Louise von Essen
Professor at Department of Women's and Children's Health; CIRCLE - Complex Intervention Research in Health and Care
- Mobile phone:
- +46 70 425 07 14
- E-mail:
- louise-von.essen@uu.se
- Visiting address:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postal address:
- Akademiska sjukhuset
751 85 UPPSALA
- CV:
- Download CV
Short presentation
Jag är leg psykolog, fil dr i psykologi och professor i vårdvetenskap. Jag startade och är programsamordnare för U-CARE, se http://www.u-care.uu.se/. Jag är också forskargruppsledare för forskargruppen CIRCLE och föreståndare för Uppsala Trial Forge Centre. Min forskning handlar i stort om att utveckla stöd för föräldrar vars barn behandlats för cancer i Sverige och vårdnadshavare till barn som behandlas för cancer i Tanzania vilket kan öka barnens chanser att överleva sin sjukdom.
Keywords
- Childhood cancer
- clinical trials
- complex intervention research
- family
- feasibility trials
- guardians
- mental health
- parents
- public contribution
- recruitment
- retention
Research
My present research mainly concerns developing, testing, evaluating, and implementing complex interventions for parents of children treated for cancer in Sweden and guardians of children treated for cancer in Tanzania. Children, guardians, healthcare personnel, parents, national and international researchers, and other interest-holders contribute to all parts of my research, se https://scholar.google.com/citations?user=5JX8LpMAAAAJ&hl=sv

Publications
Recent publications
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Part of JMIR Human Factors, 2026
- DOI for e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
- Download full text (pdf) of e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
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Part of Dementia, p. 801-823, 2026
- DOI for Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
- Download full text (pdf) of Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
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Part of Aging & Mental Health, 2026
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Part of Cancer Medicine, 2026
- DOI for "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
- Download full text (pdf) of "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
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Part of Health Expectations, 2026
All publications
Articles in journal
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Part of JMIR Human Factors, 2026
- DOI for e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
- Download full text (pdf) of e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
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Part of Dementia, p. 801-823, 2026
- DOI for Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
- Download full text (pdf) of Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
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Part of Aging & Mental Health, 2026
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Part of Cancer Medicine, 2026
- DOI for "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
- Download full text (pdf) of "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
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Part of Health Expectations, 2026
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Part of BMC Psychiatry, 2025
- DOI for The acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: findings from a qualitative study involving public contributors
- Download full text (pdf) of The acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: findings from a qualitative study involving public contributors
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Part of BMC Geriatrics, 2025
- DOI for People with dementia and informal caregivers’ perceptions of barriers and facilitators to implementing a behavioral activation intervention: a qualitative study using Normalization Process Theory
- Download full text (pdf) of People with dementia and informal caregivers’ perceptions of barriers and facilitators to implementing a behavioral activation intervention: a qualitative study using Normalization Process Theory
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Part of BMC Psychology, 2025
- DOI for "It is today that counts, and today everything is fine": coping strategies utilized by parents of children treated for cancer who seek psychological support - a qualitative study
- Download full text (pdf) of "It is today that counts, and today everything is fine": coping strategies utilized by parents of children treated for cancer who seek psychological support - a qualitative study
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Part of Health Expectations, 2025
- DOI for Addressing the Health Needs of Underserved Populations Through Public Contribution: Prioritisation and Development of a Peer Support Intervention for Sexual and Gender Minority Forced Migrants
- Download full text (pdf) of Addressing the Health Needs of Underserved Populations Through Public Contribution: Prioritisation and Development of a Peer Support Intervention for Sexual and Gender Minority Forced Migrants
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Part of JMIR Formative Research, 2025
- DOI for Engagement With an Internet-Administered, Guided, Low-Intensity Cognitive Behavioral Therapy Intervention for Parents of Children Treated for Cancer: Analysis of Log-Data From the ENGAGE Feasibility Trial
- Download full text (pdf) of Engagement With an Internet-Administered, Guided, Low-Intensity Cognitive Behavioral Therapy Intervention for Parents of Children Treated for Cancer: Analysis of Log-Data From the ENGAGE Feasibility Trial
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Part of Research Involvement and Engagement, 2024
- DOI for Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol
- Download full text (pdf) of Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol
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Designing Software for Web-based Psychosocial Care: Longitudinal Design Science Research in U-CARE
