Participatory eHealth & Health data Research Group (PeHR)

A growing concern: Online access to minors’ health records

Hagström, Josefin

2025

• Download full text (pdf) of A growing concern: Online access to minors’ health records

A proof-of-concept study for patient use of open notes with large language models

Salmi, Liz; Lewis, Dana M.; Clarke, Jennifer L.; Dong, Zhiyong et al.

Part of JAMIA Open, 2025

• DOI for A proof-of-concept study for patient use of open notes with large language models
• Download full text (pdf) of A proof-of-concept study for patient use of open notes with large language models

Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles

Hagström, Josefin; Hägglund, Maria; Blease, Charlotte

Part of BMC Medical Ethics, 2025

• DOI for Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles

An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness

Gaber, Sophie; Mattsson, Elisabet; Klarare, Anna; Dawes, Joanna et al.

Part of The Gerontologist, 2025

• DOI for An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness
• Download full text (pdf) of An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness

eHealth: An Exploration of Adoption and Implementation in Swedish Primary Care from Patients’ and Healthcare Professionals’ Perspectives

Muli, Irene

2025

• Download full text (pdf) of eHealth: An Exploration of Adoption and Implementation in Swedish Primary Care from Patients’ and Healthcare Professionals’ Perspectives

Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study

Meier-Diedrich, Eva; Esch, Tobias; Hägglund, Maria; Heinze, Martin et al.

Part of JMIR Aging, 2025

• DOI for Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study

Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study

Vanka, Anita; Johnston, Katherine; Delbanco, Tom; Desroches, Catherine M. et al.

Part of JMIR Medical Education, 2025

• DOI for Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study
• Download full text (pdf) of Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study

Impact of Patient Online Record Access on Documentation: Scoping Review

Meier-Diedrich, Eva; Lyckblad, Camilla; Davidge, Gail; Hägglund, Maria et al.

Part of Journal of Medical Internet Research, 2025

• DOI for Impact of Patient Online Record Access on Documentation: Scoping Review

Noble Humbug?: Hard and soft laws on clinical placebo use

Richard, Melina; Ganz, Manuela; Hornstein, Lena Dominique; Stehlik, Bohdan et al.

Part of Frontiers in Psychology, 2025

• DOI for Noble Humbug?: Hard and soft laws on clinical placebo use
• Download full text (pdf) of Noble Humbug?: Hard and soft laws on clinical placebo use

Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study

Hagström, Josefin; Blease, Charlotte; Harila, Arja; Lähteenmäki, Päivi et al.

Part of JMIR Pediatrics and Parenting, 2025

• DOI for Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study
• Download full text (pdf) of Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study

Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review

Terceiro, Luciana; Mustafa, Mudassir Imran; Hägglund, Maria; Kharko, Anna

Part of JMIR Research Protocols, 2025

• DOI for Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review
• Download full text (pdf) of Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review

Seeking public assistance to escape violence: a study on relocation co-created with women with lived experience of homelessness

Vamstad, Johan; Klarare, Anna; Agius, Josefine; Mattsson, Elisabet

Part of International Review of Sociology, p. 72-88, 2025

• DOI for Seeking public assistance to escape violence: a study on relocation co-created with women with lived experience of homelessness
• Download full text (pdf) of Seeking public assistance to escape violence: a study on relocation co-created with women with lived experience of homelessness

A Nordic Perspective on Patient Online Record Access and the European Health Data Space

Hägglund, Maria; Kharko, Anna; Bärkås, Annika; Blease, Charlotte et al.

Part of Journal of Medical Internet Research, 2024

• DOI for A Nordic Perspective on Patient Online Record Access and the European Health Data Space
• Download full text (pdf) of A Nordic Perspective on Patient Online Record Access and the European Health Data Space

A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study

Mazzocato, Pamela; Luckhaus, Jamie; Malmqvist Castillo, Moa; Burnett, Johan et al.

Part of Journal of Medical Internet Research, 2024

• DOI for A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
• Download full text (pdf) of A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study

A perspective-taking university course for cancer survivors, loved ones and healthcare professionals

Sandén, Ulrika; Nilsson, Fredrik; Thulesius, Hans; Hägglund, Maria et al.

Part of Social Sciences & Humanities Open, 2024

Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online

Hagström, Josefin; Blease, Charlotte; Moll, Jonas; Rexhepi, Hanife et al.

Part of Studies in Health Technology and Informatics, p. 1422-1423, 2024

• DOI for Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
• Download full text (pdf) of Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online

Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden

Hagström, Josefin; Blease, Charlotte; Scandurra, Isabella; Moll, Jonas et al.

