Maria Hägglund
Professor at Department of Women's and Children's Health; Participatory eHealth and Health Data Research Group
- Mobile phone:
- +46 72 999 93 81
- E-mail:
- maria.hagglund@uu.se
- Visiting address:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postal address:
- Akademiska sjukhuset
751 85 UPPSALA
- CV:
- Download CV
- ORCID:
- 0000-0002-6839-3651
Short presentation
Maria Hägglund is a professor in implementation science with a focus on digital health. 2019/2020 she was a Keane OpenNotes Scholar and a visiting Lecturer on Medicine at Harvard Medical School. As a member of the DOME research consortium she has explored the impact of patients’ access to their electronic health records (including notes) through the national Swedish patient portal. She leads the PATH - Participatory eHealth and health data research group, and several major research projects.
Keywords
- implementeringsvetenskap
- digitalisering
- e-hälsa
Biography
Maria Hägglund is a professor in implementation science with a focus on digital health at the Uppsala MedTech Science & Innovation Centre. During 2019/2020 she was a Keane OpenNotes Scholar and a visiting Lecturer on Medicine at Harvard Medical School. Her research has focused on user-centered systems that support collaboration and patient empowerment. As a member of the DOME research consortium she has explored the impact of patients’ access to their electronic health records (including notes) through the national Swedish patient portal. As the Chair of the Swedish Medical Informatics Association (SFMI), she represented Sweden in the International Medical Informatics Association (IMIA) general assembly 2020-2022. Maria chairs the EFMI Working Group “Citizen Health Data”.
Maria has also served as program director for the Global Master’s Program in Health Informatics at the Karolinska Institutet in Stockholm. At Uppsala University, she is teaching at the Bachelor’s Programme in Biomedical Engineering, and through free-standing courses. 2020 she was awarded the title “Excellent Teacher” at Uppsala University.
At MedTech Science & Innovation, Maria leads the research focusing on eHealth and digitalisation.

Publications
Selection of publications
A Nordic Perspective on Patient Online Record Access and the European Health Data Space
Part of Journal of Medical Internet Research, 2024
- DOI for A Nordic Perspective on Patient Online Record Access and the European Health Data Space
- Download full text (pdf) of A Nordic Perspective on Patient Online Record Access and the European Health Data Space
Part of Journal of Medical Internet Research, 2023
- DOI for The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
- Download full text (pdf) of The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
Patient empowerment through online access to health records
Part of The BMJ, 2022
- DOI for Patient empowerment through online access to health records
- Download full text (pdf) of Patient empowerment through online access to health records
Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study.
Part of JMIR Human Factors, 2022
- DOI for Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study.
- Download full text (pdf) of Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study.
User Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale
Part of JMIR Human Factors, 2021
- DOI for User Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale
- Download full text (pdf) of User Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale
Recent publications
Part of JMIR Human Factors, 2025
- DOI for Patient's Perceptions of a Centralized Virtual Ward for Remote Patient Monitoring in Primary Care: Qualitative Study
- Download full text (pdf) of Patient's Perceptions of a Centralized Virtual Ward for Remote Patient Monitoring in Primary Care: Qualitative Study
Part of JMIR Pediatrics and Parenting, 2025
- DOI for Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study
- Download full text (pdf) of Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study
Part of Digital Health, 2025
- DOI for General practitioners’ adoption of generative artificial intelligence in clinical practice in the UK: An updated online survey
- Download full text (pdf) of General practitioners’ adoption of generative artificial intelligence in clinical practice in the UK: An updated online survey
Part of BMC Health Services Research, 2025
- DOI for Pediatric oncology healthcare professionals’ attitudes to and awareness of regulations for minors’ and guardians’ online record access: A mixed-methods study in Sweden
- Download full text (pdf) of Pediatric oncology healthcare professionals’ attitudes to and awareness of regulations for minors’ and guardians’ online record access: A mixed-methods study in Sweden
Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners
Part of BMJ Digital Health & AI, 2025
- DOI for Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners
- Download full text (pdf) of Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners
All publications
Articles in journal
Part of JMIR Human Factors, 2025
- DOI for Patient's Perceptions of a Centralized Virtual Ward for Remote Patient Monitoring in Primary Care: Qualitative Study
- Download full text (pdf) of Patient's Perceptions of a Centralized Virtual Ward for Remote Patient Monitoring in Primary Care: Qualitative Study
