Tove Godskesen
Associated Researcher at Department of Public Health and Caring Sciences; Centre for Research Ethics & Bioethics (CRB)
- E-mail:
- tove.godskesen@uu.se
- Visiting address:
- BMC, Box 564, Husargatan 3, Uppsala
- Postal address:
- Box 564
751 22 UPPSALA
Short presentation
Tove Godskesen, RN, researcher and associate professor in medical ethics at Uppsala University. Her research is mostly related to participation in clinical studies, such as autonomy and the consent process, the researcher's ethical challenges, and how care and research can best be integrated into clinical everyday life. Also ethical issues related to palliative care is of great interest.

Publications
Selection of publications
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Dignity at stake: Caring for persons with impaired autonomy
Part of Nursing Ethics, p. 104-115, 2020
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Should the deceased be listed as authors?
Part of Journal of Medical Ethics, p. 331-338, 2019
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Selektiv rapportering av kliniska prövningar
Part of Dagens Medicin, 2019
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Part of Harvard Public Health Review, p. 1-10, 2018
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Part of BMC Public Health, 2018
- DOI for Public awareness and individual responsibility needed for judicious use of antibiotics: a qualitative study of public beliefs and perceptions
- Download full text (pdf) of Public awareness and individual responsibility needed for judicious use of antibiotics: a qualitative study of public beliefs and perceptions
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WS18 Waiting for lung transplant, manifold experiences: a literature review
Part of WS18 Waiting for lung transplant, manifold experiences:, 2018
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Quality of online information about phase I clinical cancer trials in Sweden, Denmark and Norway
Part of European Journal of Cancer Care, 2018
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Part of Journal of Empirical Research on Human Research Ethics, p. 475-485, 2018
- DOI for When Nursing Care and Clinical Trials Coincide: A Qualitative Study of the Views of Nordic Oncology and Hematology Nurses on Ethical Work Challenges
- Download full text (pdf) of When Nursing Care and Clinical Trials Coincide: A Qualitative Study of the Views of Nordic Oncology and Hematology Nurses on Ethical Work Challenges
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Experiences of Individuals Awaiting Lung Transplantation
Part of Respiratory care, p. 1535-1540, 2018
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God vård innebär att sällsynta sjukdomar ges resurser
Part of Dagens Medicin, 2018
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How to counter undeserving authorship
Part of Insights: the UKSG journal, p. 1-6, 2018
- DOI for How to counter undeserving authorship
- Download full text (pdf) of How to counter undeserving authorship
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Part of Journal of Oncology Pharmacy Practice, p. 679-682, 2017
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Part of European Journal of Cancer Care, p. 516-523, 2016
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Part of European Journal of Cancer Care, p. 133-141, 2015
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Patients in Clinical Cancer Trials: Understanding, Motivation and Hope
2015
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Part of Supportive Care in Cancer, p. 3137-3142, 2013
Recent publications
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Part of International Journal of Qualitative Studies on Health and Well-being, 2026
- DOI for Balancing hope and uncertainty: family perspectives on lung transplantation in cystic fibrosis: a qualitative study
- Download full text (pdf) of Balancing hope and uncertainty: family perspectives on lung transplantation in cystic fibrosis: a qualitative study
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Scoping Reviews Should Describe: Not Score
Part of Learned Publishing, 2026
- DOI for Scoping Reviews Should Describe: Not Score
- Download full text (pdf) of Scoping Reviews Should Describe: Not Score
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Part of BMC Palliative Care, 2026
- DOI for Satisfaction with end-of-life care and self-rated health among bereaved family members: a descriptive cross-sectional study in an intensive care context
- Download full text (pdf) of Satisfaction with end-of-life care and self-rated health among bereaved family members: a descriptive cross-sectional study in an intensive care context
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Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
Part of Journal of Advanced Nursing, p. 4167-4184, 2026
- DOI for Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
- Download full text (pdf) of Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
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Why children’s research assent matters: Exploring three dimensions of autonomy
Part of Nursing Ethics, 2026
All publications
Articles in journal
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Part of International Journal of Qualitative Studies on Health and Well-being, 2026
- DOI for Balancing hope and uncertainty: family perspectives on lung transplantation in cystic fibrosis: a qualitative study
- Download full text (pdf) of Balancing hope and uncertainty: family perspectives on lung transplantation in cystic fibrosis: a qualitative study
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Scoping Reviews Should Describe: Not Score
Part of Learned Publishing, 2026
- DOI for Scoping Reviews Should Describe: Not Score
- Download full text (pdf) of Scoping Reviews Should Describe: Not Score
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Part of BMC Palliative Care, 2026
- DOI for Satisfaction with end-of-life care and self-rated health among bereaved family members: a descriptive cross-sectional study in an intensive care context
- Download full text (pdf) of Satisfaction with end-of-life care and self-rated health among bereaved family members: a descriptive cross-sectional study in an intensive care context
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Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
Part of Journal of Advanced Nursing, p. 4167-4184, 2026
- DOI for Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
- Download full text (pdf) of Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
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Why children’s research assent matters: Exploring three dimensions of autonomy
Part of Nursing Ethics, 2026
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Part of Intensive & Critical Care Nursing, 2026
- DOI for Losing a close person to death in ICU: A thematic analysis of bereaved family members’ experiences of end-of-life care
- Download full text (pdf) of Losing a close person to death in ICU: A thematic analysis of bereaved family members’ experiences of end-of-life care
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Part of Nursing Ethics, p. 2227-2240, 2025
- DOI for Ethical reflections of healthcare staff on 'consentless measures' in somatic care: A qualitative study
- Download full text (pdf) of Ethical reflections of healthcare staff on 'consentless measures' in somatic care: A qualitative study
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Fraudulent Research Falsely Attributed to Credible Researchers: —An Emerging Challenge for Journals?