Part of Communications of the Association for Information Systems, p. 1153-1192, 2024
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Part of Digital Health, 2024
- DOI for E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: A qualitative study
- Download full text (pdf) of E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: A qualitative study
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Part of BMC Geriatrics, 2024
- DOI for Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden: A qualitative study exploring the needs and preferences of key stakeholders
- Download full text (pdf) of Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden: A qualitative study exploring the needs and preferences of key stakeholders
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Part of Cancer Medicine, 2024
- DOI for Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project: A mixed‐methods study protocol
- Download full text (pdf) of Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project: A mixed‐methods study protocol
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Part of BMC Nephrology, 2024
- DOI for "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease
- Download full text (pdf) of "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease
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Part of BMC Cancer, 2024
- DOI for The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
- Download full text (pdf) of The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
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Part of Qualitative Health Research, p. 676-690, 2024
- DOI for Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness
- Download full text (pdf) of Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness
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Pain in pediatric oncology: A Swedish nationwide follow-up study among nurses and physicians
Part of Acta Paediatrica, 2023
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Part of BMJ Open, 2023
- DOI for Effectiveness, acceptability, and completeness and quality of intervention reporting of psychological interventions for people with dementia or mild cognitive impairment: Protocol for a mixed-methods systematic review
- Download full text (pdf) of Effectiveness, acceptability, and completeness and quality of intervention reporting of psychological interventions for people with dementia or mild cognitive impairment: Protocol for a mixed-methods systematic review
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Part of Cancer Medicine, p. 6225-6243, 2023
- DOI for Internet‐administered, low‐intensity cognitive behavioral therapy for parents of children treated for cancer: A feasibility trial (ENGAGE)
- Download full text (pdf) of Internet‐administered, low‐intensity cognitive behavioral therapy for parents of children treated for cancer: A feasibility trial (ENGAGE)
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Part of Psycho-Oncology, p. 237-246, 2023
- DOI for Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet-administered, low-intensity cognitive behavioral therapy intervention
- Download full text (pdf) of Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet-administered, low-intensity cognitive behavioral therapy intervention
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Part of JMIR Human Factors, 2023
- DOI for Barriers to and Facilitators of the Implementation of Digital Mental Health Interventions as Perceived by Primary Care Decision Makers: Content Analysis of Structured Open-Ended Survey Data
- Download full text (pdf) of Barriers to and Facilitators of the Implementation of Digital Mental Health Interventions as Perceived by Primary Care Decision Makers: Content Analysis of Structured Open-Ended Survey Data
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Part of JMIR Research Protocols, 2023
- DOI for An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study
- Download full text (pdf) of An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study
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Part of BMC Nephrology, 2023
- DOI for Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey
- Download full text (pdf) of Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey
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Part of JMIR Human Factors, 2023
- DOI for Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study
- Download full text (pdf) of Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study
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Part of BMC Psychiatry, 2023
- DOI for Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression: a systematic review and meta-analysis
- Download full text (pdf) of Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression: a systematic review and meta-analysis
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Part of Internet Interventions, 2023
- DOI for Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
- Download full text (pdf) of Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
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Part of Journal of Affective Disorders, p. 474-498, 2023
- DOI for Psychological interventions for symptoms of depression among informal caregivers of older adult populations: A systematic review and meta-analysis of randomized controlled trials
- Download full text (pdf) of Psychological interventions for symptoms of depression among informal caregivers of older adult populations: A systematic review and meta-analysis of randomized controlled trials
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Part of Cancer, p. 2400-2404, 2022
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Part of BMC Medical Research Methodology, 2022
- DOI for The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial: an embedded randomised controlled recruitment trial
- Download full text (pdf) of The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial: an embedded randomised controlled recruitment trial
