Participatory eHealth & Health data Research Group (PeHR)
Our group supports the continuous transformation of healthcare in Sweden and internationally through participatory research onf eHealth and health data. We work at the intersection of health sciences, implementation science, pre-clinical research, health informatics, and action research. Our work includes evaluation of ethical, legal and social consequences of eHealth tools in collaboration with all stakeholders: patients, informal caregivers, healthcare professionals, researchers, healthcare organisations, industry, policymakers, and governmental authorities.
The perspectives of patients and informal caregivers is key to our research, so we support both patient-driven innovation and research as essential components to improve health and well-being.
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Group members
Publications
A Nordic Perspective on Patient Online Record Access and the European Health Data Space
Part of Journal of Medical Internet Research, 2024
A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
Part of Journal of Medical Internet Research, 2024
A perspective-taking university course for cancer survivors, loved ones and healthcare professionals
Part of Social Sciences & Humanities Open, 2024
Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
Part of Studies in Health Technology and Informatics, p. 1422-1423, 2024
Part of BMJ Paediatrics Open, 2024
- DOI for Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
- Download full text (pdf) of Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
Affordance trajectories and the usefulness of online records access among older adults in Sweden
Part of Digital Health, 2024
Part of Health Expectations, 2024
Part of Health Expectations, 2024
- DOI for Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
- Download full text (pdf) of Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
Part of International Journal of Medical Informatics, 2024
Part of Research Involvement and Engagement, 2024
Conferences led by patients facilitate democratic decision making in healthcare
Part of The BMJ, 2024
Conferences led by patients facilitate democratic decision making in healthcare
Part of BMJ. British Medical Journal, 2024
Digital health interventions for schizophrenia: Setting standards for mental health
Part of Schizophrenia Research, p. 392-395, 2024
Part of JMIR Mental Health, 2024
- DOI for Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions
- Download full text (pdf) of Digital Mental Health for Schizophrenia and Other Severe Mental Illnesses: An International Consensus on Current Challenges and Potential Solutions
Part of Journal of Medical Ethics, 2024
Part of BMJ Open, 2024
Part of BMC Psychiatry, 2024
- DOI for Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
- Download full text (pdf) of Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
Part of Qualitative Report, 2024
- DOI for Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
- Download full text (pdf) of Exploring the Experience of Healthcare-Related Epistemic Injustice among People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
2024
Generative artificial intelligence in mental health care: potential benefits and current challenges
Part of World Psychiatry, p. 1-2, 2024
Generative artificial intelligence in primary care: an online survey of UK general practitioners
Part of BMJ Health & Care Informatics, 2024
Part of Digital Health, 2024
Generative Language Models and Open Notes: Exploring the Promise and Limitations
Part of JMIR Medical Education, 2024
Part of NordiCHI '24, 2024
- DOI for Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
- Download full text (pdf) of Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
2024
Individual Patient Factors Associated with the Use of Physical or Digital Primary Care in Sweden
Part of Telemedicine journal and e-health, 2024
Part of Critical Social Policy, 2024
Lay Perspectives on Empathy in Patient-Physician Communication: An Online Experimental Study
Part of Health Communication, p. 1246-1255, 2024
Part of Studies in Health Technology and Informatics, p. 114-118, 2024
Part of International Journal of Medical Informatics, 2024
Part of Nervenheilkunde, p. 714-719, 2024
Open AI meets open notes: surveillance capitalism, patient privacy and online record access
Part of Journal of Medical Ethics, p. 84-89, 2024
Part of Digital Health, 2024
PARKIN is not required to sustain OXPHOS function in adult mammalian tissues
Part of npj Parkinson's Disease, 2024
Part of Studies in Health Technology and Informatics, p. 1477-1481, 2024
2024
Patients' Experiences of Demanded Access to Online Health Records
Part of Studies in Health Technology and Informatics, p. 1424-1425, 2024
Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record
Part of Studies in Health Technology and Informatics, p. 489-493, 2024
Part of Psychiatry Research, 2024
Psychotherapists’ views on open notes: An online survey from Germany
Part of Digital Health, 2024
Part of Pain, p. 488-489, 2024
Return of Results in Digital Phenotyping: Ethical Considerations for Real-World Use Cases
Part of American Journal of Bioethics, p. 91-93, 2024
Part of BMJ Open, 2024
Part of Journal of Adolescent Health, p. 730-736, 2024
Part of Journal of Medical Internet Research, 2024
- DOI for Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study
- Download full text (pdf) of Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study
Part of Implementation Science, 2024
- DOI for The effect of audit and feedback and implementation support on guideline adherence and patient outcomes in cardiac rehabilitation: a study protocol for an open-label cluster-randomized effectiveness-implementation hybrid trial
- Download full text (pdf) of The effect of audit and feedback and implementation support on guideline adherence and patient outcomes in cardiac rehabilitation: a study protocol for an open-label cluster-randomized effectiveness-implementation hybrid trial
Part of Digital Health, 2024
- DOI for To read or not to read - A cross-sectional study of Swedish primary care patients' adoption of patient accessible electronic health records
- Download full text (pdf) of To read or not to read - A cross-sectional study of Swedish primary care patients' adoption of patient accessible electronic health records
Video Consultations and Environmental Sustainability – Usability’s Impact on Long-Term Use
2024
Video Consultations and Environmental Sustainability - Usability's Impact on Long-Term Use.
Part of Studies in Health Technology and Informatics, p. 291-295, 2024
Part of Journal of general internal medicine, 2024