Participatory eHealth & Health data Research Group (PeHR)

A Nordic Perspective on Patient Online Record Access and the European Health Data Space

Hägglund, Maria; Kharko, Anna; Bärkås, Annika; Blease, Charlotte et al.

Part of Journal of Medical Internet Research, 2024

• DOI for A Nordic Perspective on Patient Online Record Access and the European Health Data Space
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A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study

Mazzocato, Pamela; Luckhaus, Jamie; Malmqvist Castillo, Moa; Burnett, Johan et al.

Part of Journal of Medical Internet Research, 2024

• DOI for A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
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A perspective-taking university course for cancer survivors, loved ones and healthcare professionals

Sandén, Ulrika; Nilsson, Fredrik; Thulesius, Hans; Hägglund, Maria et al.

Part of Social Sciences & Humanities Open, 2024

Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online

Hagström, Josefin; Blease, Charlotte; Moll, Jonas; Rexhepi, Hanife et al.

Part of Studies in Health Technology and Informatics, p. 1422-1423, 2024

• DOI for Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
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Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden

Hagström, Josefin; Blease, Charlotte; Scandurra, Isabella; Moll, Jonas et al.

Part of BMJ Paediatrics Open, 2024

• DOI for Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
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Affordance trajectories and the usefulness of online records access among older adults in Sweden

Huvila, Isto; Rexhepi, Hanife; Moll, Jonas; Zolbin, Maedeh Ghorbanian et al.

Part of Digital Health, 2024

• DOI for Affordance trajectories and the usefulness of online records access among older adults in Sweden
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Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Reinius, Maria; Al‐Adili, Lina; Riggare, Sara; Rodriguez, Inka Helispää et al.

Part of Health Expectations, 2024

• DOI for Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden

Luckhaus, Jamie L.; Clareborn, Anna; Hägglund, Maria; Riggare, Sara

Part of Health Expectations, 2024

• DOI for Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
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Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden

Kujala, Sari; Simola, Saija; Wang, Bo; Soone, Hedvig et al.

Part of International Journal of Medical Informatics, 2024

• DOI for Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
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Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Richards, Dawn P.; Mulhall, Hetty; Belton, Joletta; de Souza, Savia et al.

Part of Research Involvement and Engagement, 2024

• DOI for Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P et al.

Part of The BMJ, 2024

• DOI for Conferences led by patients facilitate democratic decision making in healthcare

Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P. et al.

Part of BMJ. British Medical Journal, 2024

• DOI for Conferences led by patients facilitate democratic decision making in healthcare

Digital health interventions for schizophrenia: Setting standards for mental health

Torous, John; Smith, Katharine A.; Hardy, Amy; Vinnikova, Anastasia et al.

Part of Schizophrenia Research, p. 392-395, 2024

• DOI for Digital health interventions for schizophrenia: Setting standards for mental health

Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions

Smith, Katharine A.; Hardy, Amy; Vinnikova, Anastasia; Blease, Charlotte et al.

Part of JMIR Mental Health, 2024

• DOI for Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions
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Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research

Hunt, Joanne; Blease, Charlotte

Part of Journal of Medical Ethics, 2024

• DOI for Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research

Experiences and opinions of general practitioners with patient online record access: an online survey in England

Blease, Charlotte; Kharko, Anna; Dong, Zhiyong; Jones, Ray B et al.

Part of BMJ Open, 2024

• DOI for Experiences and opinions of general practitioners with patient online record access: an online survey in England
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Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden

Fagerlund, Asbjørn; Bärkås, Annika; Kharko, Anna; Blease, Charlotte et al.

Part of BMC Psychiatry, 2024

• DOI for Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
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Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Hunt, Joanne; Runacres, Jessica; Herron, Daniel; Sheffield, David

Part of Qualitative Report, 2024

• DOI for Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
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Factors facilitating successful implementations of eye gaze devices for communication: A scoping review and case description

Büker, Stella

2024

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Generative artificial intelligence in mental health care: potential benefits and current challenges

Torous, John; Blease, Charlotte

Part of World Psychiatry, p. 1-2, 2024

• DOI for Generative artificial intelligence in mental health care: potential benefits and current challenges

Generative artificial intelligence in primary care: an online survey of UK general practitioners

Blease, Charlotte; Locher, Cosima; Gaab, Jens; Hägglund, Maria et al.