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Part of International Journal of Qualitative Studies on Health and Well-being, 2022
- DOI for Experiences of nurses and coordinators in a childhood obesity prevention trial based on motivational interviewing within Swedish child health services
- Download full text (pdf) of Experiences of nurses and coordinators in a childhood obesity prevention trial based on motivational interviewing within Swedish child health services
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Part of BMJ Open, 2022
- DOI for Opt-out rates and reasons for non-participation in a single-arm feasibility trial (ENGAGE) of a guided internet-administered CBT-based intervention for parents of children treated for cancer: A nested cross-sectional survey
- Download full text (pdf) of Opt-out rates and reasons for non-participation in a single-arm feasibility trial (ENGAGE) of a guided internet-administered CBT-based intervention for parents of children treated for cancer: A nested cross-sectional survey
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Part of BMJ Open, 2022
- DOI for Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
- Download full text (pdf) of Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
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Part of BMJ Open, 2021
- DOI for Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA): a study protocol using codesign and participatory action research
- Download full text (pdf) of Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA): a study protocol using codesign and participatory action research
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Part of Journal of Medical Internet Research, 2021
- DOI for Internet-Based Cognitive Behavioral Therapy for Patients Reporting Symptoms of Anxiety and Depression After Myocardial Infarction: U-CARE Heart Randomized Controlled Trial Twelve-Month Follow-up
- Download full text (pdf) of Internet-Based Cognitive Behavioral Therapy for Patients Reporting Symptoms of Anxiety and Depression After Myocardial Infarction: U-CARE Heart Randomized Controlled Trial Twelve-Month Follow-up
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Part of Journal of Medical Internet Research, 2021
- DOI for Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
- Download full text (pdf) of Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
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Part of BMJ Open, 2021
- DOI for Help-seeking behaviour and attitudes towards internet-administered psychological support among adolescent and young adults previously treated for cancer during childhood: Protocol for a survey and embedded qualitative interview study in Sweden
- Download full text (pdf) of Help-seeking behaviour and attitudes towards internet-administered psychological support among adolescent and young adults previously treated for cancer during childhood: Protocol for a survey and embedded qualitative interview study in Sweden
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Part of JMIR Formative Research, 2021
- DOI for Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study
- Download full text (pdf) of Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study
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Part of JMIR Formative Research, 2021
- DOI for Conducting Digital Health Care Research: Document Analysis of Challenges Experienced During Intervention Development and Feasibility Study Setup of an Internet-Administered Intervention for Parents of Children Treated for Cancer
- Download full text (pdf) of Conducting Digital Health Care Research: Document Analysis of Challenges Experienced During Intervention Development and Feasibility Study Setup of an Internet-Administered Intervention for Parents of Children Treated for Cancer
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Ibuprofen in needle procedures in children with cancer: A feasibility and pilot study
Part of Acta Paediatrica, p. 704-710, 2021
- DOI for Ibuprofen in needle procedures in children with cancer: A feasibility and pilot study
- Download full text (pdf) of Ibuprofen in needle procedures in children with cancer: A feasibility and pilot study
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Part of International Journal of Cancer, p. 2535-2541, 2021
- DOI for Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden: A population based difference-in-difference study
- Download full text (pdf) of Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden: A population based difference-in-difference study
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Part of Supportive Care in Cancer, p. 4869-4879, 2020
- DOI for Prevention of oral mucositis with cryotherapy in children undergoing hematopoietic stem cell transplantations: A feasibility study and randomized controlled trial
- Download full text (pdf) of Prevention of oral mucositis with cryotherapy in children undergoing hematopoietic stem cell transplantations: A feasibility study and randomized controlled trial
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Part of Acta Oncologica, p. 351-357, 2020
- DOI for Parents' needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study
- Download full text (pdf) of Parents' needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study
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Part of Cancer Nursing, 2020
- DOI for Concerns and Needs of Support Among Guardians of Children on Cancer Treatment in Dar es Salaam: A Qualitative Study
- Download full text (pdf) of Concerns and Needs of Support Among Guardians of Children on Cancer Treatment in Dar es Salaam: A Qualitative Study
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Part of Implementation Science, 2020
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Part of Journal of Medical Internet Research, 2020
- DOI for Views of Implementers and Nonimplementers of Internet-Administered Cognitive Behavioral Therapy for Depression and Anxiety: Survey of Primary Care Decision Makers in Sweden
