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A growing concern: Online access to minors’ health records

Hagström, Josefin

2025

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A proof-of-concept study for patient use of open notes with large language models

Salmi, Liz; Lewis, Dana M.; Clarke, Jennifer L.; Dong, Zhiyong et al.

Ingår i JAMIA Open, 2025

• DOI för A proof-of-concept study for patient use of open notes with large language models
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Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles

Hagström, Josefin; Hägglund, Maria; Blease, Charlotte

Ingår i BMC Medical Ethics, 2025

• DOI för Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles
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Adult Proxy Online Record Access - Differences Across Four Countries.

Hägglund, Maria; Scott Duncan, Therese; Hagström, Josefin; Kujala, Sari et al.

Ingår i Studies in Health Technology and Informatics, s. 216-220, 2025

• DOI för Adult Proxy Online Record Access - Differences Across Four Countries.

An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness

Gaber, Sophie; Mattsson, Elisabet; Klarare, Anna; Dawes, Joanna et al.

Ingår i The Gerontologist, 2025

• DOI för An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness
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Cancer Patients' Sharing of Electronic Health Records with Informal Caregivers.

Hägglund, Maria; Rexhepi, Hanife; Blease, Charlotte; Hagström, Josefin et al.

Ingår i Studies in Health Technology and Informatics, s. 1291-1295, 2025

• DOI för Cancer Patients' Sharing of Electronic Health Records with Informal Caregivers.

Changes in documentation after implementing open notes in mental health care: Pre-post mixed methods study

Meier-Diedrich, Eva; Blease, Charlotte; Heinze, Martin; Wördemann, Jonas et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Changes in documentation after implementing open notes in mental health care: Pre-post mixed methods study
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Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease

Luckhaus, Jamie; Riggare, Sara; Kharko, Anna; Blease, Charlotte et al.

Ingår i Intelligent Health Systems, s. 263-267, IOS Press, 2025

• DOI för Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
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eHealth: An Exploration of Adoption and Implementation in Swedish Primary Care from Patients’ and Healthcare Professionals’ Perspectives

Muli, Irene

2025

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Empowering Capabilities of People With Chronic Conditions Supported by Digital Health Technologies: Scoping Review

Fomo, Messaline; Borga, Liyousew G.; Abel, Thomas; Santangelo, Philip S. et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Empowering Capabilities of People With Chronic Conditions Supported by Digital Health Technologies: Scoping Review

Engagement and attrition in digital mental health: current challenges and potential solutions

Smith, Katharine A.; Ward, Thomas; Lambe, Sinead; Ostinelli, Edoardo G. et al.

Ingår i npj Digital Medicine, 2025

• DOI för Engagement and attrition in digital mental health: current challenges and potential solutions
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Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study

Meier-Diedrich, Eva; Esch, Tobias; Hägglund, Maria; Heinze, Martin et al.

Ingår i JMIR Aging, 2025

• DOI för Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study
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General practitioners’ opinions of generative artificial intelligence in the UK: An online survey

Kharko, Anna; Garcia Sanchez, Carolina; Hagström, Josefin; Gaab, Jens et al.

Ingår i Digital Health, 2025

• DOI för General practitioners’ opinions of generative artificial intelligence in the UK: An online survey
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Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners

Kharko, Anna; Locher, Cosima; Torous, John; Rosch, Sophie Anna et al.

Ingår i BMJ Digital Health & AI, 2025

• DOI för Generative artificial intelligence in medicine: a mixed-methods survey of UK general practitioners

'Getting it write' in an era of online electronic health records access in primary care: A qualitative study exploring the needs and requirements of underserved patients and carers

Davidge, Gail; Blease, Charlotte; Brown, Lindsey; Nenadic, Goran et al.

Ingår i Patient Education and Counseling, 2025

• DOI för 'Getting it write' in an era of online electronic health records access in primary care: A qualitative study exploring the needs and requirements of underserved patients and carers
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Global Health in the Age of AI: Charting a Course for Ethical Implementation and Societal Benefit

Morley, Jessica; Hine, Emmie; Roberts, Huw; Sirbu, Renee et al.

Ingår i Minds and Machines, 2025

• DOI för Global Health in the Age of AI: Charting a Course for Ethical Implementation and Societal Benefit

Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study

Vanka, Anita; Johnston, Katherine; Delbanco, Tom; Desroches, Catherine M. et al.

Ingår i JMIR Medical Education, 2025

• DOI för Guidelines for Patient-Centered Documentation in the Era of Open Notes: Qualitative Study
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Health Care Professionals' Experiences and Opinions About Generative AI and Ambient Scribes in Clinical Documentation: Protocol for a Scoping Review

Garcia Sanchez, Carolina; Kharko, Anna; Hägglund, Maria; Riggare, Sara et al.

