Louise von Essen
Professor at Department of Women's and Children's Health; CIRCLE - Complex Intervention Research in Health and Care
- Mobile phone:
- +46 70 425 07 14
- E-mail:
- louise-von.essen@uu.se
- Visiting address:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postal address:
- Akademiska sjukhuset
751 85 UPPSALA
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Short presentation
I am a licensed psychologist, PhD in Psychology, professor in Caring Sciences. I started and am Program director for U-CARE, see http://www.u-care.uu.se/ and research group leader for the group Healthcare Sciences and e-Health at the Department of Women's and Children's Health. My research mainly concerns mental health among parents and guardians of children treated for cancer in Sweden and Tanzania respectively. See my Google Scholar profile http://scholar.google.se/citations?user=5JX8LpMAAAAJ
Keywords
- childhood cancer
- clinical psychology
- clinical trials
- ehealth
- family
- feasibility trials
- informal care
- mental health
- parents
- public involvement
- recruitment
Research
This text is not available in English, therefore the Swedish version is shown.
The goal of my research is to improve mental health in those struck by a somatic disease in oneself or a close one. My present research mainly concerns developing, testing, evaluating, and implementing e-Mental health interventions for parents of children treated for cancer in Sweden and guardians of children treated for cancer in Tanzania. In my research I collaborate with parents and guardians, and national and international experts e.g. in e-Health, health economy, nursing, and psychology.
Publications
Recent publications
- Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden (2024)
- Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings (2024)
- Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project (2024)
- "Systems seem to get in the way" (2024)
- The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual (2024)
All publications
Articles
- Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden (2024)
- Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings (2024)
- Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project (2024)
- "Systems seem to get in the way" (2024)
- The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual (2024)
- E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer (2024)
- Designing Software for Web-based Psychosocial Care (2024)
- Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer (2024)
- Barriers to and Facilitators of the Implementation of Digital Mental Health Interventions as Perceived by Primary Care Decision Makers (2023)
- An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project) (2023)
- Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease (2023)
- Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease (2023)
- Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety (2023)
- Pain in pediatric oncology (2023)
- Concerns experienced by parents of children treated for cancer (2023)
- Psychological interventions for symptoms of depression among informal caregivers of older adult populations (2023)
- Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression (2023)
- Effectiveness, acceptability, and completeness and quality of intervention reporting of psychological interventions for people with dementia or mild cognitive impairment (2023)
- Internet‐administered, low‐intensity cognitive behavioral therapy for parents of children treated for cancer (2023)
- Generalizing approaches to surveillance for complex social outcomes in broad‐range patient populations— (2022)
- Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases (2022)
- Experiences of nurses and coordinators in a childhood obesity prevention trial based on motivational interviewing within Swedish child health services (2022)
- Opt-out rates and reasons for non-participation in a single-arm feasibility trial (ENGAGE) of a guided internet-administered CBT-based intervention for parents of children treated for cancer (2022)
- Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport) (2022)
- The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial (2022)
- Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders (2021)
- Internet-Based Cognitive Behavioral Therapy for Patients Reporting Symptoms of Anxiety and Depression After Myocardial Infarction (2021)
- Ibuprofen in needle procedures in children with cancer (2021)
- Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer (2021)
- Conducting Digital Health Care Research (2021)
- Help-seeking behaviour and attitudes towards internet-administered psychological support among adolescent and young adults previously treated for cancer during childhood (2021)
- Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden (2021)
- Views of Implementers and Nonimplementers of Internet-Administered Cognitive Behavioral Therapy for Depression and Anxiety (2020)
- Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases (2020)
- Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases (2020)
- Heeding the psychological concerns of young cancer survivors (2020)
- Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression (2020)
- Children's self-reports of fear and pain levels during needle procedures (2020)
- Prevention of oral mucositis with cryotherapy in children undergoing hematopoietic stem cell transplantations (2020)
- Concerns and Needs of Support Among Guardians of Children on Cancer Treatment in Dar es Salaam (2020)
- Psychological interventions for depression among informal caregivers of older adult populations (2020)
- Study within a trial (SWAT) protocol. Investigating the effect of personalised versus non-personalised study invitations on recruitment (2020)
- Psychological distress in parents of children treated for cancer (2019)
- Parents' needs of support following the loss of a child to cancer (2019)
- Cancer-related concerns and needs among young adults and children on cancer treatment in Tanzania (2019)
- Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression (2019)
- Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support (2018)
- An open trial of individualized face-to-face cognitive behavior therapy for psychological distress in parents of children after end of treatment for childhood cancer including a cognitive behavioral conceptualization (2018)
- Internet-based Cognitive Behavior Therapy for Symptoms of Depression and Anxiety among Patients with a Recent Myocardial Infarction (2018)
- Predicting Adherence to Internet-Delivered Psychotherapy for Symptoms of Depression and Anxiety After Myocardial Infarction (2018)
- Development of an Internet-Administered Cognitive Behavior Therapy Program (ENGAGE) for Parents of Children Previously Treated for Cancer (2018)
- Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child's death (2018)
- Study protocol for a feasibility study of an internet-administered, guided, CBT-based, self-help intervention (ENGAGE) for parents of children previously treated for cancer (2018)
- Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer (2018)
- Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan) (2017)
- Twelve-Month Follow-Up of a Randomized Controlled Trial of Internet-Based Guided Self-Help for Parents of Children on Cancer Treatment (2017)
- Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting (2017)
- Impact of a child’s cancer disease on parents’ everyday life (2017)
- Perceptions of support among Swedish parents of children after end of successful cancer treatment (2017)
- An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study (2017)
- The interdependence of posttraumatic stress symptoms in parental dyads during and after their child’s treatment for cancer (2017)
- Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence (2016)
- Posttraumatic stress and attentional bias towards cancer-related stimuli in parents of children recently diagnosed with cancer (2016)
- Dimensions of Posttraumatic Stress Symptoms and their Relationships with Depression, Anxiety, and Quality of Life in Parents of Children Recently Diagnosed with Cancer (2016)
- Experiential Avoidance and Rumination in Parents of Children on Cancer Treatment (2016)
- The relationship between fear and pain levels during needle procedures in children from the parents’ perspective (2016)
- Posttraumatic Stress in Parents of Children Diagnosed with Cancer (2016)
- Impressions that last (2016)
- Acceptance as a Mediator for Change in Acceptance and Commitment Therapy for Persons with Chronic Pain? (2016)
- Parents of children diagnosed with cancer (2016)
- Internet-based guided self-help for parents of children on cancer treatment (2015)
- Does time heal all wounds? A longitudinal study of the development of posttraumatic stress symptoms in parents of survivors of childhood cancer and bereaved parents (2015)
- Effect of high-dose paracetamol on needle procedures in children with cancer - a RCT (2014)
- Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation (2014)
- Negative and positive consequences of adolescent cancer 10 years after diagnosis (2014)
- Long-term positive and negative psychological late effects for parents of childhood cancer survivors: A systematic review (2014)
- The Origin and Impact of Ideals in eHealth Research (2014)
- Guided self-help as intervention for traumatic stress in parents of children with cancer: Conceptualization, intervention strategies, and a case study (2013)
- Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment (2013)
- Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment (2013)
- A longitudinal assessment of work situation, sick leave, and household income of mothers and fathers of children with cancer in Sweden (2013)
- Säker och god vård vid universitet (2013)
- The factor structure of traumatic stress in parents of children with cancer (2012)
- Objective and subjective factors as predictors of post-traumatic stress symptoms in parents of children with cancer (2012)
- Health-related quality of life and needs of care and support of adult Tanzanians with cancer (2012)
- Cancer during adolescence (2011)
- Findings on how adolescents cope with cancer (2011)
- Are nurses and physicians able to assess which strategies adolescents recently diagnosed with cancer use to cope with disease- and treatment-related distress? (2011)
- Longitudinally derived psychosocial states among individuals diagnosed with cancer during adolescence up to four years after diagnosis (2011)
- Swedish mothers and fathers of children with cancer (2011)
- Effect of morphine in needle procedures in children with cancer (2011)
- Early avoidance of disease- and treatment-related distress predicts post-traumatic stress in parents of children with cancer (2011)
- Mode of administration only has a small effect on data quality and self-reported health status and emotional distress among Swedish adolescents and young adults (2011)
- Aspects of quality of life, anxiety, and depression among persons diagnosed with cancer during adolescence (2010)
- Effect of morphine on fear, distress and pain in needle procedures in children with cancer (2010)
- Parents' Perceptions of Their Children's Cancer-Related Symptoms During Treatment (2010)
- Is satisfaction with doctors' care related to health related quality of life, anxiety, and depression among patients with carcinoid tumours? (2009)
- Low-dose oral midazolam reduces fear and distress during needle procedures in children with cancer (2009)
- Randomized interventions for needle procedures in children with cancer (2009)
- Empirically derived psychosocial states among adolescents diagnosed with cancer during the acute and extended phase of survival (2009)
- Perceptions of support among Swedish parents of children on cancer treatment (2009)
- Better Care at a Lower Cost (2009)
- Physical problems and psychosocial function in children with cancer (2008)
- Are there any positive consequences of childhood cancer? (2008)
- Posttraumatic stress disorder among parents of children on cancer treatment (2008)
- Spontaneous reports of most distressing concerns in patients with inoperable lung cancer (2007)
- Prevalence of aspects of distress, coping, support and care among adolescents and young adolescents undergoing and being off cancer treatment (2007)
- Patient attitudes, behaviours, and other factors considered by doctors when estimating cancer patients' anxiety and desire for information (2007)
- Health related quality of life and psychosocial function among patients with carcinoid tumours. A longitudinal, prospective, and comparative study (2007)
- Psychiatric care behind locked doors. A study regarding the frequency of and the reasons for locked psychiatric wards in Sweden (2007)
- Health-related quality of life, anxiety and depression among adolescents and young adults with cancer (2007)
- Are importance-satisfaction discrepancies with regard to ratings of specific health-related quality-of-life aspects valid indicators of disease- and treatment-related distress among patients with endocrine gastrointestinal tumours? (2007)
- Positive and negative consequences with regard to cancer during adolescence (2007)
- Is doctors' ability to identify cancer patients' worry and wish for information related to doctors' self-efficacy with regard to communicating about difficult matters? (2006)
- Psychiatric wards with locked doors (2006)