- Download full text (pdf) of Views of Implementers and Nonimplementers of Internet-Administered Cognitive Behavioral Therapy for Depression and Anxiety: Survey of Primary Care Decision Makers in Sweden
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Part of PeerJ, 2020
- DOI for Heeding the psychological concerns of young cancer survivors: A single-arm feasibility trial of CBT and a cognitive behavioral conceptualization of distress
- Download full text (pdf) of Heeding the psychological concerns of young cancer survivors: A single-arm feasibility trial of CBT and a cognitive behavioral conceptualization of distress
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Part of Contemporary Clinical Trials Communications, 2020
- DOI for Study within a trial (SWAT) protocol. Investigating the effect of personalised versus non-personalised study invitations on recruitment: An embedded randomised controlled recruitment trial
- Download full text (pdf) of Study within a trial (SWAT) protocol. Investigating the effect of personalised versus non-personalised study invitations on recruitment: An embedded randomised controlled recruitment trial
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Part of Psycho-Oncology, p. 2012-2018, 2020
- DOI for Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
- Download full text (pdf) of Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
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Children's self-reports of fear and pain levels during needle procedures
Part of Nursing Open, p. 376-382, 2020
- DOI for Children's self-reports of fear and pain levels during needle procedures
- Download full text (pdf) of Children's self-reports of fear and pain levels during needle procedures
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Part of BMC Cancer, 2019
- DOI for Cancer-related concerns and needs among young adults and children on cancer treatment in Tanzania: A qualitative study
- Download full text (pdf) of Cancer-related concerns and needs among young adults and children on cancer treatment in Tanzania: A qualitative study
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Part of BMJ Open, 2019
- DOI for Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression: A systematic review, meta-analysis and thematic synthesis protocol
- Download full text (pdf) of Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression: A systematic review, meta-analysis and thematic synthesis protocol
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Psychological distress in parents of children treated for cancer: An explorative study
Part of PLOS ONE, 2019
- DOI for Psychological distress in parents of children treated for cancer: An explorative study
- Download full text (pdf) of Psychological distress in parents of children treated for cancer: An explorative study
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Part of Journal of Medical Internet Research, 2018
- DOI for Predicting Adherence to Internet-Delivered Psychotherapy for Symptoms of Depression and Anxiety After Myocardial Infarction: Machine Learning Insights From the U-CARE Heart Randomized Controlled Trial
- Download full text (pdf) of Predicting Adherence to Internet-Delivered Psychotherapy for Symptoms of Depression and Anxiety After Myocardial Infarction: Machine Learning Insights From the U-CARE Heart Randomized Controlled Trial
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Part of Journal of Medical Internet Research, 2018
- DOI for Internet-based Cognitive Behavior Therapy for Symptoms of Depression and Anxiety among Patients with a Recent Myocardial Infarction: The U-CARE Heart Randomized Trial
- Download full text (pdf) of Internet-based Cognitive Behavior Therapy for Symptoms of Depression and Anxiety among Patients with a Recent Myocardial Infarction: The U-CARE Heart Randomized Trial
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Part of Journal of Medical Internet Research, 2018
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Part of Journal of Medical Internet Research, 2018
- DOI for Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer: Web-Based Survey
- Download full text (pdf) of Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer: Web-Based Survey
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Part of BMJ Open, 2018
- DOI for Study protocol for a feasibility study of an internet-administered, guided, CBT-based, self-help intervention (ENGAGE) for parents of children previously treated for cancer
- Download full text (pdf) of Study protocol for a feasibility study of an internet-administered, guided, CBT-based, self-help intervention (ENGAGE) for parents of children previously treated for cancer
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Part of PeerJ, 2018
- DOI for An open trial of individualized face-to-face cognitive behavior therapy for psychological distress in parents of children after end of treatment for childhood cancer including a cognitive behavioral conceptualization
- Download full text (pdf) of An open trial of individualized face-to-face cognitive behavior therapy for psychological distress in parents of children after end of treatment for childhood cancer including a cognitive behavioral conceptualization
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Part of Acta Oncologica, p. 950-957, 2018
- DOI for Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child's death
- Download full text (pdf) of Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child's death
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Part of PLOS ONE, 2018
- DOI for Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support
- Download full text (pdf) of Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support
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Part of Journal of Medical Internet Research, 2017
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Part of Journal of Medical Internet Research, 2017
- DOI for Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
- Download full text (pdf) of Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
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Part of Journal of Pain Research, p. 2195-2203, 2017