Part of BMJ Health & Care Informatics, 2024

• DOI for Generative artificial intelligence in primary care: an online survey of UK general practitioners
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Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0

Kharko, Anna; McMillan, Brian; Hagström, Josefin; Muli, Irene et al.

Part of Digital Health, 2024

• DOI for Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0
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Generative Language Models and Open Notes: Exploring the Promise and Limitations

Blease, Charlotte; Torous, John; McMillan, Brian; Hägglund, Maria et al.

Part of JMIR Medical Education, 2024

• DOI for Generative Language Models and Open Notes: Exploring the Promise and Limitations

Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden

Kharko, Anna; Luckhaus, Jamie; Blease, Charlotte; Cajander, Åsa et al.

Part of NordiCHI '24, 2024

• DOI for Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
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Implementation of medical technology: A qualitative case study on the implementation of CareEvent ina complex care environment (Neonatal Department)

Chabok, Araz Anton; Erlandsson, Kewin

2024

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Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden

Söderberg, Daniel; Bonn, Stephanie E.; Sjöblom, Linnea; Dahlgren, Anna et al.

Part of Telemedicine journal and e-health, 2024

• DOI for Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden

Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: The legacy of common health problems and the future for long COVID

Hunt, Joanne

Part of Critical Social Policy, 2024

• DOI for Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: The legacy of common health problems and the future for long COVID

Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study

Gerger, Heike; Munder, Thomas; Kreuzer, Nicole; Locher, Cosima et al.

Part of Health Communication, p. 1246-1255, 2024

• DOI for Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study
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Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts

Kharko, Anna; Blease, Charlotte; Johansen, Monika; Moen, Anne et al.

Part of Studies in Health Technology and Informatics, p. 114-118, 2024

• DOI for Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts

Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland

Hagström, Josefin; Hägglund, Maria; Holmroos, Mari; Lähteenmäki, Päivi et al.

Part of International Journal of Medical Informatics, 2024

• DOI for Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland

Online-Zugang zu klinischen Behandlungsnotizen für ambulant versorgte Patienten (Studienprotokoll zur OpenNOTES-Studie)

Wurster, Florian; Meier-Diedrich, Eva; Demirer, Ibrahim; DesRoches, Catherine et al.

Part of Nervenheilkunde, p. 714-719, 2024

• DOI for Online-Zugang zu klinischen Behandlungsnotizen für ambulant versorgte Patienten (Studienprotokoll zur OpenNOTES-Studie)

Open AI meets open notes: surveillance capitalism, patient privacy and online record access

Blease, Charlotte

Part of Journal of Medical Ethics, p. 84-89, 2024

• DOI for Open AI meets open notes: surveillance capitalism, patient privacy and online record access
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Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland

Kharko, Anna; Buergler, Sarah; Bärkås, Annika; Hägglund, Maria et al.

Part of Digital Health, 2024

• DOI for Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland
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PARKIN is not required to sustain OXPHOS function in adult mammalian tissues

Filograna, Roberta; Gerlach, Jule; Choi, Hae-Na; Rigoni, Giovanni et al.

Part of npj Parkinson's Disease, 2024

• DOI for PARKIN is not required to sustain OXPHOS function in adult mammalian tissues
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Patient Input into the Electronic Health Record: Co-Designing Solutions with Patients and Healthcare Professionals.

Dudkina, Anna; Kujala, Sari; Hägglund, Maria; Kharko, Anna et al.

Part of Studies in Health Technology and Informatics, p. 1477-1481, 2024

• DOI for Patient Input into the Electronic Health Record: Co-Designing Solutions with Patients and Healthcare Professionals.

Patients’ Access to Their Mental Health Records: Understanding Policy, Access, and Patient Experiences

Bärkås, Annika

2024

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Patients' Experiences of Demanded Access to Online Health Records

Bärkås, Annika; Kharko, Anna; Åhlfeldt, Rose-Mharie; Hägglund, Maria

Part of Studies in Health Technology and Informatics, p. 1424-1425, 2024

• DOI for Patients' Experiences of Demanded Access to Online Health Records
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Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record

Muli, Irene; Scandurra, Isabella; Hägglund, Maria

Part of Studies in Health Technology and Informatics, p. 489-493, 2024

• DOI for Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record
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Psychiatrists' experiences and opinions of generative artificial intelligence in mental healthcare: An online mixed methods survey

Blease, Charlotte; Worthen, Abigail; Torous, John

Part of Psychiatry Research, 2024

• DOI for Psychiatrists' experiences and opinions of generative artificial intelligence in mental healthcare: An online mixed methods survey
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Psychotherapists’ views on open notes: An online survey from Germany

Schwarz, Julian; Neumann, Katharina; Meier-Diedrich, Eva; Mühlensiepen, Felix et al.

