Publications
We publish the results of our research in scientific journals and in books. We publish dissertations, recommendations and reports and participate in the debate - both in media and through The Ethics Blog. Our latest publications are listed below.
Our most recent publications
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Part of Leukemia and Lymphoma, p. 1-11, 2026
Article in journal
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Part of BMC Medical Ethics, 2026
Article in journal
- DOI for Social and ethical implications of AI-based facial technologies in medicine and healthcare: a scoping review
- Download full text (pdf) of Social and ethical implications of AI-based facial technologies in medicine and healthcare: a scoping review
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Mat och måltider. Att välja rätt och laga gott.
Appell förlag, 2026
Book
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Using consentless practices on medical wards—A qualitative study
Part of Nursing Ethics, p. 2280-2292, 2026
Article in journal
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Part of BMC Medical Ethics, 2026
Article in journal
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Part of AI and Ethics, 2026
Article in journal
- DOI for Why applied AI ethics in healthcare requires the integration of empirical inquiry and normative ethical analysis
- Download full text (pdf) of Why applied AI ethics in healthcare requires the integration of empirical inquiry and normative ethical analysis
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Part of The Lancet Oncology, 2026
Article in journal
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Part of Journal of human nutrition and dietetics, 2026
Article in journal
- DOI for Moral Distress and Intention to Leave Current Position Among Registered Dietitians: A Cross-Sectional Study
- Download full text (pdf) of Moral Distress and Intention to Leave Current Position Among Registered Dietitians: A Cross-Sectional Study
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Part of BMC Medical Ethics, 2026
Article in journal
- DOI for Assessing ethical competence and ethical climate: development and psychometric testing of the Clinical Ethics Support Measurement Instrument (CES-MI)
- Download full text (pdf) of Assessing ethical competence and ethical climate: development and psychometric testing of the Clinical Ethics Support Measurement Instrument (CES-MI)
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Part of Trials, 2026
Article in journal
- DOI for Children's participation in assent to paediatric oncology research: experiences of children, siblings and parents
- Download full text (pdf) of Children's participation in assent to paediatric oncology research: experiences of children, siblings and parents
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Metapersonal Care as Philosophical Health
Part of Journal of Evaluation In Clinical Practice, 2026
Article in journal
- DOI for Metapersonal Care as Philosophical Health
- Download full text (pdf) of Metapersonal Care as Philosophical Health
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Functionalism in AI Consciousness: Ethical Reflections on the Relevance of the Biological Body
Part of Computers with Salaries and Cemeteries, p. 157-166, Springer Nature, 2026
Chapter in book
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Part of Filosofisk Tidskrift, p. 11-21, 2026
Article in journal
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Part of Medicine, Health care and Philosophy, 2026
Article in journal
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Interpreter use in Nordic paediatric oncology care: -a multicentre cross-sectional study
Part of Acta Oncologica, p. 721-729, 2026
Article in journal
- DOI for Interpreter use in Nordic paediatric oncology care: -a multicentre cross-sectional study
- Download full text (pdf) of Interpreter use in Nordic paediatric oncology care: -a multicentre cross-sectional study
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Ethics of Health Data Infrastructures: Toward Continuous Governance and Public Trust
Part of Journal of Medical Internet Research, 2026
Article in journal
- DOI for Ethics of Health Data Infrastructures: Toward Continuous Governance and Public Trust
- Download full text (pdf) of Ethics of Health Data Infrastructures: Toward Continuous Governance and Public Trust
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Part of European Journal of Human Genetics, p. 1176-1184, 2026
Article in journal
- DOI for Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta
- Download full text (pdf) of Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta
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Part of Behavioral and Brain Sciences, 2026
Article in journal
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Part of Journal of Bioethical Inquiry, 2026
Article in journal
- DOI for Third-Party Perspective in Medical Research Ethics: A Case Series of Clinical Trials Involving Individuals with Sexual Interest in Children
- Download full text (pdf) of Third-Party Perspective in Medical Research Ethics: A Case Series of Clinical Trials Involving Individuals with Sexual Interest in Children
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Part of BMC Psychology, 2026
Article, review/survey
- DOI for A systematic review culturally adapted Cognitive Behavioral Therapy (CaCBT) for Arabic-speaking populations including North African subgroups
- Download full text (pdf) of A systematic review culturally adapted Cognitive Behavioral Therapy (CaCBT) for Arabic-speaking populations including North African subgroups
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When Does Evidence Create a Moral Obligation to Depart from Antibiotic Guidelines?
Part of American Journal of Bioethics, p. 109-111, 2026
Article in journal
- DOI for When Does Evidence Create a Moral Obligation to Depart from Antibiotic Guidelines?
- Download full text (pdf) of When Does Evidence Create a Moral Obligation to Depart from Antibiotic Guidelines?
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Part of Journal of Community Genetics, 2026
Article in journal
- DOI for Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
- Download full text (pdf) of Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden
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Part of Journal of Contingencies and Crisis Management, 2026
Article in journal
- DOI for Policy Without Necessary Preconditions: An Analysis of Policy Documents on Swedish Preparedness in the Healthcare Sector Before, During, and After COVID-19
- Download full text (pdf) of Policy Without Necessary Preconditions: An Analysis of Policy Documents on Swedish Preparedness in the Healthcare Sector Before, During, and After COVID-19
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The ethical implications of using Artificial Intelligence in Disorders of Consciousness
Part of Consciousness: A Comprehensive Reference (Second Edition), p. 119-131, Elsevier, 2026
Chapter in book
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Part of Public Health Genomics, p. 242-256, 2026
Article in journal
- DOI for What is at stake in genetic newborn screening for rare diseases? An exploratory qualitative study of parents’ and expectant parents’ concerns in the Screen4Care project
- Download full text (pdf) of What is at stake in genetic newborn screening for rare diseases? An exploratory qualitative study of parents’ and expectant parents’ concerns in the Screen4Care project
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Lines of flight: good practices in MINDtheGEPs’ Gender Equality Plans
Part of Gender (In)equality in Research and Science, p. 213-232, Edward Elgar Publishing, 2026
Chapter in book
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Part of Scientific Reports, 2026
Article in journal
- DOI for Comparing emotion regulation, perceived discrimination, perceived social support and anxiety in North African immigrant and native French populations
- Download full text (pdf) of Comparing emotion regulation, perceived discrimination, perceived social support and anxiety in North African immigrant and native French populations
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Part of Journal of Community Genetics, 2026
Article in journal
- DOI for Rare disease genomics and justice: overview of a workshop at the Fondation Brocher, 22-24 January 2025
- Download full text (pdf) of Rare disease genomics and justice: overview of a workshop at the Fondation Brocher, 22-24 January 2025
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Part of Healthcare, 2026
Article, review/survey
- DOI for Patients' and Providers' Attitudes Toward Artificial Intelligence and Electronic Health Record Use in Deep Phenotyping and Rare-Disease Screening: An Empty Systematic Review
- Download full text (pdf) of Patients' and Providers' Attitudes Toward Artificial Intelligence and Electronic Health Record Use in Deep Phenotyping and Rare-Disease Screening: An Empty Systematic Review
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Cost-effectiveness, pharmaceutical pricing and the value flower: doing some gardening
Part of Medicine, Health care and Philosophy, 2026
Article in journal
- DOI for Cost-effectiveness, pharmaceutical pricing and the value flower: doing some gardening
- Download full text (pdf) of Cost-effectiveness, pharmaceutical pricing and the value flower: doing some gardening
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2026
Doctoral thesis, comprehensive summary
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Part of BMC Public Health, 2026
Article in journal
- DOI for Digital health literacy and immigrants' access to digitalized healthcare: a comparative study of Spain, and Sweden - implications for public health policy
- Download full text (pdf) of Digital health literacy and immigrants' access to digitalized healthcare: a comparative study of Spain, and Sweden - implications for public health policy
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Endo-Bentall Repair for Inoperable Aortic Disease: Balancing Innovation and Ethical Responsibility
Part of EJVES Vascular Forum, p. 37-44, 2026
Article in journal
- DOI for Endo-Bentall Repair for Inoperable Aortic Disease: Balancing Innovation and Ethical Responsibility
- Download full text (pdf) of Endo-Bentall Repair for Inoperable Aortic Disease: Balancing Innovation and Ethical Responsibility
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Patient Preferences in Neuromuscular Diseases: Insights for Future Drug Development
Part of JIMD Reports, 2026
Article in journal
- DOI for Patient Preferences in Neuromuscular Diseases: Insights for Future Drug Development
- Download full text (pdf) of Patient Preferences in Neuromuscular Diseases: Insights for Future Drug Development
