Mats G. Hansson
Professor vid Institutionen för folkhälso- och vårdvetenskap; Centrum för forsknings- & bioetik (CRB)
- Telefon:
- 018-471 61 97
- Mobiltelefon:
- 076-341 20 50
- E-post:
- mats.hansson@uu.se
- Besöksadress:
- BMC, Box 564, Husargatan 3, Uppsala
- Postadress:
- Box 564
751 22 UPPSALA
Professor emeritus vid Institutionen för folkhälso- och vårdvetenskap; Centrum för forsknings- & bioetik (CRB)
- Mobiltelefon:
- 076-341 20 50
- E-post:
- mats.hansson@uu.se
- Besöksadress:
- BMC, Box 564, Husargatan 3, Uppsala
- Postadress:
- Box 564
751 22 UPPSALA
- Akademiska meriter:
- BA, PhD, Associate Professor
Publikationer
Senaste publikationer
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Ingår i Orphanet Journal of Rare Diseases, 2026
- DOI för Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
- Ladda ner fulltext (pdf) av Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
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Ingår i AI and Ethics, s. 4843-4853, 2025
- DOI för “Code of ethical practice” for sharing and access to personal data for AI-/ ML-based technologies in rare diseases genetic NBS research project: a collaborative construction in a European IMI project
- Ladda ner fulltext (pdf) av “Code of ethical practice” for sharing and access to personal data for AI-/ ML-based technologies in rare diseases genetic NBS research project: a collaborative construction in a European IMI project
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Ingår i BMJ Open, 2025
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Ingår i British Journal of Clinical Pharmacology, 2025
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Ingår i AI and Ethics, s. 4843-4853, 2025
Alla publikationer
Artiklar i tidskrift
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Ingår i AI and Ethics, s. 4843-4853, 2025
- DOI för “Code of ethical practice” for sharing and access to personal data for AI-/ ML-based technologies in rare diseases genetic NBS research project: a collaborative construction in a European IMI project
- Ladda ner fulltext (pdf) av “Code of ethical practice” for sharing and access to personal data for AI-/ ML-based technologies in rare diseases genetic NBS research project: a collaborative construction in a European IMI project
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Ingår i BMJ Open, 2025
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Ingår i British Journal of Clinical Pharmacology, 2025
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Ingår i AI and Ethics, s. 4843-4853, 2025
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Ingår i BMJ Open, 2025
- DOI för Determination of prednisolone concentration in human breast milk and plasma of breastfed infants: study protocol of a Swedish multicentre low-intervention clinical trial
- Ladda ner fulltext (pdf) av Determination of prednisolone concentration in human breast milk and plasma of breastfed infants: study protocol of a Swedish multicentre low-intervention clinical trial
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Patient preferences in genetic newborn screening for rare diseases: study protocol
Ingår i BMJ Open, 2024
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Ingår i Scandinavian Journal of Public Health, s. 1019-1025, 2024
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Ingår i Scandinavian Journal of Public Health, s. 1019-1025, 2024
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Patient preferences in genetic newborn screening for rare diseases: study protocol
Ingår i BMJ Open, 2024
- DOI för Patient preferences in genetic newborn screening for rare diseases: study protocol
- Ladda ner fulltext (pdf) av Patient preferences in genetic newborn screening for rare diseases: study protocol
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Ingår i BMC Medical Ethics, 2023
- DOI för Patients accept therapy using embryonic stem cells for Parkinson's disease: a discrete choice experiment
- Ladda ner fulltext (pdf) av Patients accept therapy using embryonic stem cells for Parkinson's disease: a discrete choice experiment
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Ingår i BMC Medical Ethics, 2023
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Ingår i BMC Medical Ethics, 2023
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Ingår i BMC Rheumatology, 2023
- DOI för Physical function and severe side effects matter most to patients with RA (< 5 years): a discrete choice experiment assessing preferences for personalized RA treatment
- Ladda ner fulltext (pdf) av Physical function and severe side effects matter most to patients with RA (< 5 years): a discrete choice experiment assessing preferences for personalized RA treatment
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A proposal for an international Code of Conduct for data sharing in genomics
Ingår i Developing World Bioethics, s. 344-357, 2023
- DOI för A proposal for an international Code of Conduct for data sharing in genomics
- Ladda ner fulltext (pdf) av A proposal for an international Code of Conduct for data sharing in genomics
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Ingår i PLOS ONE, 2023
- DOI för Genetic newborn screening and digital technologies: A project protocol based on a dual approach to shorten the rare diseases diagnostic path in Europe
- Ladda ner fulltext (pdf) av Genetic newborn screening and digital technologies: A project protocol based on a dual approach to shorten the rare diseases diagnostic path in Europe
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Ingår i Human Mutation, s. 717-733, 2022
