Collaboration
We aim for our research to be closely linked to the needs of both individuals and society. By collaborating with various organisations, healthcare representatives, and people with experience of the issues our research addresses, we ensure that our work is relevant, innovative, and has a real impact.
Collaboration with the wider community
Within U-CARE, we collaborate with various organisations and healthcare representatives. These collaborations ensure that our research is closely linked to the needs of individuals and society and provides new perspectives and experiences, leading to innovative and relevant research. In addition, these collaborations increase the scope and impact of our research and the possibility that the results of our research can be implemented.
Examples of collaborations
U-CARE has for many years been collaborating with the Alzheimer's Foundation, the Dementia Association, the Swedish Heartchild Foundation, and the Swedish Heart and Lung Association. These collaborations ensure that our research meets the real needs of those affected by physical illness and their loved ones.
U-CARE has a long-standing partnership with the Swedish university hospitals that provide care for young people with long-term illnesses, with a focus on integrating person-centered transition programmes into routine care. Through this collaboration, we have developed, tested, and implemented programmes designed to support young people with long-term medical conditions. These programmes are currently implemented across Sweden, significantly improving access to transitional care.
Contact
If you want to know more, please contact Research Coordinator Clara Dahlgren or Project Coordinator Miro Anter.
Collaboration with those affected by the research, 'public contribution'
Within U-CARE, we conduct our research together with those the research concerns for example, parents of children treated for cancer, informal caregivers of individuals with dementia, and people with heart diseases. Their participation can vary from formulating research questions, designing information materials, recruiting study participants, analysing, and disseminating results. These collaborations ensure that our research is closely linked to the needs of individuals and provides new perspectives and experiences, leading to innovative and relevant research. In addition, these collaborations increase the possibility that the results of our research can be implemented.
Examples of research projects in which those affected by the research participate
GuardiansCan – Principal Investigator: Professor Louise von Essen.
INVOLVERA – Principal Investigator: Assistant Senior Lecturer Joanne Woodford.
ParentsCan – Principal Investigator: Professor Louise von Essen.
Do you want to participate in a research project?
If you are interested in participating in one of our research projects, please contact Research Coordinator Clara Dahlgren or Project Coordinator Miro Anter.
Do you want to know more about public contribution?
If you want to know more, please contact Professor Louise von Essen or Assistant Senior Lecturer Joanne Woodford.
More information:
Arumugam A, Phillips LR, Moore A, et al. Patient and public involvement in research: a review of practical resources for young investigators. BMC Rheumatol. 2023;7(1):2.
Carlsson T, Marttala UM, Mattsson E. Being involved in research as a collaborator with experience of a prenatal diagnosis of congenital heart defect in the fetus: a qualitative study. Res Involv Engagem. 2020;6:10.
Chiwanga FS, Woodford J, Masika GM, et al. An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): protocol for a Development and Feasibility Study. JMIR Res Protoc. 2023;12:e48799.
Dengsø KE, Lindholm ST, Herling SF, et al. Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice. Travel Involve Engagement. 2023;9(1):72.
Greenhalgh T, Hinton L, Finlay T, et al. Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot. Health Expect. 2019;22(4):785-801.
Skovlund PC, Finderup J, Aabo S, et al. Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process. Travel Involve Engagement. 2024;10(1):3.
Woodford J, Reuther C, Ljungberg JL, et al. Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol. Travel Involve Engagement. 2024;10(1):2.