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Etikprövningens relation till den akademiska friheten
Part of Nordisk socialrättslig tidskrift, p. 39-58, 2026
Article in journal
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Part of Socialvetenskaplig tidskrift, 2026
Article in journal
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Part of Research Integrity and Peer Review, 2026
Article in journal
- DOI for Who deserves credit, who receives credit?: A cross-sectional survey on the handling of co-authorship in medical dissertations in Germany
- Download full text (pdf) of Who deserves credit, who receives credit?: A cross-sectional survey on the handling of co-authorship in medical dissertations in Germany
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Living in Stand-by Mode While Constructing Lived Citizenship
Part of Journal of Immigrant & Refugee Studies, p. 1-17, 2026
Article in journal
- DOI for Living in Stand-by Mode While Constructing Lived Citizenship
- Download full text (pdf) of Living in Stand-by Mode While Constructing Lived Citizenship
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Part of JOURNAL OF LAW AND THE BIOSCIENCES, 2026
Article in journal
- DOI for Two-faced Janus? Consent to participate in research and consent to data processing in the EHDS era: a comparative analysis of requirements and standards in eight European countries
- Download full text (pdf) of Two-faced Janus? Consent to participate in research and consent to data processing in the EHDS era: a comparative analysis of requirements and standards in eight European countries
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Part of Medicine, Health care and Philosophy, 2026
Article in journal
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Part of Journal of Community Genetics, 2026
Article in journal
- DOI for Meeting the demand: A collaborative approach in developing genetic counselling education in the Nordic countries
- Download full text (pdf) of Meeting the demand: A collaborative approach in developing genetic counselling education in the Nordic countries
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Part of BMC Palliative Care, 2026
Article in journal
- DOI for Satisfaction with end-of-life care and self-rated health among bereaved family members: a descriptive cross-sectional study in an intensive care context
- Download full text (pdf) of Satisfaction with end-of-life care and self-rated health among bereaved family members: a descriptive cross-sectional study in an intensive care context
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Part of Think, p. 69-76, 2026
Article in journal
- DOI for Can Philosophy Help Us Create the Best of All Possible Worlds?: Introducing Global Philosophical Health
- Download full text (pdf) of Can Philosophy Help Us Create the Best of All Possible Worlds?: Introducing Global Philosophical Health
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L’enigma della coscienza: Cosa ci insegna il suo rapporto con il cervello?
Rubbettino, 2026
Book
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Part of AI and Ethics, 2026
Article in journal
- DOI for Ethical issues identified by analyzing the attitudes of Swedish radiologists and screening participants toward the use of AI in mammography screening
- Download full text (pdf) of Ethical issues identified by analyzing the attitudes of Swedish radiologists and screening participants toward the use of AI in mammography screening
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Part of BMC Public Health, 2026
Article in journal
- DOI for Women’s perceptions of breast cancer risk and prevention: insights into knowledge gaps and lifestyle attitudes
- Download full text (pdf) of Women’s perceptions of breast cancer risk and prevention: insights into knowledge gaps and lifestyle attitudes
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Part of Neurological Sciences, 2026
Article in journal
- DOI for Motor fatigue and fatigability in early multiple sclerosis patients: an analysis of clinical, radiological and psychological underpinnings
- Download full text (pdf) of Motor fatigue and fatigability in early multiple sclerosis patients: an analysis of clinical, radiological and psychological underpinnings
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The relevance of responsible conceptualization for ethics communication in research and innovation
Part of Developments in Neuroethics and Bioethics, Elsevier, 2026
Chapter in book
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Scoping Reviews Should Describe: Not Score
Part of Learned Publishing, 2026
Article in journal
- DOI for Scoping Reviews Should Describe: Not Score
- Download full text (pdf) of Scoping Reviews Should Describe: Not Score
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The Global Neuronal Workspace as a multilevel model of conscious processing
Part of Trends in cognitive sciences, p. 477-479, 2026
Article in journal
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Part of BMC Psychiatry, 2026
Article in journal
