INVOLVERA

Involvera logga

  • Funder: This work is supported by the Swedish Research Council (grant number 2018-02691) and funding via the Swedish Research Council to U- CARE, a Strategic Research environment (Dnr 2009- 1093).

About INVOLVERA

INVOLVERA is a study within the research programme U-CARE. INVOLVERA aims to improve access to psychological support for people with dementia and depression and their informal caregivers.

Psychological support is provided through a novel behavioural activation self-help intervention. The support has been co-designed with people with dementia, their informal caregivers, health and social care professionals, and non-profit organizations.

The INVOLVERA intervention

INVOLVERA is a novel behavioral activation-based intervention, designed to help people with dementia engage in activities of meaning and value to them, including pleasurable, routine, and self-care activities.

INVOLVERA is delivered via written workbooks. A novel aspect of the intervention is that the person with dementia is supported to use INVOLVERA at home by an informal caregiver who receives guidance via telephone and/or through video-conferencing from a trained healthcare professional.

Development and future steps

The development of the INVOLVERA intervention was informed by a series of iterative studies situated in Phase I of the MRC Complex Interventions Framework. Public contribution in research, with a Public Advisory Group, was embedded throughout.

Next, we will examine the feasibility and acceptability of INVOLVERA in a single-arm feasibility study.

Principal Investigator: Assistant Senior Lecturer Joanne Woodford

Project Members: Professor Paul Farrand, Professor Anna Cristina Åberg, Assistant Senior Lecturer Therése Bielsten, Assistant Senior Lecturer Anders Brantnell, PhD Student Frida Svedin, PhD Student Oscar Blomberg, Research Assistant Ida Österman Menander

Below, interventions that have resulted from the INVOLVERA project are listed.

Leva bra med minnesnedsättning: Arbetsbok för personer som lever med minnesnedsättning.
Woodford, Joanne; Farrand, Paul, Åberg, Anna Cristina; Svedin, Frida; Blomberg, Oscar; Patriksson Karlsson, Johanna. Uppsala: Uppsala University, 2022.

Leva bra med minnesnedsättning: Guidebok för anhöriga
Woodford, Joanne; Farrand, Paul, Åberg, Anna Cristina; Svedin, Frida; Blomberg, Oscar; Patriksson Karlsson, Johanna. Uppsala: Uppsala University, 2022.

Getting more out of every day with memory difficulties: a guide for people living with memory difficulties.
Farrand, Paul; Woodford, Joanne; Anderson, Martin; Lovis, Laura. Exeter: University of Exeter, 2015.

Getting more out of every day with memory difficulties: a guide for family and friends.
Farrand, Paul; Woodford, Joanne; Anderson, Martin. Exeter: University of Exeter, 2015.

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