Part of Digital Health, 2024

• DOI for Psychotherapists’ views on open notes: An online survey from Germany
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Reply to Ballou and Kube

Jones, Caitlin M. P.; Lin, Chung-Wei Christine; Blease, Charlotte; Lawson, Jen et al.

Part of Pain, p. 488-489, 2024

• DOI for Reply to Ballou and Kube

Return of Results in Digital Phenotyping: Ethical Considerations for Real-World Use Cases

Torous, John; Blease, Charlotte

Part of American Journal of Bioethics, p. 91-93, 2024

• DOI for Return of Results in Digital Phenotyping: Ethical Considerations for Real-World Use Cases
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Safety-­netting strategies for primary and emergency care: A codesign study with patients, carers and clinicians in Sweden

Wannheden, Carolina; Hagman, Johanna; Riggare, Sara; Pukk Härenstam, Karin et al.

Part of BMJ Open, 2024

• DOI for Safety-­netting strategies for primary and emergency care: A codesign study with patients, carers and clinicians in Sweden
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Security and Privacy of Online Record Access: A Survey of Adolescents’ Views and Experiences in Sweden

Hagström, Josefin; Åhlfeldt, Rose-Mharie; Blease, Charlotte; Cajander, Åsa et al.

Part of Journal of Adolescent Health, p. 730-736, 2024

• DOI for Security and Privacy of Online Record Access: A Survey of Adolescents’ Views and Experiences in Sweden
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Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study

Moll, Jonas; Scandurra, Isabella; Bärkås, Annika; Blease, Charlotte et al.

Part of Journal of Medical Internet Research, 2024

• DOI for Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study
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The effect of audit and feedback and implementation support on guideline adherence and patient outcomes in cardiac rehabilitation: a study protocol for an open-label cluster-randomized effectiveness-implementation hybrid trial

Ögmundsdóttir Michelsen, Halldóra; Lidin, Matthias; Bäck, Maria; Scott Duncan, Therese et al.

Part of Implementation Science, 2024

• DOI for The effect of audit and feedback and implementation support on guideline adherence and patient outcomes in cardiac rehabilitation: a study protocol for an open-label cluster-randomized effectiveness-implementation hybrid trial
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To read or not to read - A cross-sectional study of Swedish primary care patients' adoption of patient accessible electronic health records

Muli, Irene; Cajander, Åsa; Hvitfeldt, Helena; Lagerros, Ylva Trolle et al.

Part of Digital Health, 2024

• DOI for To read or not to read - A cross-sectional study of Swedish primary care patients' adoption of patient accessible electronic health records
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Video Consultations and Environmental Sustainability – Usability’s Impact on Long-Term Use

Muli, Irene; Cajander, Åsa; Rahimi Ardabili, Hania; Taloyan, Marina et al.

2024

• DOI for Video Consultations and Environmental Sustainability – Usability’s Impact on Long-Term Use

Video Consultations and Environmental Sustainability - Usability's Impact on Long-Term Use.

Muli, Irene; Cajander, Åsa; Rahimi Ardabili, Hania; Taloyan, Marina et al.

Part of Studies in Health Technology and Informatics, p. 291-295, 2024

• DOI for Video Consultations and Environmental Sustainability - Usability's Impact on Long-Term Use.

Visit Experience and Fulfillment of Care Needs in Primary Care Differs for Video Visits Compared to In-person and Chat Visits

Söderberg, Daniel; Bonn, Stephanie E.; Sjöblom, Linnea; Dahlgren, Anna et al.

Part of Journal of general internal medicine, 2024

• DOI for Visit Experience and Fulfillment of Care Needs in Primary Care Differs for Video Visits Compared to In-person and Chat Visits