- DOI for Long-term follow-up of individuals at risk of or who developed resignation syndrome in childhood, were granted residence permits and cared for within the Stockholm region: a register study
- Download full text (pdf) of Long-term follow-up of individuals at risk of or who developed resignation syndrome in childhood, were granted residence permits and cared for within the Stockholm region: a register study
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Part of Accountability in Research, 2026
Article in journal
- DOI for On the potential value conflict between scientific knowledge production and fair recognition of authorship
- Download full text (pdf) of On the potential value conflict between scientific knowledge production and fair recognition of authorship
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Part of Mental Health and Social Inclusion, p. 1-20, 2026
Article in journal
- DOI for Perceived changes in the self following an MBCT protocol: a qualitative study to inform further theory development
- Download full text (pdf) of Perceived changes in the self following an MBCT protocol: a qualitative study to inform further theory development
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Part of Intensive & Critical Care Nursing, 2026
Article in journal
- DOI for Losing a close person to death in ICU: A thematic analysis of bereaved family members’ experiences of end-of-life care
- Download full text (pdf) of Losing a close person to death in ICU: A thematic analysis of bereaved family members’ experiences of end-of-life care
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Part of International Journal of Qualitative Studies on Health and Well-being, 2026
Article in journal
- DOI for Balancing hope and uncertainty: family perspectives on lung transplantation in cystic fibrosis: a qualitative study
- Download full text (pdf) of Balancing hope and uncertainty: family perspectives on lung transplantation in cystic fibrosis: a qualitative study
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Part of BMC Public Health, 2026
Article in journal
- DOI for Colorectal cancer risk: stereotypical assumptions and competing values - a qualitative study with the general public
- Download full text (pdf) of Colorectal cancer risk: stereotypical assumptions and competing values - a qualitative study with the general public
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Severity as a Criterion for Prioritizing Diagnostic Measures
Part of Health Care Analysis, 2026
Article in journal
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Part of Orphanet Journal of Rare Diseases, 2026
Article, review/survey
- DOI for Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
- Download full text (pdf) of Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
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Part of Journal of Community Genetics, 2026
Article in journal
- DOI for Preparedness for working with genomic medicine among Swedish non-genetics physicians - a nation-wide survey study
- Download full text (pdf) of Preparedness for working with genomic medicine among Swedish non-genetics physicians - a nation-wide survey study
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Part of BMC Primary Care, 2026
Article in journal
- DOI for General practitioners and management control through guidelines: a qualitative study of its effects on their practice
- Download full text (pdf) of General practitioners and management control through guidelines: a qualitative study of its effects on their practice
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Ethical challenges and action alternatives: Case reflections in ambulance care
Part of Nursing Ethics, p. 883-898, 2026
Article in journal
- DOI for Ethical challenges and action alternatives: Case reflections in ambulance care
- Download full text (pdf) of Ethical challenges and action alternatives: Case reflections in ambulance care
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Part of HEC Forum, p. 287-299, 2026
Article in journal
- DOI for Carrying the Facilitator Responsibility: Experiences of Healthcare Professionals Under Training to Become Facilitators of Ethics Case Reflection Rounds in Paediatric Oncology
- Download full text (pdf) of Carrying the Facilitator Responsibility: Experiences of Healthcare Professionals Under Training to Become Facilitators of Ethics Case Reflection Rounds in Paediatric Oncology
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Toward best ethical practices for including children in childhood cancer research
2026
Doctoral thesis, comprehensive summary
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Why children’s research assent matters: Exploring three dimensions of autonomy
Part of Nursing Ethics, 2026
Article in journal
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Advancing the science of consciousness: From ethics to clinical care
Part of Neuroscience and Biobehavioral Reviews, 2026
Article in journal
- DOI for Advancing the science of consciousness: From ethics to clinical care
- Download full text (pdf) of Advancing the science of consciousness: From ethics to clinical care