- DOI för The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases
- Ladda ner fulltext (pdf) av The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases
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Ingår i Human Mutation, 2022
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Ingår i BMC Medical Ethics, 2022
- DOI för Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment
- Ladda ner fulltext (pdf) av Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment
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Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study
Ingår i BMC Medical Ethics, 2022
- DOI för Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study
- Ladda ner fulltext (pdf) av Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study
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Ingår i BMC Medical Ethics, 2022
- DOI för Would you consider donating your left-over embryos to treat Parkinson’s disease? Interviews with individuals that underwent IVF in Sweden
- Ladda ner fulltext (pdf) av Would you consider donating your left-over embryos to treat Parkinson’s disease? Interviews with individuals that underwent IVF in Sweden
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Ingår i Patient Education and Counseling, s. 2577-2585, 2021
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Ingår i Patient Education and Counseling, s. 2577-2585, 2021
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Ingår i Patient Related Outcome Measures, s. 649-660, 2021
- DOI för Communicating test results from a general health checkup: the public’s preferences from a discrete choice experiment survey
- Ladda ner fulltext (pdf) av Communicating test results from a general health checkup: the public’s preferences from a discrete choice experiment survey
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Ingår i European Journal of Cardiovascular Nursing, s. 676-683, 2021
- DOI för Good general health and lack of family history influence the underestimation of cardiovascular risk: A cross sectional study
- Ladda ner fulltext (pdf) av Good general health and lack of family history influence the underestimation of cardiovascular risk: A cross sectional study
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Ingår i Arthritis Research & Therapy, 2020
- DOI för Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients
- Ladda ner fulltext (pdf) av Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients
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Ingår i Läkartidningen, 2020
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Pretend Play as an Intervention for Children With Cancer: A Feasibility Study
Ingår i Journal of Pediatric Oncology Nursing, s. 65-75, 2020
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Ingår i Genetics in Medicine, s. 2381-2389, 2019
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Ingår i BMC Medical Ethics, 2019
- DOI för Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study
- Ladda ner fulltext (pdf) av Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study
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Ingår i JOURNAL OF NEUROMUSCULAR DISEASES, s. 161-172, 2019
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Ingår i Patient Education and Counseling, s. 1528-1534, 2019
- DOI för Exploring research participants' perceptions of cardiovascular risk information-Room for improvement and empowerment
- Ladda ner fulltext (pdf) av Exploring research participants' perceptions of cardiovascular risk information-Room for improvement and empowerment
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Short-term mental distress in research participants after receiving cardiovascular risk information
Ingår i PLOS ONE, 2019
- DOI för Short-term mental distress in research participants after receiving cardiovascular risk information
- Ladda ner fulltext (pdf) av Short-term mental distress in research participants after receiving cardiovascular risk information
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Ingår i Patient, s. 297-305, 2019
- DOI för Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis
- Ladda ner fulltext (pdf) av Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis
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Ingår i Journal of Community Genetics, s. 267-280, 2019
- DOI för "A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening
- Ladda ner fulltext (pdf) av "A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening
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Genetics and risk - an exploration of conceptual approaches to genetic risk
Ingår i Journal of Risk Research, s. 101-108, 2018
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Ingår i BMC Rheumatology, 2018
- DOI för Perceptions of first-degree relatives of patients with rheumatoid arthritis about lifestyle modifications and pharmacological interventions to reduce the risk of rheumatoid arthritis development: a qualitative interview study
- Ladda ner fulltext (pdf) av Perceptions of first-degree relatives of patients with rheumatoid arthritis about lifestyle modifications and pharmacological interventions to reduce the risk of rheumatoid arthritis development: a qualitative interview study
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Ingår i Patient Education and Counseling, s. 422-427, 2018
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Ingår i Journal of Risk Research, s. 167-189, 2018
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Ingår i Patient, s. 263-266, 2017