Ingår i JMIR Research Protocols, 2025

• DOI för Health Care Professionals' Experiences and Opinions About Generative AI and Ambient Scribes in Clinical Documentation: Protocol for a Scoping Review
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Health Care Professionals’ Perspectives on Implementing Patient-Accessible Electronic Health Records in Primary Care: Qualitative Study

Muli, Irene; Cajander, Åsa; Scandurra, Isabella; Hägglund, Maria

Ingår i JMIR Medical Informatics, 2025

• DOI för Health Care Professionals’ Perspectives on Implementing Patient-Accessible Electronic Health Records in Primary Care: Qualitative Study

Hear my concerns and I will take your recommendations seriously

Riggare, Sara

Ingår i The BMJ, 2025

• DOI för Hear my concerns and I will take your recommendations seriously
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Impact of Connected Mental Health on the Work Environment of Mental Health Clinicians: Protocol for a Systematic Literature Review

Premanandan, Shweta; Ouhbi, Sofia; Stadin, Magdalena Ramstedt; Blease, Charlotte et al.

Ingår i JMIR Research Protocols, 2025

• DOI för Impact of Connected Mental Health on the Work Environment of Mental Health Clinicians: Protocol for a Systematic Literature Review

Impact of Patient Online Record Access on Documentation: Scoping Review

Meier-Diedrich, Eva; Lyckblad, Camilla; Davidge, Gail; Hägglund, Maria et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Impact of Patient Online Record Access on Documentation: Scoping Review

Implementering av egenmonitorering i primärvården: En kvalitativ studie baserad på vårdpersonalens perspektiv i Region Uppsala

Giannoglou, Fotiní; Hasso, Raha

2025

Implementeringsforskning för AI-baserad fallprevention: Pilotprojekt Fallprevention i slutenvård

Shebalin, Daniel; Svanlund, Lovisa

2025

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Integration of Psychiatric Advance Directives Into the Patient-Accessible Electronic Health Record: Exploring the Promise and Limitations

Schwarz, Julian; Meier-Diedrich, Eva; Scholten, Matthe; Stephenson, Lucy et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Integration of Psychiatric Advance Directives Into the Patient-Accessible Electronic Health Record: Exploring the Promise and Limitations

Iterative Development of a Semi-Structured Interview Guide to Explore Clinicians' Experiences with Connected Mental Health

Premanandan, Shweta; Ouhbi, Sofia; Stadin, Magdalena; Blease, Charlotte et al.

Ingår i 2025 IEEE 33rd International Requirements Engineering Conference Workshops (REW), s. 598-604, 2025

• DOI för Iterative Development of a Semi-Structured Interview Guide to Explore Clinicians' Experiences with Connected Mental Health

Noble Humbug?: Hard and soft laws on clinical placebo use

Richard, Melina; Ganz, Manuela; Hornstein, Lena Dominique; Stehlik, Bohdan et al.

Ingår i Frontiers in Psychology, 2025

• DOI för Noble Humbug?: Hard and soft laws on clinical placebo use
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PATIENTS’ REFLECTIONS ON THEIR OWN ACCESS TO ELECTRONIC HEALTH RECORDS IN PSORIASIS AND PSORIATIC ARTHRITIS SPECIALIST CARE

Pettersson, S.; Olofsson, A.K. Rickardsdotter; Hägglund, Maria

Ingår i Annals of the Rheumatic Diseases, s. 1620-1621, 2025

• DOI för PATIENTS’ REFLECTIONS ON THEIR OWN ACCESS TO ELECTRONIC HEALTH RECORDS IN PSORIASIS AND PSORIATIC ARTHRITIS SPECIALIST CARE

Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study

Hagström, Josefin; Blease, Charlotte; Harila, Arja; Lähteenmäki, Päivi et al.

Ingår i JMIR Pediatrics and Parenting, 2025

• DOI för Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study
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Placebo, nocebo, and machine learning: How generative AI could shape patient perception in mental health care

Blease, Charlotte

Ingår i JMIR Mental Health, 2025

• DOI för Placebo, nocebo, and machine learning: How generative AI could shape patient perception in mental health care
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Prevalence and types of errors in the electronic health record: protocol for a mixed systematic review

Kharko, Anna; Hägglund, Maria; Angelova, Dafina; Scott Duncan, Therese et al.

Ingår i BMJ Open, 2025

• DOI för Prevalence and types of errors in the electronic health record: protocol for a mixed systematic review
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Protecting Confidentiality in Online Records of Minors at Risk of Harm: Experiences in Pediatric Oncology Care.

Hagström, Josefin; Blease, Charlotte; Harila, Arja; Hägglund, Maria

Ingår i Studies in Health Technology and Informatics, s. 929-933, 2025

• DOI för Protecting Confidentiality in Online Records of Minors at Risk of Harm: Experiences in Pediatric Oncology Care.

Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review

Terceiro, Luciana; Mustafa, Mudassir Imran; Hägglund, Maria; Kharko, Anna

Ingår i JMIR Research Protocols, 2025

• DOI för Research Participants’ Engagement and Retention in Digital Health Interventions Research: Protocol for Mixed Methods Systematic Review
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Seeking public assistance to escape violence: a study on relocation co-created with women with lived experience of homelessness

Vamstad, Johan; Klarare, Anna; Agius, Josefine; Mattsson, Elisabet

Ingår i International Review of Sociology, s. 72-88, 2025

• DOI för Seeking public assistance to escape violence: a study on relocation co-created with women with lived experience of homelessness
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Spetspatients are helping to reshape healthcare

Riggare, Sara; Blease, Charlotte

Ingår i BMJ. British Medical Journal, 2025

• DOI för Spetspatients are helping to reshape healthcare

Stakeholder Perspectives on Trustworthy AI for Parkinson Disease Management Using a Cocreation Approach: Qualitative Exploratory Study

Alves, Beatriz; Alhussein, Ghada; Riggare, Sara; Scott Duncan, Therese et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Stakeholder Perspectives on Trustworthy AI for Parkinson Disease Management Using a Cocreation Approach: Qualitative Exploratory Study
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Talking placebo: a qualitative study of patients' attitudes toward open-label placebo implementation into clinical practice

Frey Nascimento, Antje; Bakis, Berfin; Gaab, Jens; Schneider, Tobias et al.

Ingår i Frontiers in Psychology, 2025

• DOI för Talking placebo: a qualitative study of patients' attitudes toward open-label placebo implementation into clinical practice
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The Evolution of Patient Empowerment and Its Impact on Health Care's Future

Mesko, Bertalan; DeBronkart, Dave; Dhunnoo, Pranavsingh; Arvai, Nora et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för The Evolution of Patient Empowerment and Its Impact on Health Care's Future
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The Gender Gap in EHR Experiences and Preferences: Results from an International Cross-Sectional Survey of Patients.

Kharko, Anna; Hagström, Josefin; Simola, Saija; Cajander, Åsa et al.

Ingår i Studies in Health Technology and Informatics, s. 939-943, 2025

• DOI för The Gender Gap in EHR Experiences and Preferences: Results from an International Cross-Sectional Survey of Patients.
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To connect or not connect: long-term adoption of video consultations, and reasons for discontinuing use

Muli, Irene; Hvitfeldt, Helena; Cajander, Åsa; Jäderlund Hagstedt, Lovisa et al.

Ingår i Journal of Telemedicine and Telecare, s. 572-584, 2025

• DOI för To connect or not connect: long-term adoption of video consultations, and reasons for discontinuing use
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Toward the emancipation of “medically unexplained” and energy-limiting conditions: Contesting and reimagining psy through the lens of feminist disability studies

Hunt, Joanne

Ingår i Feminism and Psychology, s. 187-205, 2025

• DOI för Toward the emancipation of “medically unexplained” and energy-limiting conditions: Contesting and reimagining psy through the lens of feminist disability studies
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A Nordic Perspective on Patient Online Record Access and the European Health Data Space

Hägglund, Maria; Kharko, Anna; Bärkås, Annika; Blease, Charlotte et al.

Ingår i Journal of Medical Internet Research, 2024

• DOI för A Nordic Perspective on Patient Online Record Access and the European Health Data Space
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A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study

Mazzocato, Pamela; Luckhaus, Jamie; Malmqvist Castillo, Moa; Burnett, Johan et al.

Ingår i Journal of Medical Internet Research, 2024

• DOI för A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
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A perspective-taking university course for cancer survivors, loved ones and healthcare professionals

Sandén, Ulrika; Nilsson, Fredrik; Thulesius, Hans; Hägglund, Maria et al.

Ingår i Social Sciences & Humanities Open, 2024

• DOI för A perspective-taking university course for cancer survivors, loved ones and healthcare professionals

Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online

Hagström, Josefin; Blease, Charlotte; Moll, Jonas; Rexhepi, Hanife et al.

Ingår i Studies in Health Technology and Informatics, s. 1422-1423, 2024

• DOI för Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
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Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden

Hagström, Josefin; Blease, Charlotte; Scandurra, Isabella; Moll, Jonas et al.

Ingår i BMJ Paediatrics Open, 2024

• DOI för Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden
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Affordance trajectories and the usefulness of online records access among older adults in Sweden

Huvila, Isto; Rexhepi, Hanife; Moll, Jonas; Zolbin, Maedeh Ghorbanian et al.

Ingår i Digital Health, 2024

• DOI för Affordance trajectories and the usefulness of online records access among older adults in Sweden
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Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Reinius, Maria; Al‐Adili, Lina; Riggare, Sara; Rodriguez, Inka Helispää et al.

Ingår i Health Expectations, 2024

• DOI för Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study

Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden

Luckhaus, Jamie L.; Clareborn, Anna; Hägglund, Maria; Riggare, Sara

Ingår i Health Expectations, 2024

• DOI för Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
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Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden

Kujala, Sari; Simola, Saija; Wang, Bo; Soone, Hedvig et al.

Ingår i International Journal of Medical Informatics, 2024

• DOI för Benchmarking usability of patient portals in Estonia, Finland, Norway, and Sweden
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