 844-851, 2014
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Part of Radiotherapy and Oncology, p. 240-247, 2014
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Part of Acta Oncologica, p. 118-127, 2013
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Change in working time in a population-based cohort of patients with breast cancer
Part of Journal of Clinical Oncology, p. 2853-2860, 2012
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Part of Radiotherapy and Oncology, p. 333-340, 2012
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Part of British Journal of Cancer, p. 1975-1983, 2008
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A randomized study of nutritional support in patients with colorectal and gastric cancer
Part of Nutrition and Cancer, p. 48-58, 2002
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Intensified primary cancer care: A randomised study on home care nurse contacts
Part of Journal of Advanced Nursing, p. 1137-1146, 1999
Recent publications
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Part of JMIR Cancer, 2026
- DOI for The Development of a Web-Based Application to Support Informal Caregivers of Individuals With Head and Neck Cancer: Human-Centered Design Approach
- Download full text (pdf) of The Development of a Web-Based Application to Support Informal Caregivers of Individuals With Head and Neck Cancer: Human-Centered Design Approach
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Part of Human Behavior and Emerging Technologies, 2025
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Designing Software for Web-based Psychosocial Care: Longitudinal Design Science Research in U-CARE
Part of Communications of the Association for Information Systems, p. 1153-1192, 2024
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Part of The FASEB Journal, 2024
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Part of BMC Cancer, 2024
- DOI for The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
- Download full text (pdf) of The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
All publications
Articles in journal
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Part of JMIR Cancer, 2026
- DOI for The Development of a Web-Based Application to Support Informal Caregivers of Individuals With Head and Neck Cancer: Human-Centered Design Approach
- Download full text (pdf) of The Development of a Web-Based Application to Support Informal Caregivers of Individuals With Head and Neck Cancer: Human-Centered Design Approach
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Part of Human Behavior and Emerging Technologies, 2025
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Designing Software for Web-based Psychosocial Care: Longitudinal Design Science Research in U-CARE
Part of Communications of the Association for Information Systems, p. 1153-1192, 2024
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Part of The FASEB Journal, 2024
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Part of BMC Cancer, 2024
- DOI for The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
- Download full text (pdf) of The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
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Part of European Journal of Oncology Nursing, 2023
- DOI for Understanding the challenges and need for support of informal caregivers to individuals with head and neck cancer - A basis for developing internet-based support
- Download full text (pdf) of Understanding the challenges and need for support of informal caregivers to individuals with head and neck cancer - A basis for developing internet-based support
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Part of JMIR Cancer, 2023
- DOI for Positive Design Framework for Carer-eSupport: A Qualitative Study to Support Informal Caregivers of Patients with Head and Neck Cancer in Sweden
- Download full text (pdf) of Positive Design Framework for Carer-eSupport: A Qualitative Study to Support Informal Caregivers of Patients with Head and Neck Cancer in Sweden
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Part of Acta Oncologica, p. 414-421, 2023
- DOI for Cost-effectiveness of different exercise intensities during oncological treatment in the Phys-Can RCT
- Download full text (pdf) of Cost-effectiveness of different exercise intensities during oncological treatment in the Phys-Can RCT
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Part of BMC Cancer, 2023
- DOI for Evaluating patient reported outcomes and experiences in a novel proton beam clinic - challenges, activities, and outcomes of the ProtonCare project
- Download full text (pdf) of Evaluating patient reported outcomes and experiences in a novel proton beam clinic - challenges, activities, and outcomes of the ProtonCare project
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Part of Internet Interventions, 2023
- DOI for Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
- Download full text (pdf) of Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
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Part of Primary Health Care Research and Development, 2022
- DOI for How persons with systemic mastocytosis describe the time between symptom onset and receiving diagnosis
- Download full text (pdf) of How persons with systemic mastocytosis describe the time between symptom onset and receiving diagnosis
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Part of Physiotherapy Theory and Practice, p. 141-150, 2022
- DOI for The Phys-Can study: meaningful and challenging - supervising physical exercise in a community-based setting for persons undergoing curative oncological treatment
- Download full text (pdf) of The Phys-Can study: meaningful and challenging - supervising physical exercise in a community-based setting for persons undergoing curative oncological treatment
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Part of Acta Oncologica, p. 888-896, 2022
- DOI for Long-term resource utilisation and associated costs of exercise during (neo)adjuvant oncological treatment: the Phys-Can project
- Download full text (pdf) of Long-term resource utilisation and associated costs of exercise during (neo)adjuvant oncological treatment: the Phys-Can project
