Recommendations & reports
We share the results of our work in sicentific journals, books and reports. Our recommendations are based on sound research to help decision makers make sound decisions.
Peer-review published guidance
ENAI Recommendations on the ethical use of Artificial Intelligence in Education
Part of International Journal for Educational Integrity, 2023
A proposal for an international Code of Conduct for data sharing in genomics
Part of Developing World Bioethics, p. 344-357, 2023
Guidelines for Research Ethics and Research Integrity in Citizen Science
Part of Research Ideas and Outcomes, 2022
International Charter of principles for sharing bio-specimens and data
Part of European Journal of Human Genetics, p. 721-728, 2015
Policy recommendations from the Centre
Our policy briefs offer collated information based on sound research to support decision-making processes.
Fighting antibiotic resistance: We can do better!
Antibiotic resistance is a global threat to health and development. But the way we behave can either slow this process down or speed it up. Antibiotic resistance is a collective problem. It is also a shared responsibility. And it is not limited to medical antibiotic use. Whether it is choices made in the dairy aisle or by ensuring vaccinations are up-to-date before travelling, the effectiveness of our efforts to to curb antibiotic resistance will depend on our behaviour. We need to raise awareness of how individuals’ actions contribute to antibiotic resistance and learn why they use antibiotics responsibly, why they sometimes do not, and what encourages them to do better.
This policy brief contains Mirko Ancillotti's recommendations for fighting antibiotic resistance.
Treating resignation syndrome
Resignation syndrome affects children and adolescents who seek asylum in Sweden. SBU (Statens beredning för medicinsk och social utvärdering or, in English the Swedish agency for health technology assessment and assessment of social services) recently reviewed the scientific basis for the treatment of resignation syndrome and found a lack of evidence for the method currently being practiced. New research suggests that the method may even contribute to occurrence and maintaining of disease. Indicating that resignation syndrome should be treated with children separated from the rest of the family. Further, the results show that the issuing of residence permits should not be included as part of the treatment. And the author stresses that in the treatment of resignation syndrome, the risk of simulated disease must be considered.
This policy brief contains Karl Sallin's recommendations for treating resignation syndrome.
Informing about cardiovascular risk
Any health care interventions should be made after careful consideration of the benefits and risks for the individual. But experts and the general public sometimes have different views on what the benefit actually is. Understanding how the public perceives risk is important for designing the information correctly: to build on the individual's pre-understanding, to bridge knowledge gaps, and to correct inaccuracies. From a societal perspective, it is also important to ensure that health care efforts are equal. By examining which groups benefit from the efforts, they can be directed towards particularly vulnerable groups and individuals.
This policy brief contains Åsa Grauman's recommendations for how best to inform the public about the risk of cardiovascular disease.
Reports on Centre activities
We follow up and evaluate our activities. Below we publish our latest reports.
Research ethics & bioethics at Uppsala University 2023
The Centre for Research Ethics & Bioethics (CRB) explores current ethical issues through philosophical, empirical, and normative approaches. Our work builds capacity and contributes to the knowledge base for research & innovation, policy, management, and clinical practice.
CRB is an interfaculty centre that is governed by a board of University representatives and led by a Director. The Centre is administratively associated with the Department of Public Health and Caring Sciences at the Faculty of Medicine, where all Centre staff are employed. At the Department level, Niklas Juth, Professor in Clinical Medical Ethics, serves as a research group leader and answers to the Department board. The Centre is led by Director Stefan Eriksson, Associate Professor and Senior Lecturer in Research Ethics, who answers to the Centre board. Both roles are supported by Coordinator Josepine Fernow.
This report was written by Josepine Fernow, with contributions from Anna Holm Bodin, Niklas Juth, Stefan Eriksson, and Malin Rick Folkegård. Uppsala University diary number V1.0.1: Pubcare 2024/180.
Fernow, J., Holm Bodin, A., Juth, N., Eriksson, S., & Rick Folkegård, M. (2024). Research ethics & bioethics at Uppsala University 2023: Annual report from the Centre for Research Ethics & Bioethics (CRB) at Uppsala University. Zenodo. DOI: 10.5281/zenodo.11488491
Recommendations and briefs from our projects & networks
We are part of European research consortia and national and international networks where our work results in recommendations for different stakeholders.