Part of Learned Publishing, 2025
- DOI for Fraudulent Research Falsely Attributed to Credible Researchers: —An Emerging Challenge for Journals?
- Download full text (pdf) of Fraudulent Research Falsely Attributed to Credible Researchers: —An Emerging Challenge for Journals?
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Navnet mitt på en artikkel jeg aldri skrev — med data som aldri fantes.
Part of Khrono, 2025
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Part of BMC Palliative Care, p. 5-11, 2025
- DOI for Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study
- Download full text (pdf) of Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study
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Critical care nurses’ experiences ofethical challenges in end-of-life care
Part of Nursing Ethics, p. 424-436, 2025
- DOI for Critical care nurses’ experiences ofethical challenges in end-of-life care
- Download full text (pdf) of Critical care nurses’ experiences ofethical challenges in end-of-life care
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Part of Journal of Hospice and Palliative Nursing, 2025
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Part of BMC Nursing, 2025
- DOI for Lived experiences for individuals with cystic fibrosis who have undergone lung transplantation: a qualitative study
- Download full text (pdf) of Lived experiences for individuals with cystic fibrosis who have undergone lung transplantation: a qualitative study
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Part of BMC Medical Ethics, 2024
- DOI for Nurses’ experience of nasogastric tubefeeding under restraint for Anorexia Nervosain a psychiatric hospital
- Download full text (pdf) of Nurses’ experience of nasogastric tubefeeding under restraint for Anorexia Nervosain a psychiatric hospital
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Part of Research Ethics, p. 494-518, 2023
- DOI for Research ethics committee members’ perspectives on paediatric research: a qualitative interview study
- Download full text (pdf) of Research ethics committee members’ perspectives on paediatric research: a qualitative interview study
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Part of BMC Medical Ethics, p. 23, 2023
- DOI for Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals' perceptions and experiences.
- Download full text (pdf) of Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals' perceptions and experiences.
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Part of Dagens medisin, 2023
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Part of Learned Publishing, p. 554-563, 2023
- DOI for How do journals publishing palliative and end‐of‐life care research report ethical approval and informed consent?
- Download full text (pdf) of How do journals publishing palliative and end‐of‐life care research report ethical approval and informed consent?
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Part of Journal of Medical Internet Research, 2023
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Part of Trials, 2023
- DOI for Challenges regarding informed consent in recruitment to clinical research: a qualitative study of clinical research nurses' experiences
- Download full text (pdf) of Challenges regarding informed consent in recruitment to clinical research: a qualitative study of clinical research nurses' experiences
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Part of International Journal of Qualitative Studies on Health and Well-being, 2023
- DOI for Nurses' challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study
- Download full text (pdf) of Nurses' challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study
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YouTube as a source of information on clinical trials for paediatric cancer
Part of Information, Communication and Society, p. 716-729, 2023
- DOI for YouTube as a source of information on clinical trials for paediatric cancer
- Download full text (pdf) of YouTube as a source of information on clinical trials for paediatric cancer
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Dignity in bodily care at the end of life in a nursing home: an ethnographic study
Part of BMC Geriatrics, 2022
- DOI for Dignity in bodily care at the end of life in a nursing home: an ethnographic study
- Download full text (pdf) of Dignity in bodily care at the end of life in a nursing home: an ethnographic study
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Part of BMC Palliative Care, 2022
- DOI for Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study
- Download full text (pdf) of Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study
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Predatory conferences: a systematic scoping review
Part of BMJ Open, 2022
- DOI for Predatory conferences: a systematic scoping review
- Download full text (pdf) of Predatory conferences: a systematic scoping review
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Part of BMC Nursing, 2021
- DOI for End-of-life care for people with advanced dementia and pain: a qualitative study in Swedish nursing homes
- Download full text (pdf) of End-of-life care for people with advanced dementia and pain: a qualitative study in Swedish nursing homes