- DOI for An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study
- Download full text (pdf) of An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study
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Part of BMJ Open, 2017
- DOI for Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan): study protocol for a feasibility trial
- Download full text (pdf) of Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan): study protocol for a feasibility trial
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Impact of a child’s cancer disease on parents’ everyday life: A longitudinal study from Sweden
Part of Acta Oncologica, p. 93-100, 2017
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Part of Acta Oncologica, p. 1698-1704, 2017
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Part of Acta Oncologica, p. 1705-1711, 2017
- DOI for Perceptions of support among Swedish parents of children after end of successful cancer treatment: A prospective, longitudinal study
- Download full text (pdf) of Perceptions of support among Swedish parents of children after end of successful cancer treatment: A prospective, longitudinal study
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Part of European Journal of Pain, p. 223-230, 2016
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Part of PLOS ONE, 2016
- DOI for Posttraumatic Stress in Parents of Children Diagnosed with Cancer: Hyperarousal and Avoidance as Mediators of the Relationship between Re-Experiencing and Dysphoria
- Download full text (pdf) of Posttraumatic Stress in Parents of Children Diagnosed with Cancer: Hyperarousal and Avoidance as Mediators of the Relationship between Re-Experiencing and Dysphoria
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Part of Journal of clinical psychology in medical settings, p. 67-76, 2016
- DOI for Experiential Avoidance and Rumination in Parents of Children on Cancer Treatment: Relationships with Posttraumatic Stress Symptoms and Symptoms of Depression
- Download full text (pdf) of Experiential Avoidance and Rumination in Parents of Children on Cancer Treatment: Relationships with Posttraumatic Stress Symptoms and Symptoms of Depression
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Part of Acta Oncologica, p. 1152-1157, 2016
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Part of PLOS ONE, 2016
- DOI for Posttraumatic stress and attentional bias towards cancer-related stimuli in parents of children recently diagnosed with cancer
- Download full text (pdf) of Posttraumatic stress and attentional bias towards cancer-related stimuli in parents of children recently diagnosed with cancer
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Part of PLOS ONE, 2016
- DOI for Impressions that last: Particularly negative and positive experiences reported by parents five years after the end of a child's successful cancer treatment or death
- Download full text (pdf) of Impressions that last: Particularly negative and positive experiences reported by parents five years after the end of a child's successful cancer treatment or death
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Part of International Journal of Behavioral Medicine, p. 21-29, 2016
- DOI for Acceptance as a Mediator for Change in Acceptance and Commitment Therapy for Persons with Chronic Pain?
- Download full text (pdf) of Acceptance as a Mediator for Change in Acceptance and Commitment Therapy for Persons with Chronic Pain?
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Part of Psycho-Oncology, p. 582-589, 2016
- DOI for Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study
- Download full text (pdf) of Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study
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Part of Psycho-Oncology, p. 76-76, 2016
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Part of Psycho-Oncology, p. 1152-1158, 2015
- DOI for Internet-based guided self-help for parents of children on cancer treatment: A randomized controlled trial
- Download full text (pdf) of Internet-based guided self-help for parents of children on cancer treatment: A randomized controlled trial
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Part of Psycho-Oncology, p. 1792-1798, 2015
- DOI for Does time heal all wounds? A longitudinal study of the development of posttraumatic stress symptoms in parents of survivors of childhood cancer and bereaved parents
- Download full text (pdf) of Does time heal all wounds? A longitudinal study of the development of posttraumatic stress symptoms in parents of survivors of childhood cancer and bereaved parents
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Part of PLOS ONE, 2014
- DOI for Long-term positive and negative psychological late effects for parents of childhood cancer survivors: A systematic review
- Download full text (pdf) of Long-term positive and negative psychological late effects for parents of childhood cancer survivors: A systematic review
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Part of JMIR Research Protocols, 2014
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Part of Acta Paediatrica, p. 630-636, 2014
- DOI for Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation
- Download full text (pdf) of Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation
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Part of Psycho-Oncology, p. 1229-1235, 2014
- DOI for Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden
- Download full text (pdf) of Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden
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Effect of high-dose paracetamol on needle procedures in children with cancer - a RCT
Part of Acta Paediatrica, p. 314-319, 2014
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Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment
Part of Journal of Pain and Symptom Management, p. 366-375, 2013
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Part of Acta Oncologica, p. 1076-1085, 2013