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Ingår i Arthritis care & research, s. 1558-1565, 2017
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Genetics and risk – an exploration of conceptual approaches to genetic risk
Ingår i Journal of Risk Research, s. 101-108, 2017
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Ingår i Patient, s. 263-266, 2017
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Ingår i Value in Health, 2017
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The risk of re-identification versus the need to identify individuals in rare disease research
Ingår i European Journal of Human Genetics, s. 1553-1558, 2016
- DOI för The risk of re-identification versus the need to identify individuals in rare disease research
- Ladda ner fulltext (pdf) av The risk of re-identification versus the need to identify individuals in rare disease research
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Ingår i Journal of Medical Genetics, s. 798-799, 2016
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Ingår i Journal of Medical Genetics, s. 798-799, 2016
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Ingår i BMJ Open, 2016
- DOI för Perceptions of risk and predictive testing held by the first-degree relatives of patients with rheumatoid arthritis in England, Austria and Germany: a qualitative study
- Ladda ner fulltext (pdf) av Perceptions of risk and predictive testing held by the first-degree relatives of patients with rheumatoid arthritis in England, Austria and Germany: a qualitative study
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The risk of re-identification versus the need to identify individuals in rare disease research
Ingår i European Journal of Human Genetics, s. 1553-1558, 2016
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Ingår i Public Health Genomics, s. 307-313, 2016
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Freedom of Choice about Incidental Findings can frustrate participants’ true preferences
Ingår i Bioethics, s. 203-209, 2016
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Ethics rounds: An appreciated form of ethics support
Ingår i Nursing Ethics, s. 203-213, 2016
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Ingår i Public Health Genomics, s. 307-313, 2016
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Ingår i Rheumatology, s. 110-110, 2015
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Broad Consent for Research With Biological Samples: Workshop Conclusions
Ingår i American Journal of Bioethics, s. 34-42, 2015
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Ingår i European Journal of Cancer Care, s. 133-141, 2015
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The Swedish CArdioPulmonary BioImage Study: objectives and design
Ingår i Journal of Internal Medicine, s. 645-659, 2015
- DOI för The Swedish CArdioPulmonary BioImage Study: objectives and design
- Ladda ner fulltext (pdf) av The Swedish CArdioPulmonary BioImage Study: objectives and design
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Ethics rounds do not improve the handling of ethical issues by psychiatric staff
Ingår i Nordic Journal of Psychiatry, s. 1700-1707, 2015
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Ingår i Tissue Antigens, s. 372-372, 2015
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International Charter of principles for sharing bio-specimens and data
Ingår i European Journal of Human Genetics, s. 721-728, 2015
- DOI för International Charter of principles for sharing bio-specimens and data
- Ladda ner fulltext (pdf) av International Charter of principles for sharing bio-specimens and data
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Öppenheten förstör chansen till patent
Ingår i Svenska dagbladet, 2015
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Incidental findings: the time is not yet ripe for a policy for biobanks
Ingår i European Journal of Human Genetics, s. 437-441, 2014
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ERIC: a new governance tool for Biobanking
Ingår i European Journal of Human Genetics, s. 1055-1057, 2014
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Why participating in (certain) scientific research is a moral duty
Ingår i Journal of Medical Ethics, s. 325-328, 2014
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Ethical Review Boards are poor advocates for patient perspectives
Ingår i Research Ethics, s. 169-181, 2014
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Making researchers moral: Why trustworthiness requires more than ethics guidelines and review
Ingår i Research Ethics, s. 29-46, 2014
- DOI för Making researchers moral: Why trustworthiness requires more than ethics guidelines and review
- Ladda ner fulltext (pdf) av Making researchers moral: Why trustworthiness requires more than ethics guidelines and review
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Children's Views on Long-Term Screening for Type 1 Diabetes
Ingår i Journal of Empirical Research on Human Research Ethics, s. 1-9, 2014
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Rare diseases and now rare data?
Ingår i Nature reviews genetics, s. 372, 2013
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Ingår i Supportive Care in Cancer, s. 3137-3142, 2013
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Finding ways to improve the use of biobanks
Ingår i Nature Medicine, s. 815-815, 2013
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International guidelines on biobank research leave researchers in ambiguity: why is this so?