Part of JMIR Pediatrics and Parenting, 2025
- DOI for Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study
- Download full text (pdf) of Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study
Part of Digital Health, 2025
- DOI for General practitioners’ adoption of generative artificial intelligence in clinical practice in the UK: An updated online survey
- Download full text (pdf) of General practitioners’ adoption of generative artificial intelligence in clinical practice in the UK: An updated online survey
Part of BMC Health Services Research, 2025
- DOI for Pediatric oncology healthcare professionals’ attitudes to and awareness of regulations for minors’ and guardians’ online record access: A mixed-methods study in Sweden
- Download full text (pdf) of Pediatric oncology healthcare professionals’ attitudes to and awareness of regulations for minors’ and guardians’ online record access: A mixed-methods study in Sweden
Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners
Part of BMJ Digital Health & AI, 2025
- DOI for Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners
- Download full text (pdf) of Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners
Part of JMIR Research Protocols, 2025
- DOI for Impact of Connected Mental Health on the Work Environment of Mental Health Clinicians: Protocol for a Systematic Literature Review
- Download full text (pdf) of Impact of Connected Mental Health on the Work Environment of Mental Health Clinicians: Protocol for a Systematic Literature Review
Part of Annals of the Rheumatic Diseases, p. 1620-1621, 2025
Cancer Patients' Sharing of Electronic Health Records with Informal Caregivers
Part of Studies in Health Technology and Informatics, p. 1291-1295, 2025
- DOI for Cancer Patients' Sharing of Electronic Health Records with Informal Caregivers
- Download full text (pdf) of Cancer Patients' Sharing of Electronic Health Records with Informal Caregivers
Part of Studies in Health Technology and Informatics, p. 939-943, 2025
- DOI for The Gender Gap in EHR Experiences and Preferences: Results from an International Cross-Sectional Survey of Patients.
- Download full text (pdf) of The Gender Gap in EHR Experiences and Preferences: Results from an International Cross-Sectional Survey of Patients.
Part of Studies in Health Technology and Informatics, p. 929-933, 2025
Adult Proxy Online Record Access - Differences Across Four Countries.
Part of Studies in Health Technology and Informatics, p. 216-220, 2025
Part of JMIR Medical Informatics, 2025
Part of BMJ Open, 2025
- DOI for Prevalence and types of errors in the electronic health record: protocol for a mixed systematic review
- Download full text (pdf) of Prevalence and types of errors in the electronic health record: protocol for a mixed systematic review
Part of BMC Medical Ethics, 2025
- DOI for Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles
- Download full text (pdf) of Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles
Part of Journal of Telemedicine and Telecare, p. 572-584, 2025
- DOI for To connect or not connect: long-term adoption of video consultations, and reasons for discontinuing use
- Download full text (pdf) of To connect or not connect: long-term adoption of video consultations, and reasons for discontinuing use
Part of JMIR Aging, 2025
- DOI for Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study
- Download full text (pdf) of Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study
Part of Studies in Health Technology and Informatics, p. 1477-1481, 2024
- DOI for Patient Input into the Electronic Health Record: Co-Designing Solutions with Patients and Healthcare Professionals
- Download full text (pdf) of Patient Input into the Electronic Health Record: Co-Designing Solutions with Patients and Healthcare Professionals
Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden
Part of Telemedicine and e-Health, p. 1289-1296, 2024
- DOI for Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden
- Download full text (pdf) of Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden
A perspective-taking university course for cancer survivors, loved ones and healthcare professionals
Part of Social Sciences & Humanities Open, 2024
Part of BMC Psychiatry, 2024
- DOI for Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
- Download full text (pdf) of Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
Part of Nervenheilkunde, p. 714-719, 2024
- DOI for Online-Zugang zu klinischen Behandlungsnotizen für ambulant versorgte Patienten (Studienprotokoll zur OpenNOTES-Studie)
- Download full text (pdf) of Online-Zugang zu klinischen Behandlungsnotizen für ambulant versorgte Patienten (Studienprotokoll zur OpenNOTES-Studie)
Part of Digital Health, 2024
- DOI for To read or not to read - A cross-sectional study of Swedish primary care patients' adoption of patient accessible electronic health records
- Download full text (pdf) of To read or not to read - A cross-sectional study of Swedish primary care patients' adoption of patient accessible electronic health records
Part of Nervenheilkunde, p. 681-687, 2024
Part of Journal of general internal medicine, p. 2881-2887, 2024
- DOI for Visit Experience and Fulfillment of Care Needs in Primary Care Differs for Video Visits Compared to In-person and Chat Visits