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Part of Journal of psychosocial oncology, p. 13-29, 2013
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Säker och god vård vid universitet
Part of Läkartidningen, 2013
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Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment
Part of Pediatric Blood & Cancer, p. 42-42, 2013
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Part of Health and Quality of Life Outcomes, p. 133, 2012
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Part of PLOS ONE, 2012
- DOI for Objective and subjective factors as predictors of post-traumatic stress symptoms in parents of children with cancer: a longitudinal study
- Download full text (pdf) of Objective and subjective factors as predictors of post-traumatic stress symptoms in parents of children with cancer: a longitudinal study
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The factor structure of traumatic stress in parents of children with cancer: A longitudinal analysis
Part of Journal of Pediatric Psychology, p. 448-457, 2012
- DOI for The factor structure of traumatic stress in parents of children with cancer: A longitudinal analysis
- Download full text (pdf) of The factor structure of traumatic stress in parents of children with cancer: A longitudinal analysis
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Part of Journal of psychosocial oncology, p. 51-66, 2011
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Part of European Journal of Oncology Nursing, p. 80-84, 2011
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Part of PLOS ONE, 2011
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Part of Supportive Care in Cancer, p. 605-611, 2011
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Findings on how adolescents cope with cancer: a matter of methodology?
Part of Psycho-Oncology, p. 1053-1060, 2011
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Part of Journal of Clinical Nursing, p. 1568-1577, 2011
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Effect of morphine in needle procedures in children with cancer
Part of European Journal of Pain, p. 1056-1060, 2011
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Part of Journal of Pain and Symptom Management, p. 661-670, 2010
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Part of European Journal of Cancer, p. 1062-1068, 2010
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Effect of morphine on fear, distress and pain in needle procedures in children with cancer
Part of Pediatric Blood & Cancer, p. 954-955, 2010
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Part of European Journal of Cancer Care, p. 350-357, 2009
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Randomized interventions for needle procedures in children with cancer
Part of European Journal of Cancer Care, p. 358-363, 2009
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Part of Annals of Oncology, p. 1722-1727, 2009
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Part of Scandinavian Journal of Caring Sciences, p. 107-116, 2009
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Low-dose oral midazolam reduces fear and distress during needle procedures in children with cancer
Part of Pediatric Blood & Cancer, p. 1200-1204, 2009
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Part of Public Service Review. European union, p. 129-129, 2009
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Physical problems and psychosocial function in children with cancer
Part of Paediatric nursing, p. 37-41, 2008
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Posttraumatic stress disorder among parents of children on cancer treatment: a longitudinal study
Part of Psycho-Oncology, p. 430-437, 2008
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Part of Health and Quality of Life Outcomes, p. 18, 2007
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Part of Scandinavian Journal of Caring Sciences, p. 523-529, 2007
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Part of European Journal of Cancer, p. 1952-1958, 2007
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Part of Quality of Life Research, p. 1635-1645, 2007
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Part of Psycho-Oncology, p. 1003-1009, 2007
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Part of European Journal of Oncology Nursing, p. 400-408, 2007
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Part of European Journal of Cancer Care, p. 493-499, 2007
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Part of Journal of Psychiatric and Mental Health Nursing, p. 49-54, 2007
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Part of Health and Quality of Life Outcomes, p. 91, 2006
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Part of European Journal of Cancer Care, p. 371-378, 2006
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Part of Journal of Clinical Nursing, p. 387-394, 2006
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Part of Pediatric Blood & Cancer, p. 773-9, 2006
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Part of Nordic Journal of Psychiatry, p. 511-515, 2005
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Part of Acta Obstetricia et Gynecologica Scandinavica, p. 980-986, 2005
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Perceptions of distress among adolescents recently diagnosed with cancer
Part of Journal of pediatric hematology/oncology (Print), p. 15-22, 2005
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Part of J Pain Symptom Manage, p. 572-83, 2005
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Swedish Mothers and Fathers of a Child Diagnosed with Cancer: A Look at Their Quality of Life
Part of Acta Oncologica, p. 474, 2004
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Part of European Journal of Oncology Nursing, p. 6-17, 2004
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Medication administration in inpatient psychiatric care: get control and leave control
Part of Journal of Psychiatric and Mental Health Nursing, p. 229-234, 2004