Ingår i European Journal of Epidemiology, s. 449-451, 2013
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Transition to noncurative end-of-life care in paediatric oncology: a nationwide follow-up in Sweden
Ingår i Acta Paediatrica, s. 744-748, 2013
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Rare diseases and now rare data?
Ingår i Nature reviews genetics, s. 372-372, 2013
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Patients would benefit from simplified ethical review and consent procedure
Ingår i The Lancet Oncology, s. 451-453, 2013
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Ingår i Bioethics, s. 485-492, 2013
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Ingår i Physical Culture and Sport. Studies and Research, s. 21-32, 2013
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Biobanks: Validate gene findings before telling donors
Ingår i Nature, s. 455-455, 2012
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Ingår i Biopreservation and Biobanking, s. 45-47, 2012
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Ingår i Cancer Epidemiology, s. 575-578, 2012
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Ingår i Theoretical Medicine and Bioethics, s. 313-323, 2012
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Ingår i Archives of Disease in Childhood, s. 561-563, 2012
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Beyond the Individual: Sources of Attitudes Towards Rule Violation in Sport
Ingår i Sport, Ethics and Philosophy, s. 467-479, 2012
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Biobank research: who benefits from individual consent?
Ingår i The BMJ, 2011
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Biobank Research and Consent: Authors' reply to Sheehan
Ingår i The BMJ, 2011
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Is medical ethics doing its job?: Introduction
Ingår i Journal of Internal Medicine, s. 366-369, 2011
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Biobanking Within the European Regulatory Framework: Opportunities and Obstacles
Ingår i Biopreservation and Biobanking, s. 165-167, 2011
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The Risks and Benefits of Re-Consent
Ingår i Science, s. 306-306, 2011
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Ingår i Journal of Empirical Research on Human Research Ethics, s. 68-75, 2011
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Gene Doping and the Responsibility of Bioethicists
Ingår i Sport, Ethics and Philosophy, s. 149-160, 2011
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In search of the missing subject: narrative identity and posthumous wronging
Ingår i Studies in History and Philosophy of Science Part C, s. 340-346, 2010
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Ingår i Medicine, Health care and Philosophy, s. 169-175, 2010
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Changing defaults in biobank research could save lives too
Ingår i European Journal of Epidemiology, s. 65-68, 2010
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Hypothetical and factual willingness to participate in biobank research
Ingår i European Journal of Human Genetics, s. 1261-1264, 2010
- DOI för Hypothetical and factual willingness to participate in biobank research
- Ladda ner fulltext (pdf) av Hypothetical and factual willingness to participate in biobank research
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Taking the patient's side: the ethics of pharmacogenetics
Ingår i Personalized Medicine, s. 75-85, 2010
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Ulysses contracts for the doctor and for the patient
Ingår i Contemporary Clinical Trials, s. 202-206, 2010
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Ethical Issues in Cancer Register Follow-Up of Hormone Treatment in Adolescence
Ingår i Public Health Ethics, s. 30-36, 2009
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Concern for privacy in relation to age during physical examination of children: an exploratory study
Ingår i Acta Paediatrica, s. 1349-1354, 2009
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Practical matters, rather than lack of trust, motivate non-participation in a long-term cohort trial
Ingår i Pediatric Diabetes, s. 408-412, 2009
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Ingår i Acta Obstetricia et Gynecologica Scandinavica, s. 1128-1132, 2009
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Ingår i Journal of Medical Ethics, s. 450-455, 2009
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Ingår i European Journal of Human Genetics, s. 1544-1549, 2009
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Biobanks: questioning distinctions
Ingår i Science, s. 797-797, 2009
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Ingår i Clinical Ethics, s. 69-74, 2008
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Ingår i BMJ. British Medical Journal, 2008
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Opt-out from biobanks better respects patients' autonomy
Ingår i BMJ. British Medical Journal, 2008
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Ethics takes time, but not that long
Ingår i BMC Medical Ethics, s. 1-7, 2007
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Developing ethical competence in health care organizations
Ingår i Nursing Ethics, s. 825-837, 2007
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Can the Dead be Brought into Disrepute?