- Accuracy of assessment of distress, anxiety, and depression by physicians and nurses in adolescents recently diagnosed with cancer (2006)
- Measuring health-related quality of life in adolescents and young adults (2006)
- Discrepancies and similarities in how patients with lung cancer and their professional and family caregivers assess symptom occurrence and symptom distress. (2005)
- Swedish teenager perceptions of teenage pregnancy, abortion, sexual behavior, and contraceptive habits (2005)
- Locked entrance doors at psychiatric wards (2005)
- Perceptions of distress among adolescents recently diagnosed with cancer (2005)
- Medication administration in inpatient psychiatric care (2004)
- Distressing and positive experiences and important aspects of care for adolescents treated for cancer (2004)
- Proxy Ratings of Patient Quality of Life (2004)
- Swedish Mothers and Fathers of a Child Diagnosed with Cancer (2004)
- Patients' satisfaction ratings and their desire for care improvement across oncology settings from France, Italy, Poland and Sweden (2003)
- Forced medication in psychiatric care (2003)
- Distressing events for children and adolescents with cancer (2003)
- Distress, quality of life and strategies to 'keep a good mood' in patients with carcinoid tumours (2003)
- Important aspects of care and assistance for siblings of children treated for cancer (2003)
- The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff (2003)
- Women's voices about emergency contraceptive pills "over-the-counter" (2002)
- Trots lättillgängliga akut-p-piller sjunker inte antalet aborter (2002)
- Important aspects of care and assistance for children 0-7 years of age being treated for cancer (2002)
- 'Satisfaction with care' (2002)
- A comprehensive assessment of satisfaction with care (2001)
- Health-Related Quality of Life, Anxiety and Depression in Patients with Midgut Carcinoid Tumours (2001)
- Important aspects of care and assistance for parents of children, 0-18 years of age, on or off treatment for cancer. Parent and nurse perceptions. (2001)
- Important aspects of care and assistance for children with cancer (2000)
- Cancer Patients' and their Physicians' Perceptions of the Formers' need for Occupational Therapy (2000)
- God kommunikation (2000)
- Self-esteem, depression and anxiety among Swedish children and adolescents on and off cancer treatment (2000)
- Perceptions of caring among patients with cancer and their staff (2000)
- Importance-satisfaction discrepancies are associated with health-related quality of life in five-year survivors of endocrine gastrointestinal tumours (1999)
- Health-related quality of life in patients with endocrine tumours of the gastrointestinal tract (1999)
- Development of the Royal Marsden Hospital Paediatric Oncology Quality of Life Questionnaire (1999)
- Quality of life in patients with endocrine tumors of the gastrointestinal tract (1998)
- Cancer patient and staff ratings of the importance of caring behaviours and their relations to patient anxiety and depression (1998)
- Cancer Patient and Staff Perceptions of Caring and Clinical Care in Free versus Forced Choice Response Formats (1998)
- Perceptions of caring (1998)
- Development of a tool to measure the life situation of parents of children with cancer (1997)
- Vad är god omvårdnad? (1997)
- Psykosocial funktion bland barn och ungdomar med cancer (1997)
- Anxiety and depression in hospitalized patients with cancer (1996)
- Psychological long-term coping with experience of disease and treatment in childhood cancer survivors. (1996)
- Invited commentary: Psychological long-term coping with experience of disease and treatment in childhood cancer survivors (1996)
- Cancer patient and staff perceptions of caring vs clinical care (1996)
- Nursing behaviors that make patients feel cared for (1995)
- Perceived occurrence and importance of caring behaviours among patients and staff in psychiatric, medical and surgical care (1995)
- Perceptions of caring behaviors and patient anxiety and depression in cancer patient-staff dyads (1994)
- Perceived importance of caring behaviors to Swedish psychiatric inpatients and staff, with comparisons to somatically-ill samples (1993)
- The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff (1991)
- Patient and staff perceptions of caring (1991)
- Patienter och personal inte ense om "god vård" (In Swedish) (1991)
- Forskning bekräftar inte alltid beprövad erfarenhet (In Swedish) (1990)
- Locked entrance doors at psychiatric wards. Occurrence and reasons.