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Proxy Ratings of Patient Quality of Life: Factors Related to Patient - Proxy Agreement
Part of Acta Oncologica, p. 229, 2004
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Forced medication in psychiatric care: patient experiences and nurse perceptions
Part of Journal of Psychiatric and Mental Health Nursing, p. 65-72, 2003
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Part of European Journal of Cancer Care, p. 46-57, 2003
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Part of Cancer Nursing, p. 203-210, 2003
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The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff
Part of International Journal of Nursing Studies, p. 487-497, 2003
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Part of Psycho-Oncology, p. 68-77, 2003
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Distressing events for children and adolescents with cancer: Child, parent, and nurse perceptions
Part of Journal of Pediatric Oncology Nursing, p. 120-132, 2003
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Part of Supportive Care in Cancer, p. 601-612, 2002
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Women's voices about emergency contraceptive pills "over-the-counter": a Swedish perspective
Part of Contraception, p. 339-343, 2002
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Part of European Journal of Cancer Care, p. 91-99, 2002
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Part of Läkartidningen, p. 4730-4735, 2002
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Part of European Journal of Oncology Nursing, p. 254-264, 2001
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Part of Patient Education and Counseling, p. 243-252, 2001
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Health-Related Quality of Life, Anxiety and Depression in Patients with Midgut Carcinoid Tumours
Part of Acta Oncologica, p. 825-831, 2001
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Important aspects of care and assistance for children with cancer
Part of Journal of Pediatric Oncology Nursing, p. 239-249, 2000
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Perceptions of caring among patients with cancer and their staff: differences and disagreements
Part of Cancer Nursing, p. 32-39, 2000
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Cancer Patients' and their Physicians' Perceptions of the Formers' need for Occupational Therapy
Part of Scandinavian Journal of Occupational Therapy, p. 77-86, 2000
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Part of Acta Paediatrica, p. 229-236, 2000
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God kommunikation: en förutsättning för god livskvalitet?
Part of Omsorg, p. 41-44, 2000
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Health-related quality of life in patients with endocrine tumours of the gastrointestinal tract
Part of Acta Oncologica, p. 481-490, 1999
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Part of Annals of Oncology, p. 1321-1327, 1999
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Development of the Royal Marsden Hospital Paediatric Oncology Quality of Life Questionnaire
Part of International Journal of Cancer, p. 65-70, 1999
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Perceptions of caring: patients' and staff's associations to CARE-Q behaviors
Part of Journal of psychosocial oncology, p. 75-96, 1998
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Part of Scandinavian Journal of Caring Sciences, p. 238-245, 1998
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Part of Journal of Advanced Nursing, p. 855-864, 1998
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Part of Cancer Nursing, p. 411-420, 1998
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Psykosocial funktion bland barn och ungdomar med cancer
Part of Socialmedicinsk Tidskrift, p. 229-236, 1997
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Development of a tool to measure the life situation of parents of children with cancer
Part of Quality of Life Research, p. 248-256, 1997
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Part of Omsorg, p. 10-16, 1997
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Part of Acta Paediatrica, p. 404-406, 1996
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Part of Acta Paediatrica, p. 404-406, 1996
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Cancer patient and staff perceptions of caring vs clinical care
Part of Scandinavian Journal of Caring Sciences, p. 227-233, 1996
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Anxiety and depression in hospitalized patients with cancer: agreement in patient-staff dyads
Part of Cancer Nursing, p. 419-428, 1996
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Part of Journal of Advanced Nursing, p. 266-276, 1995
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Part of Journal of psychosocial oncology, p. 67-87, 1995
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Perceptions of caring behaviors and patient anxiety and depression in cancer patient-staff dyads
Part of Scandinavian Journal of Caring Sciences, p. 205-212, 1994
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Part of Research in Nursing & Health, p. 293-303, 1993
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Patient and staff perceptions of caring: review and replication
Part of Journal of Advanced Nursing, p. 1363-1374, 1991
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The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff
Part of International Journal of Nursing Studies, p. 267-281, 1991
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Patienter och personal inte ense om "god vård" (In Swedish)
Part of Social Forskning, p. 4-5, 1991
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Forskning bekräftar inte alltid beprövad erfarenhet (In Swedish)
Part of Landstingsvärlden, p. 34, 1990
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Locked entrance doors at psychiatric wards. Occurrence and reasons.