Ingår i Theoretical Medicine and Bioethics, s. 137-149, 2007
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Queen Christina's moral claim on the living: Justification of a tenacious moral intuition
Ingår i Medicine, Health care and Philosophy, s. 321-327, 2007
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Ingår i Scandinavian Journal of Public Health, s. 148-156, 2007
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For the safety and benefit of current and future patients
Ingår i Pathobiology (Basel), s. 198-205, 2007
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Ingår i Journal of Genetic Counseling, s. 105-117, 2007
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Ethical framework for previously collected biobank samples
Ingår i Nature Biotechnology, s. 973-976, 2007
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Commentary: Isolated Stem Cells - Patentable as Cultural Artifacts?
Ingår i Stem Cells, s. 1507-1510, 2007
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Ingår i European Journal of Public Health, s. 433-440, 2006
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Parents' perspectives on research involving children.
Ingår i Ups J Med Sci, s. 73-86, 2006
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Combining efficiency and concerns about integrity when using human biobanks.
Ingår i Stud Hist Philos Biol Biomed Sci, s. 520-32, 2006
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Should donors be allowed to give broad consent to future biobank research?
Ingår i Lancet Oncol, s. 266-9, 2006
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”We are white coats whirling round”: moral distress in Swedish pharmacies
Ingår i Pharmacy World & Science, s. 223-229, 2005
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Science and society: International perspectives on engaging the public in neuroethics.
Ingår i Nat Rev Neurosci, s. 977-82, 2005
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Building on relationships of trust in biobank research.
Ingår i J Med Ethics, s. 415-8, 2005
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Quality of life in patients with multiple endocrine neoplasia type 1 (MEN 1).
Ingår i Fam Cancer, s. 27-33, 2003
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Ingår i Journal of Medical Genetics, s. 689-694, 2002
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Vilket värde har våra värderingar kring genteknik?
Ingår i Kungl. Skogs- och Lantbruksakademiens Tidskrift, s. 31-35, 2002
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Ethical management of hereditary cancer information.
Ingår i Acta Oncol, s. 305-8, 1999
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Introduction to discussion on ethical matters
Ingår i Acta Agriculture Scandinavica, s. 62-66, 1998
Artiklar, forskningsöversikt
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Ingår i Orphanet Journal of Rare Diseases, 2026
- DOI för Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
- Ladda ner fulltext (pdf) av Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
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The case for open science: rare diseases
Ingår i JAMIA Open, s. 472-486, 2020
- DOI för The case for open science: rare diseases
- Ladda ner fulltext (pdf) av The case for open science: rare diseases
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From Epigenetic Associations to Biological and Psychosocial Explanations in Mental Health.
Ingår i Progress in Molecular Biology and Translational Science, s. 299-323, 2018
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Ingår i Journal of general internal medicine, 2014
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Ingår i Journal of general internal medicine, 2014
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Ingår i Critical reviews in oncology/hematology, s. 187-197, 2013
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Ingår i British Journal of Cancer, s. 8-12, 2009
Böcker
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Makadam Förlag, 2019
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The Private Sphere: An Emotional Territory and Its Agent
Springer Science + Business Media B.V., 2008
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The Use of Human Biobanks: Ethical, Social, Economical and Legal Aspects
Uppsala University, 2001
Kapitel i böcker, delar av antologi
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Incidental Findings: The Time Is not yet Ripe for a Policy for Biobanks
Ingår i Ethics, Law and Governance of Biobanking, Springer, 2015
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Ingår i Information and Law in Transition, s. 325-338, Liber, 2015
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Ingår i PGD and Embryo Selection, s. 82-92, The Nordic Committee on Bioethics, Copenhagen 2006, 2006
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Biobanks as Resources for Health
Ingår i Biobanks as Resources for Health, s. 9-20, Uppsala universitet, 2003
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Ingår i Annales. Acadmiae Regiae Scientiarum Upsaliensis 35, s. 57-65, 2003
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In the interests of efficiency and integrity
Ingår i The Use of Human Biobanks, s. 35-40, Uppsala University, 2001
Konferensbidrag
Manuskript (preprint)
Samlingsverk (redaktörskap)
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Biobanks as resources for health
Uppsala University, 2003
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Forskningsrådsnämnden, Stockholm, 1999
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GENOM-gruppen c/o Medicinska forskningsrådet, Stockholm, 1994
Övriga
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Research Data Inquiry investigating national exceptions under the General Data Protection Regulation
2016
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Ingår i European Journal of Human Genetics, s. 1835-1835, 2016
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Swedish biotechnology and bioethics go hand in hand
2002