- A cognitive behavioral conceptualization of cancer-related psychological distress in parents of childhood cancer survivors
- Development and preliminary evaluation of individualized face-to-face cognitive behavior therapy for psychological distress in parents of childhood cancer survivors
Books
- Addressing the health challenges in immigration detention, and alternatives to detention (2022)
- What is good caring? (1994)
Chapters
- Non-standard and preference designs (2015)
- Vad är god omvårdnad? (2005)
- Disease and treatment-related distress among children aged 4-7 years: parent and nurse perceptions (2004)
- Barns reaktioner vid sjukhusvistelse (2000)
- Uppfattningar om god omvårdnad och patienters oro och nedstämdhet bland patienter och personal inom onkologisk vård (1997)
- Vad är god omvårdnad? Uppfattningar hos patienter och personal i onkologisk, kirurgisk och medicinsk sjukhusvård (1995)
Conferences
- Experiences and impact of involving family caregivers of people with dementia as public contributors to inform complex intervention development: a mixed-methods study (2024)
- Development of a self-help behavioural activation intervention INVOLVERA for people with dementia (2023)
- Stakeholder perspectives on implementation of e-mental health interventions for caregivers of adults with kidney conditions (2023)
- Sources of support and views of e-mental health among caregivers of adults with kidney conditions (2023)
- Implementation of e-mental health interventions for informal caregivers – a systematic review of what we know and where to go next (2023)
- Development and co-design of a behavioral activation intervention targeting depression among people with dementia for the Swedish context (2023)
- Self-help intervention preferences among informal caregivers of adults with kidney conditions: an online cross-sectional survey (2022)
- The role of perceived responsiveness in a multinational group of caregivers: a moderated mediation model (2022)
- Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression (2022)
- Developing and adapting a guided low-intensity behavioral activation intervention targeting depression in people with dementia for the Swedish context (The INVOLVERA Study) (2022)
- Barriers and facilitators to implementing e-mental health interventions – a systematic review focusing in on interventions for informal cancer and dementia caregivers (2021)
- Implementation of e-mental health interventions for informal caregivers: a systematic review (2021)
- Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA) (2021)
- Baby&Me (2020)
- Development of an integrated behavioural activation and parenting internet-administered intervention for postpartum depression parenting sensitivity (2020)
- Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression (2020)
- Losing your context - Exploration of emotional suffering after cancer during adolescence (2016)
- Non-standard experimental designs and preference designs (2016)
- Identification of Cancer-related Psychological Suffering Experienced by Young People Diagnosed with Cancer During Adolescence and Development of a Psychological Treatment to Reduce This Suffering (2015)
- Health Economic Outcomes One Year after Internet-based Guided Self-help Targeting Posttraumatic Stress Symptoms in Parents of Children Recently Diagnosed with Cancer (2015)
- Internet-based Guided Self-help for Parents of Children Diagnosed with Cancer (2015)
- Attentional bias towards cancer-related stimuli is related to symptoms of posttraumatic stress in parents of children recently diagnosed with cancer (2015)
- Development, Testing, and Evaluation of an Online, Guided, Psychological Intervention for Parents of Children Previously Treated for Cancer (2015)
- Swedish parents’ need and opportunity to talk to a psychologist after end of their child’s cancer treatment: a longitudinal study (2015)
- Guided Self-help via the Internet for Parents of Children Recently Diagnosed with Cancer (2014)
- Cancer During Adolescence (2014)
- Development of a Psychological Treatment for Psychological Distress in Parents of Children Previously treated for with Cancer (2014)
- Does Time Heal all Wounds? (2014)
- U-CARE (2013)
- U-CARE: Adolescent involvement in psychosocial research including the design of an internet based psychological intervention (2013)
- U-CARE Heart: A Randomized Controlled Study of the Effects of Internet-based Cognitive Behavior Therapy on Depression and Anxiety in Patients with a Previous Myocardial Infarction (2013)
- U-CARE: Economic late effects for mothers and fathers of children diagnosed with cancer (2013)
- U-CARE – internet-based psychosocial care and psychological treatment in connection to somatic disease (2013)
- Post-Traumatic Stress Symptoms in Parental Dyads of Children Diagnosed With Cancer (2013)
- Researching internet-based self-help: ideals and challenges (2013)
- Guided self-help as intervention for traumatic stress in parents of children with cancer (2012)
- Avoidance and hyperarousal mediates the relationship between reexperiencing and dysphoria in parents of children with cancer (2012)
- Avoidance and hyperarousal mediate the relationship between reexperiencing and dysphoria in parents of children with cancer (2012)
- The relationship between traumatic stress, experiential avoidance, and depression in parents of children recently diagnosed with cancer (2012)
- U-CARE (2012)
- Psychosocial care via internet, a mode to achieve improved patient care at a lower cost? (2011)
- Cancer during adolescence: negative and positive consequences reported during the acute and extended phase of survival. (2011)
Reports
Other
