Sara Riggare

A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study

Luckhaus, Jamie; Scott Duncan, Therese; Kharko, Anna; Clareborn, Anna et al.

Ingår i JMIR AI, 2026

• DOI för A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study

"ChatGPT knows my Parkinson's": Perspectives of people with Parkinson's disease on use of generative AI.

Luckhaus, Jamie; Kharko, Anna; Scott Duncan, Therese; Riggare, Sara et al.

Ingår i Journal of Parkinson's Disease, 2026

• DOI för "ChatGPT knows my Parkinson's": Perspectives of people with Parkinson's disease on use of generative AI.

Making patient experience actionable: applying importance-performance analysis to guide improvements in Swedish healthcare

Scott Duncan, Therese; Lind, Louise; Aslund, Li; Dieker, Eva et al.

Ingår i Frontiers in Health Services, 2026

• DOI för Making patient experience actionable: applying importance-performance analysis to guide improvements in Swedish healthcare
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Patients' and Health Care Professionals' Experiences of a Digital Self-Management System for Asthma: Qualitative Study

Jäderlund Hagstedt, Lovisa; Hvitfeldt, Helena; Riggare, Sara; Petersson, Göran et al.

Ingår i JMIR Human Factors, 2026

• DOI för Patients' and Health Care Professionals' Experiences of a Digital Self-Management System for Asthma: Qualitative Study
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"The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden

Luckhaus, Jamie Linnea; Scott Duncan, Therese; Hellqvist, Carina; Riggare, Sara

Ingår i Frontiers in Public Health, 2026

• DOI för "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
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A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study

Luckhaus, Jamie; Scott Duncan, Therese; Kharko, Anna; Clareborn, Anna et al.

Ingår i JMIR AI, 2026

• DOI för A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study

"ChatGPT knows my Parkinson's": Perspectives of people with Parkinson's disease on use of generative AI.

Luckhaus, Jamie; Kharko, Anna; Scott Duncan, Therese; Riggare, Sara et al.

Ingår i Journal of Parkinson's Disease, 2026

• DOI för "ChatGPT knows my Parkinson's": Perspectives of people with Parkinson's disease on use of generative AI.

Making patient experience actionable: applying importance-performance analysis to guide improvements in Swedish healthcare

Scott Duncan, Therese; Lind, Louise; Aslund, Li; Dieker, Eva et al.

Ingår i Frontiers in Health Services, 2026

• DOI för Making patient experience actionable: applying importance-performance analysis to guide improvements in Swedish healthcare
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Patients' and Health Care Professionals' Experiences of a Digital Self-Management System for Asthma: Qualitative Study

Jäderlund Hagstedt, Lovisa; Hvitfeldt, Helena; Riggare, Sara; Petersson, Göran et al.

Ingår i JMIR Human Factors, 2026

• DOI för Patients' and Health Care Professionals' Experiences of a Digital Self-Management System for Asthma: Qualitative Study
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"The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden

Luckhaus, Jamie Linnea; Scott Duncan, Therese; Hellqvist, Carina; Riggare, Sara

Ingår i Frontiers in Public Health, 2026

• DOI för "The more you learn, the more you can influence" — learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden
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Clinical competencies for using generative AI in patient care

Lewis, Marcus; Fraile Navarro, David; Blease, Charlotte; Shah, Rupal et al.

Ingår i The BMJ, 2025

• DOI för Clinical competencies for using generative AI in patient care

How generative AI affects patient agency

Blease, Charlotte; Lewis, Marcus; Riggare, Sara; Fraile Navarro, David et al.

Ingår i The BMJ, 2025

• DOI för How generative AI affects patient agency

Generative AI and the changing dynamics of clinical consultations

Fraile Navarro, David; Lewis, Marcus; Blease, Charlotte; Shah, Rupal et al.

Ingår i BMJ. British Medical Journal, 2025

• DOI för Generative AI and the changing dynamics of clinical consultations

General practitioners’ adoption of generative artificial intelligence in clinical practice in the UK: An updated online survey

Blease, Charlotte; Hagström, Josefin; Garcia Sanchez, Carolina; Kharko, Anna et al.

Ingår i Digital Health, 2025

• DOI för General practitioners’ adoption of generative artificial intelligence in clinical practice in the UK: An updated online survey
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Stakeholder Perspectives on Trustworthy AI for Parkinson Disease Management Using a Cocreation Approach: Qualitative Exploratory Study

Alves, Beatriz; Alhussein, Ghada; Riggare, Sara; Scott Duncan, Therese et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Stakeholder Perspectives on Trustworthy AI for Parkinson Disease Management Using a Cocreation Approach: Qualitative Exploratory Study

Spetspatients are helping to reshape healthcare

Riggare, Sara; Blease, Charlotte

Ingår i BMJ. British Medical Journal, 2025

• DOI för Spetspatients are helping to reshape healthcare

Hear my concerns and I will take your recommendations seriously

Riggare, Sara

Ingår i The BMJ, 2025

• DOI för Hear my concerns and I will take your recommendations seriously
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The Evolution of Patient Empowerment and Its Impact on Health Care's Future

Mesko, Bertalan; DeBronkart, Dave; Dhunnoo, Pranavsingh; Arvai, Nora et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för The Evolution of Patient Empowerment and Its Impact on Health Care's Future
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Why publish?: An interview study exploring patient innovators’ reasons for and experiences of scientific publishing

Dahlberg, Marie; Luckhaus, Jamie Linnea; Hasson, Henna; Jansson, Hanna et al.

