Jamie Luckhaus
PhD student at Department of Women's and Children's Health; Participatory eHealth and Health Data Research Group
- E-mail:
- jamie.luckhaus@uu.se
- Visiting address:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postal address:
- Akademiska sjukhuset
751 85 UPPSALA
Short presentation
Having grown up between Sweden and the U.S., my eyes were opened to sociopolitical differences at a young age, which led to my interdisciplinary background in social and health sciences. At current, I am a third-year PhD candidate in PATH research group, focusing on self-care (and self-management) among people with Parkinson's disease.
Keywords
- public health and development
- digital health technology
- e-Health
- implementation-science
- personal science
- self-care and self-management
- Parkinson's disease
Biography
Jamie´s interdisciplinary research focuses on evolving digital health solutions for supporting self-management of Parkinson´s disease. She applies qualitative, quantitative, mixed-methods, and participatory methods to address research aims.
Research
Other research areas include:
- Healthcare uses and experiences among people with rare diseases.
- Patient-led innovation and co-creation. Karolinska Institutets Patients in the Driver's Seat research program
- Water safety. International Drowning Research Alliance: IDRA

Publications
Selection of publications
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Part of Intelligent Health Systems, p. 263-267, IOS Press, 2025
- DOI for Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
- Download full text (pdf) of Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
-
Part of Health Expectations, 2024
- DOI for Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
- Download full text (pdf) of Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
Recent publications
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Part of Journal of Community Genetics, 2026
- DOI for Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
- Download full text (pdf) of Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
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Part of JMIR Formative Research, 2026
- DOI for Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
- Download full text (pdf) of Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
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A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
Part of JMIR AI, 2026
- DOI for A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
- Download full text (pdf) of A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
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Part of Journal of Parkinson's Disease, 2026
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Part of Frontiers in Public Health, 2026
- DOI for "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
- Download full text (pdf) of "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
All publications
Articles in journal
-
Part of Journal of Community Genetics, 2026
- DOI for Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
- Download full text (pdf) of Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
-
Part of JMIR Formative Research, 2026
- DOI for Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
- Download full text (pdf) of Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
-
A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
Part of JMIR AI, 2026
- DOI for A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
- Download full text (pdf) of A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
-
Part of Journal of Parkinson's Disease, 2026
-
Part of Frontiers in Public Health, 2026
- DOI for "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
- Download full text (pdf) of "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
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Part of Research Involvement and Engagement, 2024
- DOI for Why publish?: An interview study exploring patient innovators’ reasons for and experiences of scientific publishing
- Download full text (pdf) of Why publish?: An interview study exploring patient innovators’ reasons for and experiences of scientific publishing
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A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
Part of Journal of Medical Internet Research, 2024
- DOI for A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
- Download full text (pdf) of A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
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Part of Health Expectations, 2024
- DOI for Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
- Download full text (pdf) of Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
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Part of Health Expectations, p. 1757-1767, 2023
- DOI for A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research
- Download full text (pdf) of A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research
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Part of BMC Health Services Research, 2023
- DOI for Mind the gap: Analysis of two pilot projects of a home telehealth service for persons with complex conditions in a Swedish hospital
- Download full text (pdf) of Mind the gap: Analysis of two pilot projects of a home telehealth service for persons with complex conditions in a Swedish hospital
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Part of BMC Emergency Medicine, 2023
- DOI for Decision-making on the fly: a qualitative study of physicians in out-of-hospital emergency medical services
- Download full text (pdf) of Decision-making on the fly: a qualitative study of physicians in out-of-hospital emergency medical services
Chapters in book
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Part of Intelligent Health Systems, p. 263-267, IOS Press, 2025
- DOI for Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
- Download full text (pdf) of Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
Conference papers
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Part of NordiCHI '24, 2024
- DOI for Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
- Download full text (pdf) of Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden