Jamie Luckhaus
Doktorand vid Institutionen för kvinnors och barns hälsa; E-hälsa och hälsodata
- E-post:
- jamie.luckhaus@uu.se
- Besöksadress:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postadress:
- Akademiska sjukhuset
751 85 UPPSALA
Kort presentation
Att ha växt upp mellan Sverige och USA väckte mitt intresse för sociala och medicinska frågor, och har lett till min tvärvetenskapliga bakgrund inom folkhälsa. Jag är 3:e års doktorand på PATH forskargrupp, där jag forskar kring egenvård bland personer med Parkinson.
Nyckelord
- ehälsa
- folkhälsovetenskap
- implementering
- egenvård
- parkinson
Biografi
Jamies tvärvetenskapliga forskning fokuserar på digitala hälsolösningar för att stödja egenvård av Parkinsons sjukdom. Hon tillämpar kvalitativa, kvantitativa, blandade metoder och participatory/co-design metoder för att nå forskningsmål.
Forskning
Andra forskningsområden inkluderar:
- Vård erfarenheter och upplevelser bland personer med sällsynta diagoser. Centrum för sällsynta diagnoser
- Patientledd innovation och samskapande metoder. Karolinska Institutets Patienten i Förarsätet
- Drunkningsförebyggande och vattensäkerhet. International Drowning Research Alliance: IDRA
Publikationer
Urval av publikationer
-
Ingår i Intelligent Health Systems, s. 263-267, IOS Press, 2025
- DOI för Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
- Ladda ner fulltext (pdf) av Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
-
Ingår i Health Expectations, 2024
- DOI för Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
- Ladda ner fulltext (pdf) av Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
Senaste publikationer
-
Ingår i Journal of Community Genetics, 2026
- DOI för Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
- Ladda ner fulltext (pdf) av Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
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Ingår i JMIR Formative Research, 2026
- DOI för Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
- Ladda ner fulltext (pdf) av Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
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A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
Ingår i JMIR AI, 2026
- DOI för A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
- Ladda ner fulltext (pdf) av A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
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Ingår i Journal of Parkinson's Disease, 2026
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Ingår i Frontiers in Public Health, 2026
- DOI för "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
- Ladda ner fulltext (pdf) av "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
Alla publikationer
Artiklar i tidskrift
-
Ingår i Journal of Community Genetics, 2026
- DOI för Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
- Ladda ner fulltext (pdf) av Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
-
Ingår i JMIR Formative Research, 2026
- DOI för Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
- Ladda ner fulltext (pdf) av Comparing Stakeholders’ Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey
-
A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
Ingår i JMIR AI, 2026
- DOI för A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
- Ladda ner fulltext (pdf) av A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study
-
Ingår i Journal of Parkinson's Disease, 2026
-
Ingår i Frontiers in Public Health, 2026
- DOI för "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
- Ladda ner fulltext (pdf) av "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
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Ingår i Research Involvement and Engagement, 2024
- DOI för Why publish?: An interview study exploring patient innovators’ reasons for and experiences of scientific publishing
- Ladda ner fulltext (pdf) av Why publish?: An interview study exploring patient innovators’ reasons for and experiences of scientific publishing
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A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
Ingår i Journal of Medical Internet Research, 2024
- DOI för A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
- Ladda ner fulltext (pdf) av A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study
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Ingår i Health Expectations, 2024
- DOI för Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
- Ladda ner fulltext (pdf) av Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
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Ingår i Health Expectations, s. 1757-1767, 2023
- DOI för A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research
- Ladda ner fulltext (pdf) av A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research
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Ingår i BMC Health Services Research, 2023
- DOI för Mind the gap: Analysis of two pilot projects of a home telehealth service for persons with complex conditions in a Swedish hospital
- Ladda ner fulltext (pdf) av Mind the gap: Analysis of two pilot projects of a home telehealth service for persons with complex conditions in a Swedish hospital
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Ingår i BMC Emergency Medicine, 2023
- DOI för Decision-making on the fly: a qualitative study of physicians in out-of-hospital emergency medical services
- Ladda ner fulltext (pdf) av Decision-making on the fly: a qualitative study of physicians in out-of-hospital emergency medical services
Kapitel i böcker, delar av antologi
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Ingår i Intelligent Health Systems, s. 263-267, IOS Press, 2025
- DOI för Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
- Ladda ner fulltext (pdf) av Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
Konferensbidrag
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Ingår i NordiCHI '24, 2024
- DOI för Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden
- Ladda ner fulltext (pdf) av Impact of healthcare education on preferences for electronic health records: Results from national survey of patient users in Sweden