- Download full text (pdf) of Visit Experience and Fulfillment of Care Needs in Primary Care Differs for Video Visits Compared to In-person and Chat Visits
Part of International Journal of Medical Informatics, 2024
- DOI for Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland
- Download full text (pdf) of Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland
Part of Implementation Science, 2024
- DOI for The effect of audit and feedback and implementation support on guideline adherence and patient outcomes in cardiac rehabilitation: a study protocol for an open-label cluster-randomized effectiveness-implementation hybrid trial
- Download full text (pdf) of The effect of audit and feedback and implementation support on guideline adherence and patient outcomes in cardiac rehabilitation: a study protocol for an open-label cluster-randomized effectiveness-implementation hybrid trial
A Nordic Perspective on Patient Online Record Access and the European Health Data Space
Part of Journal of Medical Internet Research, 2024
- DOI for A Nordic Perspective on Patient Online Record Access and the European Health Data Space
- Download full text (pdf) of A Nordic Perspective on Patient Online Record Access and the European Health Data Space
Part of Digital Health, 2024
- DOI for Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0
- Download full text (pdf) of Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0
Affordance trajectories and the usefulness of online records access among older adults in Sweden
Part of Digital Health, 2024
- DOI for Affordance trajectories and the usefulness of online records access among older adults in Sweden
- Download full text (pdf) of Affordance trajectories and the usefulness of online records access among older adults in Sweden
Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
Part of Studies in Health Technology and Informatics, p. 1422-1423, 2024
- DOI for Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
- Download full text (pdf) of Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
Part of Journal of Adolescent Health, p. 730-736, 2024
- DOI for Security and Privacy of Online Record Access: A Survey of Adolescents’ Views and Experiences in Sweden
- Download full text (pdf) of Security and Privacy of Online Record Access: A Survey of Adolescents’ Views and Experiences in Sweden
Part of BMJ Paediatrics Open, 2024
- DOI for Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
- Download full text (pdf) of Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
Video Consultations and Environmental Sustainability - Usability's Impact on Long-Term Use.
Part of Studies in Health Technology and Informatics, p. 291-295, 2024
Generative artificial intelligence in primary care: an online survey of UK general practitioners
Part of BMJ Health & Care Informatics, 2024
- DOI for Generative artificial intelligence in primary care: an online survey of UK general practitioners
- Download full text (pdf) of Generative artificial intelligence in primary care: an online survey of UK general practitioners
Part of Journal of Medical Internet Research, 2024
- DOI for Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study
- Download full text (pdf) of Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study
Patients' Experiences of Demanded Access to Online Health Records
Part of Studies in Health Technology and Informatics, p. 1424-1425, 2024
- DOI for Patients' Experiences of Demanded Access to Online Health Records
- Download full text (pdf) of Patients' Experiences of Demanded Access to Online Health Records
Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record
Part of Studies in Health Technology and Informatics, p. 489-493, 2024
- DOI for Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record
- Download full text (pdf) of Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record
Part of Studies in Health Technology and Informatics, p. 114-118, 2024
Part of BMJ Open, 2024
- DOI for Experiences and opinions of general practitioners with patient online record access: an online survey in England
- Download full text (pdf) of Experiences and opinions of general practitioners with patient online record access: an online survey in England
Generative Language Models and Open Notes: Exploring the Promise and Limitations
Part of JMIR Medical Education, 2024
Part of Digital Health, 2024
- DOI for Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland
- Download full text (pdf) of Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland
Part of Health Expectations, 2024
- DOI for Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
- Download full text (pdf) of Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
Part of International Journal of Medical Informatics, 2024
- DOI for Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
- Download full text (pdf) of Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
Part of JMIR Human Factors, 2023
- DOI for Evaluation of an Electronic Care and Rehabilitation Planning Tool With Stroke Survivors With Aphasia: Usability Study
- Download full text (pdf) of Evaluation of an Electronic Care and Rehabilitation Planning Tool With Stroke Survivors With Aphasia: Usability Study
Remote digital monitoring for selected chronic diseases in primary health care
Part of The Cochrane Library, 2023
Patients' Experiences of Initiating Video Consultations.