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Part of European Journal of Health Law, p. 314-345, 2026
Article in journal
- DOI for Mass-Scale G2B Data Sharing in an Emergency: between the GDPR, Data Governance Act, and European Health Data Space
- Download full text (pdf) of Mass-Scale G2B Data Sharing in an Emergency: between the GDPR, Data Governance Act, and European Health Data Space
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Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
Part of Journal of Advanced Nursing, p. 4167-4184, 2026
Article in journal
- DOI for Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
- Download full text (pdf) of Ethical Challenges and Strategies in Nursing Doctoral Supervision: A Systematic Mixed‐Method Review
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Part of Ethics and social welfare, p. 158-172, 2026
Article in journal
- DOI for Defending the Principle of the Best Interest of the Child as the Moral Standard for Restricting Social Contact Between Parents and Children in out-of-home Care
- Download full text (pdf) of Defending the Principle of the Best Interest of the Child as the Moral Standard for Restricting Social Contact Between Parents and Children in out-of-home Care
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Part of HEC Forum, p. 191-206, 2026
Article in journal
- DOI for Case-Based Clinical Ethics Support: A Description and Normative Discussion of Methodological Issues from the Swedish Perspective
- Download full text 1 (pdf) of Case-Based Clinical Ethics Support: A Description and Normative Discussion of Methodological Issues from the Swedish Perspective
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Part of Journal of Bioethical Inquiry, p. 241-248, 2026
Article in journal
- DOI for The Ethical Basis of Severity as a Priority Setting Criterion in Healthcare: Egalitarian or Prioritarian?
- Download full text (pdf) of The Ethical Basis of Severity as a Priority Setting Criterion in Healthcare: Egalitarian or Prioritarian?
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Ethical challenges among registered dietitians in oral nutritional supplement prescription
Part of Nursing Ethics, p. 273-286, 2026
Article in journal
- DOI for Ethical challenges among registered dietitians in oral nutritional supplement prescription
- Download full text (pdf) of Ethical challenges among registered dietitians in oral nutritional supplement prescription
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Restraint in somatic healthcare: how should it be regulated?
Part of Journal of Medical Ethics, p. 261-266, 2026
Article in journal
- DOI for Restraint in somatic healthcare: how should it be regulated?
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Part of Human Behavior and Emerging Technologies, 2025
Article in journal
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Ett nytt verktyg för etisk analys av vård utan samtycke inom somatisk vård
Part of Tvång på gott och ont, p. 169-194, Iustus förlag, 2025
Chapter in book
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Part of Global Health Action, 2025
Article in journal
- DOI for Beyond symbolic participation: youth-led organisations' voices and actions against antimicrobial resistance in Africa South of the Sahara
- Download full text (pdf) of Beyond symbolic participation: youth-led organisations' voices and actions against antimicrobial resistance in Africa South of the Sahara
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Part of European Journal of Oncology Nursing, 2025
Article in journal
- DOI for Research gaps in nursing status and interventions: a deductive qualitative analysis of healthcare professionals' perspectives from Swedish childhood cancer care
- Download full text (pdf) of Research gaps in nursing status and interventions: a deductive qualitative analysis of healthcare professionals' perspectives from Swedish childhood cancer care
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Translating Behind the Scenes: An Observational Study on Language Barriers in Childhood Cancer Care
Part of The Grounded Theory Review, p. 7-30, 2025
Article in journal
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Looking back at resignation syndrome: the rise and fall of a culture-bound endemic
Part of Philosophy Ethics and Humanities in Medicine, 2025
Article in journal
- DOI for Looking back at resignation syndrome: the rise and fall of a culture-bound endemic
- Download full text (pdf) of Looking back at resignation syndrome: the rise and fall of a culture-bound endemic
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Heterogeneous Severity in Healthcare Priority Setting
Part of Public Health Ethics, 2025
Article in journal
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Experiences of Ethical Review: Perspectives of Swedish Researchers in Social Science and Humanities
Part of Journal of Academic Ethics, 2025
Article in journal
- DOI for Experiences of Ethical Review: Perspectives of Swedish Researchers in Social Science and Humanities