Articles, review/survey
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Part of Global Mental Health, 2025
- DOI for Prevalence and social determinants of anxiety and depressive disorders and symptoms among adults in Ghana: A systematic review and meta-analysis
- Download full text (pdf) of Prevalence and social determinants of anxiety and depressive disorders and symptoms among adults in Ghana: A systematic review and meta-analysis
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Part of JMIR Mental Health, 2022
- DOI for Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases: Mixed Methods Systematic Review With a Qualitative Comparative Analysis and Thematic Synthesis
- Download full text (pdf) of Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases: Mixed Methods Systematic Review With a Qualitative Comparative Analysis and Thematic Synthesis
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Part of BMJ Open, 2020
- DOI for Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis
- Download full text (pdf) of Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis
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Part of BMJ Open, 2020
- DOI for Psychological interventions for depression among informal caregivers of older adult populations: protocol of a systematic review and meta-analysis of randomised controlled trials.
- Download full text (pdf) of Psychological interventions for depression among informal caregivers of older adult populations: protocol of a systematic review and meta-analysis of randomised controlled trials.
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Are there any positive consequences of childhood cancer?: A review of the literature
Part of Acta Oecologica, p. 199-206, 2008
Chapters in book
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Non-standard and preference designs
Part of Complex Interventions in Health, p. 207-212, Routledge, 2015
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Part of Palliativ medicin, p. 404-410, Liber, 2005
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Disease and treatment-related distress among children aged 4-7 years: parent and nurse perceptions
Part of Perspectives in Paediatric Oncology Nursing, p. 311-326, Whurr Publishers, London, 2004
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Barns reaktioner vid sjukhusvistelse
Part of Barnet och sjukvården, Studentlitteratur, Lund, 2000
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Part of Komplekst og varieret, p. 161-182, Studentlitteratur, 1997
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Part of Palliativ Medicin, p. 253, Liber Utbildning AB, 1995
Comprehensive doctoral thesis
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1994
Conference papers
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Bridging lived experience and research: involving dementia caregivers in developing interventions
2025
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2024
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2024
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2023
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2023
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Sources of support and views of e-mental health among caregivers of adults with kidney conditions
2023
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2023
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2023
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2023
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2023
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2022
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2022
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Part of BABCP 50th Annual Conference, 2022
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Part of EHPS 2022 36th Annual Conference of the European Health Psychology Society, 23-27 August, 2022, Bratislava, Slovakia, 2022
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2021
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Implementation of e-mental health interventions for informal caregivers: a systematic review
2021
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2021
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Part of 6th International Congress of Clinical Psychology and Health with Children and Adolescents, p. 84-84, 2020
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2020
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2020
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Losing your context - Exploration of emotional suffering after cancer during adolescence
p. 81-81, 2016
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Non-standard experimental designs and preference designs
2016
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2015
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p. 257-257, 2015
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p. 89-89, 2015
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p. 114-115, 2015
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p. 125-125, 2015
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p. 125-126, 2015
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p. 65-65, 2014
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p. 323-323, 2014
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p. 102-102, 2014
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p. 55-56, 2014
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U-CARE: Economic late effects for mothers and fathers of children diagnosed with cancer
p. 7, 2013
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p. 143-144, 2013
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p. 244-244, 2013
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2013
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Researching internet-based self-help: ideals and challenges
2013
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2013
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2013
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Part of 12th international Congress of Behavioral Medicine, 29 August - 1 September 2012, Budapest Hilton Hungary, p. 138-138, 2012
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p. 1124-1124, 2012
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U-CARE: a research program on psychosocial care via the internet
2012
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Part of 12th International Congress of Behavioral Medicine, 2012
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2012
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Psychosocial care via internet, a mode to achieve improved patient care at a lower cost?
2011
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2011
Manuscripts (preprints)
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2011
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