Sara Riggare

Researcher at Department of Women's and Children's Health; Participatory eHealth and Health Data Research Group

E-mail:
sara.riggare@uu.se
Visiting address:
MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala
Postal address:
Akademiska sjukhuset
751 85 UPPSALA

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Researcher at Centrum för forskning om funktionshinder

E-mail:
sara.riggare@uu.se
Visiting address:
BMC, Husargatan 3
Postal address:
Box 564
751 22 UPPSALA

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ORCID:
0000-0002-2256-7310

Short presentation

Sara Riggare (MSc, PhD) is a researcher living with Parkinson’s disease who pioneers innovative approaches to health and selfcare. Combining personal experience with scientific rigor, she advances the field of chronic disease management. Her research spans digital health, co-design, and self-tracking, centering the patient as a knowledgeable partner. She challenges traditional healthcare models and promotes new ways for patients to contribute to knowledge, practice, and innovation.

Keywords

  • patient knowledge
  • patient expertise
  • patient empowerment
  • self-tracking
  • personal science
  • digital health
  • chronic conditions
  • selfcare
  • Quantified Self
  • citizen science

Research

Sara Riggare’s research can be described under the umbrella of Advancing Patient-Led Knowledge, Self-Care, and System Innovation through Personal Science and Participatory Research, as it consistently explores how individuals living with chronic conditions can generate, apply, and share their own knowledge to improve health outcomes and influence healthcare systems. Through personal science, she investigates how self-tracking and experimentation empower patients to better manage their own care. At the same time, her work in participatory research and co-design highlights the value of involving patients as equal partners in developing digital tools, shaping research agendas, and driving innovation from within the system.

Sara Riggare

Publications

Recent publications

All publications

Articles in journal

Articles, review/survey

Chapters in book