Part of BMJ Paediatrics Open, 2024

• DOI for Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
• Download full text (pdf) of Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden

Affordance trajectories and the usefulness of online records access among older adults in Sweden

Huvila, Isto; Rexhepi, Hanife; Moll, Jonas; Zolbin, Maedeh Ghorbanian et al.

Part of Digital Health, 2024

• DOI for Affordance trajectories and the usefulness of online records access among older adults in Sweden
• Download full text (pdf) of Affordance trajectories and the usefulness of online records access among older adults in Sweden

Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Reinius, Maria; Al‐Adili, Lina; Riggare, Sara; Rodriguez, Inka Helispää et al.

Part of Health Expectations, 2024

• DOI for Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden

Luckhaus, Jamie L.; Clareborn, Anna; Hägglund, Maria; Riggare, Sara

Part of Health Expectations, 2024

• DOI for Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
• Download full text (pdf) of Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden

Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden

Kujala, Sari; Simola, Saija; Wang, Bo; Soone, Hedvig et al.

Part of International Journal of Medical Informatics, 2024

• DOI for Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
• Download full text (pdf) of Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden

Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Richards, Dawn P.; Mulhall, Hetty; Belton, Joletta; de Souza, Savia et al.

Part of Research Involvement and Engagement, 2024

• DOI for Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P et al.

Part of The BMJ, 2024

• DOI for Conferences led by patients facilitate democratic decision making in healthcare

Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P. et al.

Part of BMJ. British Medical Journal, 2024

• DOI for Conferences led by patients facilitate democratic decision making in healthcare

Digital health interventions for schizophrenia: Setting standards for mental health

Torous, John; Smith, Katharine A.; Hardy, Amy; Vinnikova, Anastasia et al.

Part of Schizophrenia Research, p. 392-395, 2024

• DOI for Digital health interventions for schizophrenia: Setting standards for mental health

Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions

Smith, Katharine A.; Hardy, Amy; Vinnikova, Anastasia; Blease, Charlotte et al.

Part of JMIR Mental Health, 2024

• DOI for Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions
• Download full text (pdf) of Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions

Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research

Hunt, Joanne; Blease, Charlotte

Part of Journal of Medical Ethics, 2024

• DOI for Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research

Experiences and opinions of general practitioners with patient online record access: an online survey in England

Blease, Charlotte; Kharko, Anna; Dong, Zhiyong; Jones, Ray B et al.

Part of BMJ Open, 2024

• DOI for Experiences and opinions of general practitioners with patient online record access: an online survey in England
• Download full text (pdf) of Experiences and opinions of general practitioners with patient online record access: an online survey in England

Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden

Fagerlund, Asbjørn; Bärkås, Annika; Kharko, Anna; Blease, Charlotte et al.

Part of BMC Psychiatry, 2024

• DOI for Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
• Download full text (pdf) of Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden

Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Hunt, Joanne; Runacres, Jessica; Herron, Daniel; Sheffield, David

Part of Qualitative Report, 2024

• DOI for Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
• Download full text (pdf) of Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Factors facilitating successful implementations of eye gaze devices for communication: A scoping review and case description

Büker, Stella

2024

• Download full text (pdf) of Factors facilitating successful implementations of eye gaze devices for communication: A scoping review and case description

Generative artificial intelligence in mental health care: potential benefits and current challenges

Torous, John; Blease, Charlotte

Part of World Psychiatry, p. 1-2, 2024

• DOI for Generative artificial intelligence in mental health care: potential benefits and current challenges

Generative artificial intelligence in primary care: an online survey of UK general practitioners

Blease, Charlotte; Locher, Cosima; Gaab, Jens; Hägglund, Maria et al.

Part of BMJ Health & Care Informatics, 2024

• DOI for Generative artificial intelligence in primary care: an online survey of UK general practitioners
• Download full text (pdf) of Generative artificial intelligence in primary care: an online survey of UK general practitioners

Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0

Kharko, Anna; McMillan, Brian; Hagström, Josefin; Muli, Irene et al.

Part of Digital Health, 2024

• DOI for Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0
• Download full text (pdf) of Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0

Generative Language Models and Open Notes: Exploring the Promise and Limitations

Blease, Charlotte; Torous, John; McMillan, Brian; Hägglund, Maria et al.

Part of JMIR Medical Education, 2024

• DOI for Generative Language Models and Open Notes: Exploring the Promise and Limitations

Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden

Kharko, Anna; Luckhaus, Jamie; Blease, Charlotte; Cajander, Åsa et al.