Part of Studies in Health Technology and Informatics, p. 204-209, 2023
- DOI for Patients' Experiences of Initiating Video Consultations.
- Download full text (pdf) of Patients' Experiences of Initiating Video Consultations.
Part of Journal of Medical Internet Research, 2023
- DOI for Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden
- Download full text (pdf) of Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden
Part of BMC Health Services Research, 2023
- DOI for Empowered patients and informal care-givers as partners?: a survey study of healthcare professionals' perceptions
- Download full text (pdf) of Empowered patients and informal care-givers as partners?: a survey study of healthcare professionals' perceptions
Part of Journal of Medical Internet Research, 2023
- DOI for Users’ Experiences With Online Access to Electronic Health Records in Mental and Somatic Health Care: Cross-Sectional Study
- Download full text (pdf) of Users’ Experiences With Online Access to Electronic Health Records in Mental and Somatic Health Care: Cross-Sectional Study
Part of Journal of Medical Internet Research, 2023
- DOI for The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
- Download full text (pdf) of The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
Part of JMIR Research Protocols, 2023
Patients' Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study
Part of Journal of Medical Internet Research, 2023
- DOI for Patients' Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study
- Download full text (pdf) of Patients' Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study
Part of Journal of Medical Internet Research, 2023
Part of BMC Medical Informatics and Decision Making, 2023
- DOI for Escape to the future: a qualitative study of physicians' views on the work environment, education, and support in a digital context
- Download full text (pdf) of Escape to the future: a qualitative study of physicians' views on the work environment, education, and support in a digital context
Part of Journal of Medical Ethics, p. 24-25, 2023
Patient empowerment through online access to health records
Part of The BMJ, 2022
- DOI for Patient empowerment through online access to health records
- Download full text (pdf) of Patient empowerment through online access to health records
Part of Journal of Medical Internet Research, 2022
- DOI for Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey
- Download full text (pdf) of Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey
Part of Journal of Participatory Medicine, 2022
- DOI for Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers
- Download full text (pdf) of Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers
Sharing clinical notes, and placebo and nocebo effects: Can documentation affect patient health?
Part of Journal of Health Psychology, p. 135-146, 2022
- DOI for Sharing clinical notes, and placebo and nocebo effects: Can documentation affect patient health?
- Download full text (pdf) of Sharing clinical notes, and placebo and nocebo effects: Can documentation affect patient health?
Part of BMJ Health & Care Informatics, 2022
- DOI for Machine learning in medical education: a survey of the experiences and opinions of medical students in Ireland
- Download full text (pdf) of Machine learning in medical education: a survey of the experiences and opinions of medical students in Ireland
Personalized Digital Health and Patient-Centric Services: Editorial
Part of Frontiers in Computer Science, 2022
- DOI for Personalized Digital Health and Patient-Centric Services: Editorial
- Download full text (pdf) of Personalized Digital Health and Patient-Centric Services: Editorial
Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study.
Part of JMIR Human Factors, 2022
- DOI for Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study.
- Download full text (pdf) of Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study.
Part of BMJ. British Medical Journal, 2022
Patients, clinicians and open notes: information blocking as a case of epistemic injustice
Part of Journal of Medical Ethics, p. 785-793, 2022
- DOI for Patients, clinicians and open notes: information blocking as a case of epistemic injustice
- Download full text (pdf) of Patients, clinicians and open notes: information blocking as a case of epistemic injustice
Part of Studies in Health Technology and Informatics, p. 530-534, 2022
- DOI for Healthcare Professionals' Experiences of the Work Environment After Patients' Access to Their Electronic Health Records - A Qualitative Study in Primary Care.