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Part of Études & Pratiques T.C.C., p. 36-51, 2025
Article in journal
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The Nordic ChiCaP Network: An interdisciplinary approach to childhood cancer predisposition
Part of Rare, 2025
Article in journal
- DOI for The Nordic ChiCaP Network: An interdisciplinary approach to childhood cancer predisposition
- Download full text (pdf) of The Nordic ChiCaP Network: An interdisciplinary approach to childhood cancer predisposition
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DeBoeck Edition, 2025
Book
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Part of La thérapie comportementale dialectique, p. 261-270, DeBoeck Edition, 2025
Chapter in book
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Part of La thérapie comportementale dialectique, p. 213-232, DeBoeck Edition, 2025
Chapter in book
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Part of La thérapie comportementale dialectique, p. 245-258, DeBoeck Edition, 2025
Chapter in book
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Indigenous representation in neuroscience scholarship, teaching and care
Part of Nature Reviews Neuroscience, p. 373-375, 2025
Article in journal
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Part of Scandinavian Journal of Caring Sciences, 2025
Article in journal
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Part of Neuroscience of Consciousness, 2025
Article in journal
- DOI for GNW theoretical framework and the “adversarial testing of global neuronal workspace and integrated information theories of consciousness”
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Part of Journal of Community Genetics, p. 669-677, 2025
Article in journal
- DOI for Self-assessed knowledge of genomic medicine among non-genetics physicians – results from a nationwide Swedish survey
- Download full text (pdf) of Self-assessed knowledge of genomic medicine among non-genetics physicians – results from a nationwide Swedish survey
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Part of British Journal of Clinical Pharmacology, 2025
Article in journal
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Juggling Compassion and Competing Demands: A Grounded Theory Study of Pediatric Nurses' Experiences
Part of Journal of Pediatric Hematology/Oncology Nursing, p. 76-84, 2025
Article in journal
- DOI for Juggling Compassion and Competing Demands: A Grounded Theory Study of Pediatric Nurses' Experiences
- Download full text (pdf) of Juggling Compassion and Competing Demands: A Grounded Theory Study of Pediatric Nurses' Experiences
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Part of Journal of Interprofessional Care, p. 479-486, 2025
Article in journal
- DOI for Navigating consensus, interprofessional collaboration between nurses and psychiatrists in hospital care for patients with deliberate self-harm
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Communicating Antimicrobial Resistance on Instagram: Content Analysis of #AntibioticResistance
Part of JMIR Infodemiology, 2025
Article in journal
- DOI for Communicating Antimicrobial Resistance on Instagram: Content Analysis of #AntibioticResistance
- Download full text (pdf) of Communicating Antimicrobial Resistance on Instagram: Content Analysis of #AntibioticResistance
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Juridik, etik och expertis vid prioriteringar i den svenska hälso- och sjukvården
Part of Nordisk socialrättslig tidskrift, p. 7-40, 2025
Article in journal
- DOI for Juridik, etik och expertis vid prioriteringar i den svenska hälso- och sjukvården
- Download full text (pdf) of Juridik, etik och expertis vid prioriteringar i den svenska hälso- och sjukvården
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Part of BMC Medical Ethics, 2025
Article in journal
- DOI for Ethics support personnel’s perceptions of patient and parent participation in clinical ethics support services in pediatric oncology
- Download full text (pdf) of Ethics support personnel’s perceptions of patient and parent participation in clinical ethics support services in pediatric oncology
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AI Companions for Philosophical Health: a Human-in-the-Loop Framework
Part of Topoi, 2025
Article in journal
- DOI for AI Companions for Philosophical Health: a Human-in-the-Loop Framework
- Download full text (pdf) of AI Companions for Philosophical Health: a Human-in-the-Loop Framework
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Part of Methodological Innovations, p. 129-142, 2025
Article in journal
- DOI for The philosophical health compass: A new and comprehensive assessment tool for researching existential dimensions of wellbeing
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The Wisdom of Intellectual Asceticism
Part of Common Knowledge, p. 74-88, 2025
Article in journal
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Priority-setting in the COVID Pandemic: Perspectives from Sweden
Part of Forensic Neuropsychatric Ethics, p. 313-327, American Psychiatric Association Publishing, 2025
Chapter in book