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Part of Supportive Care in Cancer, p. 5949-5963, 2022
- DOI for Short- and long-term effect of high versus low-to-moderate intensity exercise to optimise health-related quality of life after oncological treatment-results from the Phys-Can project
- Download full text (pdf) of Short- and long-term effect of high versus low-to-moderate intensity exercise to optimise health-related quality of life after oncological treatment-results from the Phys-Can project
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Part of Upsala Journal of Medical Sciences, 2022
- DOI for Associations between dietary advice on modified fibre and lactose intakes and nutrient intakes in men with prostate cancer undergoing radiotherapy
- Download full text (pdf) of Associations between dietary advice on modified fibre and lactose intakes and nutrient intakes in men with prostate cancer undergoing radiotherapy
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Part of Nordic journal of nursing research, p. 18-27, 2022
- DOI for Is it possible to increase the amount of physical activity in patients isolated due to hematopoietic stem cell transplantation using a nursing intervention?: A feasibility study
- Download full text (pdf) of Is it possible to increase the amount of physical activity in patients isolated due to hematopoietic stem cell transplantation using a nursing intervention?: A feasibility study
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Part of BMJ Open, 2022
- DOI for Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
- Download full text (pdf) of Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
-
Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
Part of Studies in Health Technology and Informatics, p. 214-218, 2022
- DOI for Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
- Download full text (pdf) of Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
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Part of Journal of Medical Internet Research, 2021
- DOI for Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
- Download full text (pdf) of Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
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Part of Acta Oncologica, p. 96-105, 2021
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Part of Scandinavian Journal of Medicine and Science in Sports, p. 1144-1159, 2021
- DOI for Does exercise intensity matter for fatigue during (neo)adjuvant cancer treatment?: The PhysCan randomized clinical trial
- Download full text (pdf) of Does exercise intensity matter for fatigue during (neo)adjuvant cancer treatment?: The PhysCan randomized clinical trial
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Part of Scandinavian Journal of Caring Sciences, p. 796-804, 2021
- DOI for Development and initial psychometric evaluation of a radiotherapy-related symptom assessment tool, based on data from patients with brain tumours undergoing proton beam therapy
- Download full text (pdf) of Development and initial psychometric evaluation of a radiotherapy-related symptom assessment tool, based on data from patients with brain tumours undergoing proton beam therapy
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Part of Medicine, 2021
- DOI for Effects of heavy-load resistance training during (neo-)adjuvant chemotherapy on muscle cellular outcomes in women with breast cancer
- Download full text (pdf) of Effects of heavy-load resistance training during (neo-)adjuvant chemotherapy on muscle cellular outcomes in women with breast cancer
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Part of Journal of Medical Internet Research, 2020
- DOI for User Experiences of an Internet-Based Stepped-Care Intervention for Individuals With Cancer and Concurrent Symptoms of Anxiety or Depression (the U-CARE AdultCan Trial): Qualitative Study
- Download full text (pdf) of User Experiences of an Internet-Based Stepped-Care Intervention for Individuals With Cancer and Concurrent Symptoms of Anxiety or Depression (the U-CARE AdultCan Trial): Qualitative Study
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Part of European Journal of Oncology Nursing, 2020
- DOI for Exercise: A positive feature on functioning in daily life during cancer treatment — Experiences from the Phys-Can study
- Download full text (pdf) of Exercise: A positive feature on functioning in daily life during cancer treatment — Experiences from the Phys-Can study
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Part of Journal of Medical Internet Research, 2020
- DOI for Experiences of Internet-Based Stepped Care in Individuals With Cancer and Concurrent Symptoms of Anxiety and Depression: Qualitative Exploration Conducted Alongside the U-CARE AdultCan Randomized Controlled Trial
- Download full text (pdf) of Experiences of Internet-Based Stepped Care in Individuals With Cancer and Concurrent Symptoms of Anxiety and Depression: Qualitative Exploration Conducted Alongside the U-CARE AdultCan Randomized Controlled Trial
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Part of Psycho-Oncology, p. 2012-2018, 2020
- DOI for Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
- Download full text (pdf) of Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
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Patients' perspective in the context of proton beam therapy: summary of a Nordic workshop
Part of Acta Oncologica, p. 1139-1144, 2020
- DOI for Patients' perspective in the context of proton beam therapy: summary of a Nordic workshop
- Download full text (pdf) of Patients' perspective in the context of proton beam therapy: summary of a Nordic workshop
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Part of Nursing open, p. 1157-1163, 2020
- DOI for Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy
- Download full text (pdf) of Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy
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Part of Supportive Care in Cancer, p. 3331-3342, 2020
- DOI for Effects of a nutrition intervention on acute and late bowel symptoms and health-related quality of life up to 24 months post radiotherapy in patients with prostate cancer: a multicentre randomised controlled trial.