- Download full text (pdf) of Healthcare Professionals' Experiences of the Work Environment After Patients' Access to Their Electronic Health Records - A Qualitative Study in Primary Care.
Part of Frontiers in Public Health, 2021
- DOI for Factors Influencing Development and Implementation of Patients' Access to Electronic Health Records: A Comparative Study of Sweden and the Netherlands
- Download full text (pdf) of Factors Influencing Development and Implementation of Patients' Access to Electronic Health Records: A Comparative Study of Sweden and the Netherlands
Patients’ Access to Their Psychiatric Notes: Current Policies and Practices in Sweden
Part of International Journal of Environmental Research and Public Health, 2021
- DOI for Patients’ Access to Their Psychiatric Notes: Current Policies and Practices in Sweden
- Download full text (pdf) of Patients’ Access to Their Psychiatric Notes: Current Policies and Practices in Sweden
Part of JMIR Mental Health, 2021
- DOI for Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review
- Download full text (pdf) of Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review
Part of JAMA Network Open, 2021
- DOI for Association of Patients Reading Clinical Notes With Perception of Medication Adherence Among Persons With Serious Mental Illness
- Download full text (pdf) of Association of Patients Reading Clinical Notes With Perception of Medication Adherence Among Persons With Serious Mental Illness
Knowledge, power, and patients: The ethics of open notes
Part of Journal of Medical Ethics, 2021
COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust
Part of JMIR Mental Health, 2021
- DOI for COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust
- Download full text (pdf) of COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust
User Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale
Part of JMIR Human Factors, 2021
- DOI for User Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale
- Download full text (pdf) of User Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale
The benefits and harms of open notes in mental health: A Delphi survey of international experts
Part of PLOS ONE, 2021
- DOI for The benefits and harms of open notes in mental health: A Delphi survey of international experts
- Download full text (pdf) of The benefits and harms of open notes in mental health: A Delphi survey of international experts
Part of JMIR Mental Health, 2021
- DOI for Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts
- Download full text (pdf) of Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts
US policy requires immediate release of records to patients
Part of The BMJ, 2021
Nordic countries lead new initiative on patient access to EHRs
Part of BMJ. British Medical Journal, 2021
Patient Access to Mental Health Notes: Motivating Evidence-Informed Ethical Guidelines
Part of Journal of Nervous and Mental Disease, p. 265-269, 2021
Part of Journal of Parkinson's Disease, p. 1927-1933, 2021
- DOI for Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?
- Download full text (pdf) of Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?
Does Patient Access to Clinical Notes Change Documentation?
Part of Frontiers in Public Health, 2020
- DOI for Does Patient Access to Clinical Notes Change Documentation?
- Download full text (pdf) of Does Patient Access to Clinical Notes Change Documentation?
Sharing notes with mental health patients: balancing risks with respect
Part of Lancet psychiatry, p. 924-925, 2020
Part of IMIA Yearbook of Medical Informatics, p. 58-70, 2020
- DOI for Challenges and Best Practices in Ethical Review of Human and Organizational Factors Studies in Health Technology: a Synthesis of Testimonies
- Download full text (pdf) of Challenges and Best Practices in Ethical Review of Human and Organizational Factors Studies in Health Technology: a Synthesis of Testimonies
Part of BMC Medical Informatics and Decision Making, 2019
- DOI for "You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease
- Download full text (pdf) of "You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease
Part of Journal of Medical Internet Research, 2019
- DOI for From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients
- Download full text (pdf) of From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients
Patients’ access to health records
Part of The BMJ, 2019
Part of BMC Medical Informatics and Decision Making, 2019
- DOI for Accessing and sharing health information for post-discharge stroke care through a national health information exchange platform: a case study
- Download full text (pdf) of Accessing and sharing health information for post-discharge stroke care through a national health information exchange platform: a case study
Cancer, a relational disease: exploring the needs of relatives to cancer patients
Part of International Journal of Qualitative Studies on Health and Well-being, 2019
- DOI for Cancer, a relational disease: exploring the needs of relatives to cancer patients
- Download full text (pdf) of Cancer, a relational disease: exploring the needs of relatives to cancer patients
Part of Journal of Medical Internet Research, 2018
- DOI for Patients' experiences of accessing their electronic health records: National patient survey in Sweden
- Download full text (pdf) of Patients' experiences of accessing their electronic health records: National patient survey in Sweden
Precision Medicine in Parkinson's Disease -: Exploring Patient-Initiated Self-Tracking
Part of Journal of Parkinson's Disease, p. 441-446, 2018
- DOI for Precision Medicine in Parkinson's Disease -: Exploring Patient-Initiated Self-Tracking
- Download full text (pdf) of Precision Medicine in Parkinson's Disease -: Exploring Patient-Initiated Self-Tracking
Part of Informaatiotutkimus, p. 51-54, 2018
Världsbäst på eHälsa kräver internationellt samarbete
Part of Svenska dagbladet, 2017
Part of Health Informatics Journal, 2017
- DOI for Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson's disease in Sweden.
