Sara Riggare
Researcher at Department of Women's and Children's Health; Participatory eHealth and Health Data Research Group
- E-mail:
- sara.riggare@uu.se
- Visiting address:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postal address:
- Akademiska sjukhuset
751 85 UPPSALA
Researcher at Centrum för forskning om funktionshinder
- E-mail:
- sara.riggare@cff.uu.se
- Visiting address:
- BMC, Husargatan 3
- Postal address:
- Box 564
751 22 UPPSALA
Download contact information for Sara Riggare at Centrum för forskning om funktionshinder
- ORCID:
- 0000-0002-2256-7310
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Research
Sara Riggare, (MSc, PhD), is a patient researcher at the department of Women's and Children's health. Her dissertation was defended at Radboud University, the Netherlands, and titled: “Personal science in Parkinson’s disease: a patient-led research study” (download link here). Personal science is a framework of study for single subject research that provides a structure for using your own observations and data to find answers for your own questions.
Sara has used personal science to improve her own selfcare for Parkinson’s disease, and also investigated how other persons with Parkinson’s disease use personal science. Her research is focused on personal science, self-tracking, Quantified Self, and patient-led research.
Publications
Recent publications
- Conferences led by patients facilitate democratic decision making in healthcare (2024)
- Conferences led by patients facilitate democratic decision making in healthcare (2024)
- Why publish? (2024)
- PARKIN is not required to sustain OXPHOS function in adult mammalian tissues (2024)
- A Nordic Perspective on Patient Online Record Access and the European Health Data Space (2024)
All publications
Articles
- Conferences led by patients facilitate democratic decision making in healthcare (2024)
- Conferences led by patients facilitate democratic decision making in healthcare (2024)
- Why publish? (2024)
- PARKIN is not required to sustain OXPHOS function in adult mammalian tissues (2024)
- A Nordic Perspective on Patient Online Record Access and the European Health Data Space (2024)
- Balancing feeling 'prepared' without feeling 'devoured' (2024)
- Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study (2024)
- Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners (2024)
- Safety-netting strategies for primary and emergency care: A codesign study with patients, carers and clinicians in Sweden (2024)
- Objectives and outcomes of patient-driven innovations published in peer-reviewed journals (2023)
- Patients' and clinicians' views on the appropriate use of safety-netting advice in consultations (2023)
- The NORDeHEALTH 2022 Patient Survey (2023)
- Empowered patients and informal care-givers as partners? (2023)
- A rocky road but worth the drive (2023)
- Patient lead users experience of the COVID-19 pandemic (2022)
- Patient-driven innovations reported in peer-reviewed journals (2022)
- Meeting the Burden of Self-management (2022)
- Ethical Aspects of Personal Science for Persons with Parkinson’s Disease (2021)
- A Long Way to Go (2021)
- Deep Phenotyping of Parkinson's Disease (2020)
- Individually Tailored Internet-Based Cognitive-Behavioral Therapy for Daily Functioning in Patients with Parkinson's Disease (2020)
- Patient researchers - the missing link? (2020)
- Patient advocates respond to 'Utilizing Patient Advocates…' by Feeney et al (2020)
- Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA (2020)
- Dyskinesia Matters (2019)
- "You have to know why you're doing this" (2019)
- From Information Seekers to Innovators (2019)
- Precision Medicine in Parkinson's Disease - (2018)
- Patients are doing it for themselves (2017)
- Patient-driven N-of-1 in Parkinson's Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia (2017)