- Download full text (pdf) of Effects of a nutrition intervention on acute and late bowel symptoms and health-related quality of life up to 24 months post radiotherapy in patients with prostate cancer: a multicentre randomised controlled trial.
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Part of Nutrition & Dietetics, p. 223-230, 2020
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Part of Cancer Nursing, 2020
- DOI for The Art of Living With Symptoms: A Qualitative Study Among Patients With Primary Brain Tumors Receiving Proton Beam Therapy
- Download full text (pdf) of The Art of Living With Symptoms: A Qualitative Study Among Patients With Primary Brain Tumors Receiving Proton Beam Therapy
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Part of Journal of Medical Internet Research, 2019
- DOI for Identification of Anxiety and Depression Symptoms in Patients With Cancer: Comparison Between Short and Long Web-Based Questionnaires
- Download full text (pdf) of Identification of Anxiety and Depression Symptoms in Patients With Cancer: Comparison Between Short and Long Web-Based Questionnaires
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Part of Supportive Care in Cancer, p. 2679-2691, 2019
- DOI for Evaluation of quality of care in relation to health-related quality of life of patients diagnosed with brain tumor: a novel clinic for proton beam therapy
- Download full text (pdf) of Evaluation of quality of care in relation to health-related quality of life of patients diagnosed with brain tumor: a novel clinic for proton beam therapy
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Symptom Clusters in Patients With Brain Tumors Undergoing Proton Beam Therapy.
Part of Oncology Nursing Forum, p. 349-363, 2019
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Part of Journal of Nuclear Medicine Technology, p. 36-46, 2019
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Part of BMC Cancer, 2017
- DOI for Design of a randomized controlled trial of physical training and cancer (Phys-Can) - the impact of exercise intensity on cancer related fatigue, quality of life and disease outcome
- Download full text (pdf) of Design of a randomized controlled trial of physical training and cancer (Phys-Can) - the impact of exercise intensity on cancer related fatigue, quality of life and disease outcome
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Exercise during and after curative oncological treatment: a mapping review
Part of Physical Therapy Reviews, p. 103-115, 2017
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Part of Journal of Medical Internet Research, 2017
- DOI for Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
- Download full text (pdf) of Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
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Part of Journal of Medical Internet Research, 2017
- DOI for Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden
- Download full text (pdf) of Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden
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Part of Cancer Nursing, 2017
- DOI for The development of a Nurse-led Internet-based Learning and Self-care program for cancer patients with symptoms of anxiety and depression: a part of U-CARE
- Download full text (pdf) of The development of a Nurse-led Internet-based Learning and Self-care program for cancer patients with symptoms of anxiety and depression: a part of U-CARE
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Part of European Journal of Oncology Nursing, p. 85-90, 2017
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Part of Acta Oncologica, p. 1094-1102, 2017
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Perceived barriers to and facilitators of being physically active during adjuvant cancer treatment
Part of Patient Education and Counseling, p. 1220-1226, 2016
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Part of Journal of Nuclear Medicine Technology, p. 21-25, 2016
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Part of Cancer Nursing, 2016
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Part of Supportive Care in Cancer, p. 4017-4023, 2016
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Part of Journal of Medical Internet Research, 2015
- DOI for Measuring Use of Health-Related Support on the Internet: Development of the Health Online Support Questionnaire (HOSQ)
- Download full text (pdf) of Measuring Use of Health-Related Support on the Internet: Development of the Health Online Support Questionnaire (HOSQ)
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Patient Experience of an 18F-FDG-PET/CT Examination: Need for Improvements in Patient Care
Part of Journal of Radiology Nursing, p. 100-108, 2015
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Part of Supportive Care in Cancer, p. 2965-2972, 2015
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Part of The Breast, p. 844-851, 2014
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Part of Radiotherapy and Oncology, p. 240-247, 2014
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Part of Psycho-Oncology, p. 251-258, 2014
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Part of Acta Oncologica, p. 368-377, 2014