- Download full text (pdf) of Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson's disease in Sweden.
Part of Methods of information in medicine, 2017
- DOI for Patient-driven N-of-1 in Parkinson's Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia
- Download full text (pdf) of Patient-driven N-of-1 in Parkinson's Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia
Part of BMC Medical Informatics and Decision Making, 2016
Part of The BMJ, 2015
Collaborative interaction points in post-discharge stroke care.
Part of International Journal of Integrated Care, 2014
Part of BMC Family Practice, 2012
Does user centred design work in homecare for elderly?: a retrospective on the OLD@HOME case
Part of International Journal of Integrated Care, 2011
Modeling shared care plans using CONTsys and openEHR to support shared homecare of the elderly.
Part of JAMIA Journal of the American Medical Informatics Association, p. 66-9, 2011
Scenarios to capture work processes in shared homecare-From analysis to application
Part of International Journal of Medical Informatics, 2010
Health informatics and the delivery of care to older people.
Part of Maturitas, p. 195-9, 2009
Studying intersection points - an analysis of information needs in shared homecare of elderly
Part of The Journal on Information Technology in Healthcare, p. 1-20, 2009
Introducing a mobile ICT system in homecare: evaluation of a socio-technical implementation process
Part of The Journal on Information Technology in Healthcare, p. 356-366, 2008
Part of Studies in Health Technology and Informatics, p. 597-602, 2008
Usability Laboratory Test of a Novel Mobile Healthcare Application with Experienced Homecare Staff
Part of Open Medical Informatics Journal, p. 117-128, 2008
Part of Journal of Biomedical Informatics, p. 557-569, 2008
Bridging the gap: a virtual health record for integrated home care
Part of International Journal of Integrated Care, 2007
Part of Journal on Information Technology in Healthcare, p. 317-25, 2006
Integrated Care Plan for Shared Home Care - the technical architecture
Part of The Journal of Information Technology in Healthcare, p. 377-382, 2005
Specific demands for developing ICT systems for shared home care - a user centred approach
Part of The Journal on Information Technology in Healthcare, p. 279-285, 2005
Specific Demands for Developing IT-Systems for Shared Home Care – A User Centred Approach
Part of J Qual Life Res, p. 171-175, 2005
Part of J Am Med Inform Assoc
Articles, review/survey
Part of JMIR Research Protocols, 2025
- DOI for Health Care Professionals' Experiences and Opinions About Generative AI and Ambient Scribes in Clinical Documentation: Protocol for a Scoping Review
- Download full text (pdf) of Health Care Professionals' Experiences and Opinions About Generative AI and Ambient Scribes in Clinical Documentation: Protocol for a Scoping Review
Part of JMIR Research Protocols, 2025
- DOI for Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review
- Download full text (pdf) of Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review
Impact of Patient Online Record Access on Documentation: Scoping Review
Part of Journal of Medical Internet Research, 2025
Part of JMIR Research Protocols, 2022
- DOI for Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review
- Download full text (pdf) of Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review
Part of Journal of Medical Internet Research, 2022
- DOI for Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review
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A Long Way to Go: Patient Perspectives on Digital Health for Parkinson's Disease
Part of Journal of Parkinson's Disease, 2021
- DOI for A Long Way to Go: Patient Perspectives on Digital Health for Parkinson's Disease
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Chapters in book
Part of Intelligent Health Systems, p. 263-267, IOS Press, 2025
- DOI for Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
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Part of Fast Track to Vision 2030, p. 33-37, NordForsk, 2023
Personcentrering med journalåtkomst och andra e-hälsotjänster
Part of Medicinsk informatik, Liber, 2020
E-hälsa i hemsjukvården: ett stöd för patientsäkervård
Part of Hemsjukvård, Liber, 2019
Informatics and socio-technical challenges when designing solutions for integrated eCare
