Helena Wandin
Associated Researcher at Department of Public Health and Caring Sciences; Speech-Language Pathology
- E-mail:
- helena.wandin@uu.se
- Visiting address:
- BMC, Husargatan 3, Uppsala
- Postal address:
- Box 564
751 22 UPPSALA
- ORCID:
- 0000-0003-0002-7142
Short presentation
My research interest is how to support individuals with multiple and significant disabilities to best communicate with others and develop their language. I also work as a researcher and as a speech language therapist at the National Center for Rett Syndrome and Related Disorders in Frösön.

Publications
Recent publications
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Part of Orphanet Journal of Rare Diseases, 2026
- DOI for Interventions targeting challenges experienced by individuals with Pitt Hopkins syndrome: a scoping review
- Download full text (pdf) of Interventions targeting challenges experienced by individuals with Pitt Hopkins syndrome: a scoping review
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Part of British Journal of Learning Disabilities, p. 150-165, 2024
- DOI for The effect of MultiSensory Music Drama on the interactive engagement of students with severe/profound intellectual and multiple disabilities
- Download full text (pdf) of The effect of MultiSensory Music Drama on the interactive engagement of students with severe/profound intellectual and multiple disabilities
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Part of Current Developmental Disorders Reports, p. 123-131, 2023
- DOI for A scoping review of aided AAC modeling for individuals with developmental disabilities and emergent communication
- Download full text (pdf) of A scoping review of aided AAC modeling for individuals with developmental disabilities and emergent communication
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Part of Frontiers in Psychology, 2022
- DOI for A trained communication partner's use of responsive strategies in aided communication with three adults with Rett syndrome: A case report
- Download full text (pdf) of A trained communication partner's use of responsive strategies in aided communication with three adults with Rett syndrome: A case report
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Part of Disability and Rehabilitation, p. 1011-1025, 2021
- DOI for Aided language modelling, responsive communication and eye-gaze technology as communication intervention for adults with Rett syndrome: three experimental single case studies
- Download full text (pdf) of Aided language modelling, responsive communication and eye-gaze technology as communication intervention for adults with Rett syndrome: three experimental single case studies
All publications
Articles in journal
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Part of British Journal of Learning Disabilities, p. 150-165, 2024
- DOI for The effect of MultiSensory Music Drama on the interactive engagement of students with severe/profound intellectual and multiple disabilities
- Download full text (pdf) of The effect of MultiSensory Music Drama on the interactive engagement of students with severe/profound intellectual and multiple disabilities
-
Part of Current Developmental Disorders Reports, p. 123-131, 2023
- DOI for A scoping review of aided AAC modeling for individuals with developmental disabilities and emergent communication
- Download full text (pdf) of A scoping review of aided AAC modeling for individuals with developmental disabilities and emergent communication
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Part of Frontiers in Psychology, 2022
- DOI for A trained communication partner's use of responsive strategies in aided communication with three adults with Rett syndrome: A case report
- Download full text (pdf) of A trained communication partner's use of responsive strategies in aided communication with three adults with Rett syndrome: A case report
-
Part of Disability and Rehabilitation, p. 1011-1025, 2021
- DOI for Aided language modelling, responsive communication and eye-gaze technology as communication intervention for adults with Rett syndrome: three experimental single case studies
- Download full text (pdf) of Aided language modelling, responsive communication and eye-gaze technology as communication intervention for adults with Rett syndrome: three experimental single case studies
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Part of Augmentative and Alternative Communication, p. 71-81, 2020
- DOI for Development of consensus-based guidelines for managing communication of individuals with Rett syndrome
- Download full text (pdf) of Development of consensus-based guidelines for managing communication of individuals with Rett syndrome
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Development of a tool to assess visual attention in Rett syndrome: a pilot study
Part of Augmentative and Alternative Communication, p. 118-127, 2020
- DOI for Development of a tool to assess visual attention in Rett syndrome: a pilot study
- Download full text (pdf) of Development of a tool to assess visual attention in Rett syndrome: a pilot study
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Part of TECHNOLOGIES, 2018
- DOI for Eye-Gaze Control Technology as Early Intervention for a Non-Verbal Young Child with High Spinal Cord Injury: A Case Report
- Download full text (pdf) of Eye-Gaze Control Technology as Early Intervention for a Non-Verbal Young Child with High Spinal Cord Injury: A Case Report
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Part of Logopeden, p. 18-21, 2015
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Part of Disability and Rehabilitation, p. 1324-1333, 2015
Articles, review/survey
Chapters in book
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Part of Rett Syndrome (RTT), p. 55-67, Nova Science Publishers, Inc., 2021
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Part of Rett Syndrome (RTT), p. 27-39, Nova Science Publishers, Inc., 2020
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Alternativ kommunikation och ätsvårigheter
Part of Barn med funktionsnedsättning, Studentlitteratur, 2012
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Alternativ kommunikation och ätsvårigheter.
Part of Barn med funktionsnedsättning., Studentlitteratur AB, 2012
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Språk hos barn med funktionsnedsättning
Part of Barn med funktionsnedsättning, Studentlitteratur, 2012
Comprehensive doctoral thesis
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2020
Conference papers
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International Guidelines for Management of Communication in Rett Syndrome
2019
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International guidelines for the management of communication in Rett syndrome
Part of Book of abstracts, p. 44-45, 2018
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Gaze-Based Assistive Technology: Usefulness in Clinical Assessments
Part of Harnessing the Power of Technology to Improve Lives, p. 1113-1118, 2017
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Visual attention when aided language modeling is used in interaction
Part of Program: 5th European Rett Syndrom Congress, 2017
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What do people with severe disabilities communicate with the help of communication aids?
Part of International Conference on Cerebral Palsy and other Childhood-onset Disabilities Stockholm 1–4 June 2016, 2016
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Teaching aided communication: self-report and intervention by SLPs
2016
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Communication Strategies - evidence and experience
2016
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2015
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Tools for Assessment of Communication in Rett Syndrome
2015
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Logopeders erfarenheter av kommunikationsinsatser vid Rett syndrom
Part of Abstract katalog, 2015
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2015
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Early communication intervention in Rett Syndrome
Part of 3rd European Rett Syndrome Conference, 2013