The PREFER recommendations for patient preferences in drug development
- The PREFER consortium. (2022). PREFER Recommendations - Why, when and how to assess and use patient preferences in medical product decision-making. Zenodo. DOI: 10.5281/zenodo.6592304
- The PREFER consortium. (2022). The PREFER Recommendations in brief. DOI: 10.5281/zenodo.6470918
The SIENNA recommendations on ethics & human rights for new and emerging technologies
- SIENNA project, (2021, March 9) Ethics & human rights for new and emerging technologies: SIENNA project Policy Brief #4. (Version V1.0) Zenodo. DOI: 10.5281/zenodo.4590094
Policy briefs from MINDtheGEPs
- Solera, Cristina., Balzano, Angela., Turco, Federica., Pisacane, Lucio., Fernow, Josepine (2023). No data- No policies! The MINDtheGEPs approach to evidence-based policies for Gender Equality Plans. Zenodo, DOI: 10.5281/zenodo.7785413
- Cipriani, Nastassja., Solera, Cristina., & Holm Bodin, Anna. (2023). Gender quotas & positive action: An attack on meritocracy?. Zenodo. DOI: 10.5281/zenodo.10024373
The STARBIOS2 Guidelines on RRI implementation in Bioscience
- Dechlich, A., et al: RRI implementation in bioscience organisations: Guidelines from the STARBIOS2 project, Uppsala University, 2019
Guidance from SUHF to Swedish universities on deviations from good research practice
- Sveriges universitets- och högskoleförbund. (2023). Vägledning för lärosätens arbete med att förebygga, hantera och följa upp misstankar om avvikelser från god forskningssed (REK 2020:3 REV).
The IAP recommendations on combatting predatory practices
- InterAcademy Partnership. (2022). Combatting predatory academic journals and conferences.
Older books, reports and newsletters
The Centre has published books and reports, and between 2014-2017, we published a regular newsletter on the ethical, legal and social aspects of biobanking.
Biobank perspectives: 2014-2017
- Centre for Research Ethics & Bioethics. (2017). Biobank perspectives 1:2017. Zenodo. DOI: 10.5281/zenodo.8296803
- Centre for Research Ethics & Bioethics. (2016). Biobank perspectives 4:2016. Zenodo. DOI: 10.5281/zenodo.8296839
- Centre for Research Ethics & Bioethics. (2016). Biobank perspectives 3:2016. Zenodo. DOI: 10.5281/zenodo.8297515
- Centre for Research Ethics & Bioethics. (2016). Biobank perspectives 2:2016. Zenodo. DOI: 10.5281/zenodo.8297544
- Centre for Research Ethics & Bioethics. (2016). Biobank perspectives 1:2016. Zenodo. DOI: 10.5281/zenodo.8301065
- Centre for Research Ethics & Bioethics. (2015). Biobank perspectives 4:2015. Zenodo. DOI: 10.5281/zenodo.8301086
- Centre for Research Ethics & Bioethics. (2015). Biobank perspectives 3:2015. Zenodo. DOI: 10.5281/zenodo.8301102
- Centre for Research Ethics & Bioethics. (2015). Biobank perspectives 2:2015. Zenodo. DOI: 10.5281/zenodo.8301108
- Centre for Research Ethics & Bioethics. (2015). Biobank perspectives 1:2015. Zenodo. DOI: 10.5281/zenodo.8301128
- Centre for Research Ethics & Bioethics. (2014). Biobank perspectives 3:2014. Zenodo. DOI: 10.5281/zenodo.8301133
- Centre for Research Ethics & Bioethics. (2014). Biobank perspectives 2:2014. Zenodo. DOI: 10.5281/zenodo.8301160
- Centre for Research Ethics & Bioethics. (2014). Biobank perspectives 1:2014. Zenodo. DOI: 10.5281/zenodo.8301173
Books and reports published before 2015
- Segerdahl, P. (2014). Thinking about ethics. Zenodo. https://doi.org/10.5281/zenodo.8296569
- Segerdahl, P. (2014). Tänker om etik. Zenodo. https://doi.org/10.5281/zenodo.8296535
- Hansson, M. G., & Levin, M. (eds) (2003). Biobanks as resources for health. Zenodo. DOI: doi.org/10.5281/zenodo.8296648
- Hansson, M. et al. (2001). The Use of Human Biobanks — Ethical, Social, Economical and Legal Aspects. Zenodo. DOI: 10.5281/zenodo.10617140