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Integrity at the end of life in the intensive care unit: a qualitative study of nurses’ views
Part of Annals of Intensive Care, 2021
- DOI for Integrity at the end of life in the intensive care unit: a qualitative study of nurses’ views
- Download full text (pdf) of Integrity at the end of life in the intensive care unit: a qualitative study of nurses’ views
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Part of JMIR Research Protocols, 2021
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An Effort Worth Making: A Qualitative Study of How Swedes Respond to Antibiotic Resistance
Part of Public Health Ethics, p. 1-11, 2021
- DOI for An Effort Worth Making: A Qualitative Study of How Swedes Respond to Antibiotic Resistance
- Download full text (pdf) of An Effort Worth Making: A Qualitative Study of How Swedes Respond to Antibiotic Resistance
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Why unethical papers should be retracted
Part of Journal of Medical Ethics, 2021
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Predatory nursing journals: A case study of author prevalence and characteristics
Part of Nursing Ethics, p. 823-833, 2021
- DOI for Predatory nursing journals: A case study of author prevalence and characteristics
- Download full text (pdf) of Predatory nursing journals: A case study of author prevalence and characteristics
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Are cancer patients better off if they participate in clinical trials?: A mixed methods study
Part of BMC Cancer, 2020
- DOI for Are cancer patients better off if they participate in clinical trials?: A mixed methods study
- Download full text (pdf) of Are cancer patients better off if they participate in clinical trials?: A mixed methods study
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Part of Clinical Ethics, p. 29-38, 2020
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Part of International Journal of Antimicrobial Agents, 2020
- DOI for Preferences regarding antibiotic treatment and the role of antibiotic resistance: a discrete choice experiment
- Download full text (pdf) of Preferences regarding antibiotic treatment and the role of antibiotic resistance: a discrete choice experiment
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Dignity at stake: Caring for persons with impaired autonomy
Part of Nursing Ethics, p. 104-115, 2020
-
Should the deceased be listed as authors?
Part of Journal of Medical Ethics, p. 331-338, 2019
-
Selektiv rapportering av kliniska prövningar
Part of Dagens Medicin, 2019
-
Part of Harvard Public Health Review, p. 1-10, 2018
-
Part of BMC Public Health, 2018
- DOI for Public awareness and individual responsibility needed for judicious use of antibiotics: a qualitative study of public beliefs and perceptions
- Download full text (pdf) of Public awareness and individual responsibility needed for judicious use of antibiotics: a qualitative study of public beliefs and perceptions
-
Quality of online information about phase I clinical cancer trials in Sweden, Denmark and Norway
Part of European Journal of Cancer Care, 2018
-
Part of Journal of Empirical Research on Human Research Ethics, p. 475-485, 2018
- DOI for When Nursing Care and Clinical Trials Coincide: A Qualitative Study of the Views of Nordic Oncology and Hematology Nurses on Ethical Work Challenges
- Download full text (pdf) of When Nursing Care and Clinical Trials Coincide: A Qualitative Study of the Views of Nordic Oncology and Hematology Nurses on Ethical Work Challenges
-
Experiences of Individuals Awaiting Lung Transplantation
Part of Respiratory care, p. 1535-1540, 2018
-
God vård innebär att sällsynta sjukdomar ges resurser
Part of Dagens Medicin, 2018
-
How to counter undeserving authorship
Part of Insights: the UKSG journal, p. 1-6, 2018
- DOI for How to counter undeserving authorship
- Download full text (pdf) of How to counter undeserving authorship
-
Part of Journal of Oncology Pharmacy Practice, p. 679-682, 2017
-
Part of European Journal of Cancer Care, p. 516-523, 2016
-
Part of European Journal of Cancer Care, p. 133-141, 2015
-
Part of Supportive Care in Cancer, p. 3137-3142, 2013
Articles, review/survey
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Implementation, barriers, and improvement strategies for CRediT: A scoping review
Part of Accountability in Research, p. 1-22, 2025
- DOI for Implementation, barriers, and improvement strategies for CRediT: A scoping review
- Download full text (pdf) of Implementation, barriers, and improvement strategies for CRediT: A scoping review
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Patients' Experiences of Telehealth in Palliative Home Care: Scoping Review
Part of Journal of Medical Internet Research, 2020
- DOI for Patients' Experiences of Telehealth in Palliative Home Care: Scoping Review
- Download full text (pdf) of Patients' Experiences of Telehealth in Palliative Home Care: Scoping Review
Comprehensive doctoral thesis
Conference papers
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WS18 Waiting for lung transplant, manifold experiences: a literature review
Part of WS18 Waiting for lung transplant, manifold experiences:, 2018