Ingår i Research Involvement and Engagement, 2024

• DOI för Why publish?: An interview study exploring patient innovators’ reasons for and experiences of scientific publishing
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Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: a qualitative case study

Reinius, Maria; Al‐Adili, Lina; Riggare, Sara; Rodriguez, Inka Helispää et al.

Ingår i Health Expectations, 2024

• DOI för Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: a qualitative case study
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Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners

Richards, Dawn P.; Mulhall, Hetty; Belton, Joletta; de Souza, Savia et al.

Ingår i Research Involvement and Engagement, 2024

• DOI för Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners
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A Nordic Perspective on Patient Online Record Access and the European Health Data Space

Hägglund, Maria; Kharko, Anna; Bärkås, Annika; Blease, Charlotte et al.

Ingår i Journal of Medical Internet Research, 2024

• DOI för A Nordic Perspective on Patient Online Record Access and the European Health Data Space
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Safety-­netting strategies for primary and emergency care: A codesign study with patients, carers and clinicians in Sweden

Wannheden, Carolina; Hagman, Johanna; Riggare, Sara; Pukk Härenstam, Karin et al.

Ingår i BMJ Open, 2024

• DOI för Safety-­netting strategies for primary and emergency care: A codesign study with patients, carers and clinicians in Sweden
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PARKIN is not required to sustain OXPHOS function in adult mammalian tissues

Filograna, Roberta; Gerlach, Jule; Choi, Hae-Na; Rigoni, Giovanni et al.

Ingår i npj Parkinson's Disease, 2024

• DOI för PARKIN is not required to sustain OXPHOS function in adult mammalian tissues
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Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P. et al.

Ingår i BMJ. British Medical Journal, 2024

• DOI för Conferences led by patients facilitate democratic decision making in healthcare

Conferences led by patients facilitate democratic decision making in healthcare

Ajayi, Oluwafemi; Gee, Patrick; Mulhall, Hetty; Richards, Dawn P et al.

Ingår i The BMJ, 2024

• DOI för Conferences led by patients facilitate democratic decision making in healthcare

Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden

Luckhaus, Jamie L.; Clareborn, Anna; Hägglund, Maria; Riggare, Sara

Ingår i Health Expectations, 2024

• DOI för Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden
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A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research

Wannheden, Carolina; Riggare, Sara; Luckhaus, Jamie Linnea; Jansson, Hanna et al.

Ingår i Health Expectations, s. 1757-1767, 2023

• DOI för A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research
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Empowered patients and informal care-givers as partners?: a survey study of healthcare professionals' perceptions

Scott Duncan, Therese; Riggare, Sara; Bylund, Ami; Hägglund, Maria et al.

Ingår i BMC Health Services Research, 2023

• DOI för Empowered patients and informal care-givers as partners?: a survey study of healthcare professionals' perceptions
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Patients' and clinicians' views on the appropriate use of safety-netting advice in consultations: an interview study from Sweden

Fernholm, Rita; Wannheden, Carolina; Trygg Lycke, Sofia; Riggare, Sara et al.

Ingår i BMJ Open, 2023

• DOI för Patients' and clinicians' views on the appropriate use of safety-netting advice in consultations: an interview study from Sweden
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The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia

Hägglund, Maria; Kharko, Anna; Hagström, Josefin; Bärkås, Annika et al.

Ingår i Journal of Medical Internet Research, 2023

• DOI för The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
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Patient lead users experience of the COVID-19 pandemic: a qualitative interview study

Jansson, Hanna; Stenfors, Terese; Riggare, Sara; Hasson, Henna et al.

Ingår i BMJ Open, 2022

• DOI för Patient lead users experience of the COVID-19 pandemic: a qualitative interview study
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Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers

Scott Duncan, Therese; Engström, Jon; Riggare, Sara; Hägglund, Maria et al.

Ingår i Journal of Participatory Medicine, 2022

• DOI för Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers
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Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?

Riggare, Sara; Hägglund, Maria; Bredenoord, Annelien L.; de Groot, Martijn et al.

Ingår i Journal of Parkinson's Disease, s. 1927-1933, 2021

• DOI för Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?
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Individually Tailored Internet-Based Cognitive-Behavioral Therapy for Daily Functioning in Patients with Parkinson's Disease: A Randomized Controlled Trial.