Part of Achieving Effective Integrated E-Care Beyond the Silos, p. 108-134, IGI Global, 2014
Collections (editor)
Comprehensive doctoral thesis
Conference papers
Part of 2025 IEEE 33rd International Requirements Engineering Conference Workshops (REW), p. 598-604, 2025
Video Consultations and Environmental Sustainability: Usability's Impact on Long-Term Use
Part of Digital Health and Informatics Innovations for Sustainable Health Care Systems, p. 291-295, 2024
- DOI for Video Consultations and Environmental Sustainability: Usability's Impact on Long-Term Use
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Part of NordiCHI '24, 2024
- DOI for Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
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2023
Adolescents Identifying Errors and Omissions in Their Electronic Health Records: A National Survey
Part of Caring is Sharing, p. 242-246, 2023
- DOI for Adolescents Identifying Errors and Omissions in Their Electronic Health Records: A National Survey
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Patients' Experiences of Unwanted Access to Their Online Health Records
Part of Caring is Sharing, p. 356-357, 2023
- DOI for Patients' Experiences of Unwanted Access to Their Online Health Records
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The Future of Online Video Consultations in Primary Care: A Qualitative Study
Part of Caring is Sharing, p. 942-946, 2023
- DOI for The Future of Online Video Consultations in Primary Care: A Qualitative Study
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Patients' Introduction to Online Video Consultations in Primary Healthcare
Part of Caring is Sharing, p. 1011-1012, 2023
- DOI for Patients' Introduction to Online Video Consultations in Primary Healthcare
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Impact of the Covid-19 pandemic on use of Video consultations in a Swedish Primary care setting
Part of Proceedings of the 18th Scandinavian Conference on Health Informatics, p. 212-213, 2022
- DOI for Impact of the Covid-19 pandemic on use of Video consultations in a Swedish Primary care setting
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Patients' Access to Their Psychiatric Records: A Comparison of Four Countries
Part of Challenges of Trustable AI and Added-Value on Health, p. 510-514, 2022
- DOI for Patients' Access to Their Psychiatric Records: A Comparison of Four Countries
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Minor and Parental Access to Electronic Health Records: Differences Across Four Countries
Part of Challenges of Trustable AI and Added-Value on Health, p. 495-499, 2022
- DOI for Minor and Parental Access to Electronic Health Records: Differences Across Four Countries
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Mobile Access and Adoption of the Swedish National Patient Portal
Part of Integrated Citizen Centered Digital Health and Social Care, p. 82-86, 2020
- DOI for Mobile Access and Adoption of the Swedish National Patient Portal
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Personalized Communication: People with Hearing Loss' Experiences of Using a National Patient Portal
Part of Digital Personalized Health and Medicine, p. 1031-1035, 2020
- DOI for Personalized Communication: People with Hearing Loss' Experiences of Using a National Patient Portal
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Analysis of Voluntary User Feedback of the Swedish National PAEHR Service
Part of MEDINFO 2019, p. 1126-1130, 2019
- DOI for Analysis of Voluntary User Feedback of the Swedish National PAEHR Service
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p. 195-200, 2019
- DOI for "I feel like a nurse and my clients learn more": mHealth, Capacity Building and Empowerment in Community Based Care.
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Exploring mHealths Fit to Workflow in Homecare - A Case Study in Sweden.
Part of Context Sensitive Health Informatics: Sustainability in Dynamic Ecosystems, p. 54-59, 2019
- DOI for Exploring mHealths Fit to Workflow in Homecare - A Case Study in Sweden.
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Adapting mHealth to Workflow - A Case Study in South Africa.
Part of Context Sensitive Health Informatics, p. 48-53, 2019
- DOI for Adapting mHealth to Workflow - A Case Study in South Africa.