Part of NordiCHI '24, 2024

• DOI for Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
• Download full text (pdf) of Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden

Implementation of medical technology: A qualitative case study on the implementation of CareEvent ina complex care environment (Neonatal Department)

Chabok, Araz Anton; Erlandsson, Kewin

2024

• Download full text (pdf) of Implementation of medical technology: A qualitative case study on the implementation of CareEvent ina complex care environment (Neonatal Department)

Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden

Söderberg, Daniel; Bonn, Stephanie E.; Sjöblom, Linnea; Dahlgren, Anna et al.

Part of Telemedicine journal and e-health, p. 1289-1296, 2024

• DOI for Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden
• Download full text (pdf) of Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden

Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: The legacy of common health problems and the future for long COVID

Hunt, Joanne

Part of Critical Social Policy, p. 535-547, 2024

• DOI for Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: The legacy of common health problems and the future for long COVID
• Download full text (pdf) of Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: The legacy of common health problems and the future for long COVID

Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study

Gerger, Heike; Munder, Thomas; Kreuzer, Nicole; Locher, Cosima et al.

Part of Health Communication, p. 1246-1255, 2024

• DOI for Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study
• Download full text (pdf) of Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study

Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts

Kharko, Anna; Blease, Charlotte; Johansen, Monika; Moen, Anne et al.

Part of Studies in Health Technology and Informatics, p. 114-118, 2024

• DOI for Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts

Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland

Hagström, Josefin; Hägglund, Maria; Holmroos, Mari; Lähteenmäki, Päivi et al.

Part of International Journal of Medical Informatics, 2024

• DOI for Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland
• Download full text (pdf) of Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland

On power and truth: The case of myalgic encephalomyelitis / chronic fatigue syndrome.

Hunt, Joanne

Part of The Journal of Critical Psychology, Counselling and Psychotherapy, p. 7-18, 2024

Online-Zugang zu klinischen Behandlungsnotizen für ambulant versorgte Patienten (Studienprotokoll zur OpenNOTES-Studie)

Wurster, Florian; Meier-Diedrich, Eva; Demirer, Ibrahim; DesRoches, Catherine et al.

Part of Nervenheilkunde, p. 714-719, 2024

• DOI for Online-Zugang zu klinischen Behandlungsnotizen für ambulant versorgte Patienten (Studienprotokoll zur OpenNOTES-Studie)

Open AI meets open notes: surveillance capitalism, patient privacy and online record access

Blease, Charlotte

Part of Journal of Medical Ethics, p. 84-89, 2024

• DOI for Open AI meets open notes: surveillance capitalism, patient privacy and online record access
• Download full text (pdf) of Open AI meets open notes: surveillance capitalism, patient privacy and online record access

Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland

Kharko, Anna; Buergler, Sarah; Bärkås, Annika; Hägglund, Maria et al.

Part of Digital Health, 2024

• DOI for Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland
• Download full text (pdf) of Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland

PARKIN is not required to sustain OXPHOS function in adult mammalian tissues

Filograna, Roberta; Gerlach, Jule; Choi, Hae-Na; Rigoni, Giovanni et al.

Part of npj Parkinson's Disease, 2024

• DOI for PARKIN is not required to sustain OXPHOS function in adult mammalian tissues
• Download full text (pdf) of PARKIN is not required to sustain OXPHOS function in adult mammalian tissues

Patient Input into the Electronic Health Record: Co-Designing Solutions with Patients and Healthcare Professionals.

Dudkina, Anna; Kujala, Sari; Hägglund, Maria; Kharko, Anna et al.

Part of Studies in Health Technology and Informatics, p. 1477-1481, 2024

• DOI for Patient Input into the Electronic Health Record: Co-Designing Solutions with Patients and Healthcare Professionals.

Patients’ Access to Their Mental Health Records: Understanding Policy, Access, and Patient Experiences

Bärkås, Annika

2024

• Download full text (pdf) of Patients’ Access to Their Mental Health Records: Understanding Policy, Access, and Patient Experiences

Patients' Experiences of Demanded Access to Online Health Records

Bärkås, Annika; Kharko, Anna; Åhlfeldt, Rose-Mharie; Hägglund, Maria

Part of Studies in Health Technology and Informatics, p. 1424-1425, 2024

• DOI for Patients' Experiences of Demanded Access to Online Health Records
• Download full text (pdf) of Patients' Experiences of Demanded Access to Online Health Records