Kraepelien, Martin; Schibbye, Robert; Månsson, Kristoffer; Sundström, Christopher et al.

Ingår i Journal of Parkinson's Disease, s. 653-664, 2020

• DOI för Individually Tailored Internet-Based Cognitive-Behavioral Therapy for Daily Functioning in Patients with Parkinson's Disease: A Randomized Controlled Trial.

Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA

Salmi, Liz; Brudnicki, Selina; Isono, Maho; Riggare, Sara et al.

Ingår i BMJ Open, 2020

• DOI för Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA
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Patient advocates respond to 'Utilizing Patient Advocates…' by Feeney et al

Riggare, Sara; Stecher, Benjamin; Stamford, Jon

Ingår i Health Expectations, s. 972-973, 2020

• DOI för Patient advocates respond to 'Utilizing Patient Advocates…' by Feeney et al
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Patient researchers - the missing link?

Riggare, Sara

Ingår i Nature Medicine, s. 1507-1507, 2020

• DOI för Patient researchers - the missing link?

Dyskinesia Matters

Cenci, M. Angela; Riggare, Sara; Pahwa, Rajesh; Eidelberg, David et al.

Ingår i Movement Disorders, s. 392-396, 2019

• DOI för Dyskinesia Matters

"You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease

Riggare, Sara; Scott Duncan, Therese; Hvitfeldt, Helena; Hägglund, Maria

Ingår i BMC Medical Informatics and Decision Making, 2019

• DOI för "You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease
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From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients

Scott Duncan, Therese; Riggare, Sara; Koch, Sabine; Sharp, Lena et al.

Ingår i Journal of Medical Internet Research, 2019

• DOI för From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients
• Ladda ner fulltext (pdf) av From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients

Precision Medicine in Parkinson's Disease -: Exploring Patient-Initiated Self-Tracking

Riggare, Sara; Hägglund, Maria

Ingår i Journal of Parkinson's Disease, s. 441-446, 2018

• DOI för Precision Medicine in Parkinson's Disease -: Exploring Patient-Initiated Self-Tracking
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Patient-driven N-of-1 in Parkinson's Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia

Riggare, Sara; Unruh, Kenton T; Sturr, Jasmine; Domingos, Josefa et al.

Ingår i Methods of information in medicine, 2017

• DOI för Patient-driven N-of-1 in Parkinson's Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia
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Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson's disease in Sweden.

Riggare, Sara; Höglund, Pär J; Hvitfeldt Forsberg, Helena; Eftimovska, Elena et al.

Ingår i Health Informatics Journal, 2017

• DOI för Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson's disease in Sweden.
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Health Care Professionals' Experiences and Opinions About Generative AI and Ambient Scribes in Clinical Documentation: Protocol for a Scoping Review

Garcia Sanchez, Carolina; Kharko, Anna; Hägglund, Maria; Riggare, Sara et al.

Ingår i JMIR Research Protocols, 2025

• DOI för Health Care Professionals' Experiences and Opinions About Generative AI and Ambient Scribes in Clinical Documentation: Protocol for a Scoping Review
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Empowering Capabilities of People With Chronic Conditions Supported by Digital Health Technologies: Scoping Review

Fomo, Messaline; Borga, Liyousew G.; Abel, Thomas; Santangelo, Philip S. et al.

Ingår i Journal of Medical Internet Research, 2025

• DOI för Empowering Capabilities of People With Chronic Conditions Supported by Digital Health Technologies: Scoping Review

Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review

Dahlberg, Marie; Lek, Madelen; Castillo, Moa Malmqvist; Bylund, Ami et al.

Ingår i BMJ Open, 2023

• DOI för Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review
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Patient-driven innovations reported in peer-reviewed journals: a scoping review

Reinius, Maria; Mazzocato, Pamela; Riggare, Sara; Bylund, Ami et al.

Ingår i BMJ Open, 2022

• DOI för Patient-driven innovations reported in peer-reviewed journals: a scoping review
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A Long Way to Go: Patient Perspectives on Digital Health for Parkinson's Disease

Riggare, Sara; Stamford, Jon; Hägglund, Maria

Ingår i Journal of Parkinson's Disease, 2021

• DOI för A Long Way to Go: Patient Perspectives on Digital Health for Parkinson's Disease
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Deep Phenotyping of Parkinson's Disease

Dorsey, E. Ray; Omberg, Larsson; Waddell, Emma; Adams, Jamie L. et al.

Ingår i Journal of Parkinson's Disease, s. 855-873, 2020

• DOI för Deep Phenotyping of Parkinson's Disease
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Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease

Luckhaus, Jamie; Riggare, Sara; Kharko, Anna; Blease, Charlotte et al.

Ingår i Intelligent Health Systems, s. 263-267, IOS Press, 2025

• DOI för Co-Designing a "win-win" in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson's Disease
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