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Understanding Study Participants Views on Co-Creation of Data and Use of EHR in Clinical Studies
Part of Building Continents of Knowledge in Oceans of Data, p. 341-345, 2018
- DOI for Understanding Study Participants Views on Co-Creation of Data and Use of EHR in Clinical Studies
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Part of Informatics for Health, p. 146-150, 2017
- DOI for IntegrIT: Towards Utilizing the Swedish National Health Information Exchange Platform for Clinical Research
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p. 723-727, 2017
2017
2017
A Socio-Technical Analysis of Patient Accessible Electronic Health Records.
p. 3-7, 2017
p. 1004-1013, 2017
p. 753-757, 2017
Opportunities and Challenges of Consumer-centric eHealth Services: An Interdisciplinary Workshop
2016
Care Professionals' Perceived Usefulness of eHealth for Post-Discharge Stroke Patients.
p. 589-93, 2016
Part of Digital Healthcare Empowering Europeans, 2015
Part of Driving Quality in Informatics, 2015
Living with Lung Cancer--Patients' Experiences as Input to eHealth Service Design.
p. 391-5, 2015
Experiences as input to eHealth design - a hip surgery patient journey case.
p. 672-4, 2015
Care Professionals' Perceived Usefulness Of A Rehabilitation Ehealth Service In Stroke Care.
2015
Stroke patients’ post-discharge information needs and actual information provision
2014
Disturbing or facilitating?--on the Usability of Swedish eHealth Systems 2013.
p. 221-5, 2014
My care pathways - creating open innovation in healthcare.
p. 687-91, 2013
User-Centered Design for Patient-Centered eHealth
2013
Part of Past History and Future Challenges of Human Work Interaction Design (HWID), p. 33-38, 2013
Building usability into National eHealth strategies: An Action Research Approach
Part of Action Research, Interventions, and Participatory Design, 2013
Experiences of Novel e-Health Services for Patients: Pros, Cons and Future Challenges
Part of MEDINFO 2013, p. 1254-1254, 2013
Part of Quality of Life through Quality of Information, 2012
Supporting citizen-centered care for seniors - experiences from two Swedish research projects
Part of 2012 25th IEEE International Symposium on Computer-Based Medical Systems (CBMS), p. 1-6, 2012
A new approach for goal-oriented analysis of healthcare processes.
p. 1251-5, 2010
2009
2009
Empowering patients and relatives in elderly care by information access
2008
2008
2008
Heuristic evaluation performed by usability-educated clinicians: education and attitudes
Part of INFORMATION TECHNOLOGY IN HEALTH CARE 2007, p. 205-216, 2007
Using scenarios to capture work processes in shared home care
Part of INFORMATION TECHNOLOGY IN HEALTH CARE 2007, p. 233-239, 2007
Part of Proceedings of 5th Scandinavian Conference on Health Informatics (SHI 2007) (Skandinaviska hälsoinformatik- och termkonferensen 2007), p. 62-62, 2007
A Case Study of a Service Oriented Architecture (SOA) Implementation using the
Part of Proceedings of ICICTH 2006, 2006
Visualization and interaction design solutions to address specific demands in shared home care
p. 71-76, 2006
Part of Ubiquity, p. 167-172, 2006
Integration architecture of a mobile virtual health record for shared home care.
Part of Connecting Medical Informatics and Bioinformatics, 2005
Old@Home - Tekniskt stöd till mobil närvård
Part of Proceedings of Sundsvall 42, p. 108-110, 2004
Towards a virtual health record for mobile home care of elderly citizens.
Part of Proceedings of MEDINFO 2004, p. 960-963, 2004
Old@Home - Tekniskt stöd till mobil närvård
Part of Proceedings of Sundsvall 42, p. 108-110, 2004
Integrated care plan and documentation on handheld devices in mobile home care
Part of MobileHCI 2004, p. 496-500, 2004
User needs for development of context dependent devices in mobile home care
Part of Human-Computer Interaction with mobile devices and services, 2003
Virtual Health Record - User Specific Information Access in a Mobile Work Situation
2003
Visualization and Interaction Techniques for Mobile Close Care
2003