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Part of Acta Oncologica, p. 510-520, 2014
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Part of Journal of Cancer Education, p. 278-283, 2014
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Part of BMC Cancer, p. 414, 2013
- DOI for Internet-based stepped care with interactive support and cognitive behavioral therapy for reduction of anxiety and depressive symptoms in cancer: a clinical trial protocol
- Download full text (pdf) of Internet-based stepped care with interactive support and cognitive behavioral therapy for reduction of anxiety and depressive symptoms in cancer: a clinical trial protocol
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Part of Acta Oncologica, p. 118-127, 2013
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Part of European Journal of Oncology Nursing, p. 625-631, 2013
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Part of Psycho-Oncology, p. 2321-2331, 2013
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Part of European Journal of Cancer, 2013
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2012
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Change in working time in a population-based cohort of patients with breast cancer
Part of Journal of Clinical Oncology, p. 2853-2860, 2012
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Evaluation of predictive markers for patients with advanced colorectal cancer
Part of Acta Oncologica, p. 849-859, 2012
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Part of European Journal of Cancer Care, p. 642-649, 2012
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Part of Radiotherapy and Oncology, p. 333-340, 2012
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Health-related quality of life among women with breast cancer: a population-based study
Part of Acta Oncologica, p. 1015-1026, 2011
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Part of Medical Oncology, p. 65-72, 2010
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Part of Supportive Care in Cancer, p. 1377-1384, 2010
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Part of Oncology Reports, p. 1645-1652, 2010
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Evidence-based practice: the importance of education and leadership
Part of Journal of Nursing Management, p. 70-77, 2010
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Part of Acta Oncologica, p. 163-165, 2010
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Part of British Journal of Cancer, p. 1975-1983, 2008
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Part of Cancer Nursing, 2007
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Determinants of cancer patients' utilization of hospital care within two years after diagnosis.
Part of Acta Oncol, p. 536-44, 2004
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Part of Läkartidningen, p. 1524-1531, 2003
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A randomized study of nutritional support in patients with colorectal and gastric cancer
Part of Nutrition and Cancer, p. 48-58, 2002
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Part of Läkartidningen, p. 771-773, 2002
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Part of European Journal of Cancer, p. 2161-2168, 2001
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Part of Scandinavian Journal of Primary Health Care, p. 143-148, 2000
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Intensified primary cancer care: A randomised study on home care nurse contacts
Part of Journal of Advanced Nursing, p. 1137-1146, 1999
Articles, review/survey
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Part of Psycho-Oncology, p. 1772-1785, 2020
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Part of Clinical Psychology Review, 2020
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Part of Psycho-Oncology, p. 1150-1161, 2018
Chapters in book
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Bedömning av rehabiliteringsbehov
Part of Rehabilitering vid cancersjukdom, p. 38-56, Natur och kultur, 2013
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Cancerpatienten i primärvården
Part of Rehabilitering vid cancersjukdom, p. 57-66, Natur och kultur, 2013
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Omvårdnad vid cytostatikabehandling
Part of Omvårdnad vid bröstcancer, p. 34-40, Onkologiskt Centrum Stockholm-Gotlandregionen, 2011
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Part of Onkologi, p. 232-242, Liber, 2008
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Part of Rosa boken om bröstcancer, p. 190-200, Cancerfonden, 2006
Conference papers
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Phys-Can feasibility Study: Preparing for Physical Training and Behavioral Medicine Strategies
p. 95-95, 2014
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p. 205-205, 2014
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2014
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p. 94-94, 2014
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2013
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U-CARE: a research program on psychosocial care via the internet
2012