Ciara Staunton
Associate researcher at CRB focusing on governance of new and emerging technologies. She is particularly interested in research on stem cells, genomics and biobanking, and the use of health data in research.
Dr Ciara Staunton is an independent consultant, Senior Researcher at the Institute for Biomedicine, Eurac Research and an Honorary Research Associate at the School of Law, University of KwaZulu-Natal. In addition, she is a member of many international advisory boards providing ethical and legal oversight on projects ranging from data science, AI, genomics, to biobanking and a member of the National Irish COVID-19 Biobank – Research Ethics Committee (NICB-REC).
Ciara’s research focuses on the governance of new and emerging technologies, in particular stem cell research, genomic research and biobanking, and the use of health data in research. She has published widely on these topics and has been in receipt of grants from the Wellcome Trust, the National Institutes of Health (NIH) and the Irish Research Council. Ciara’s research led to her being involved in the development of policy in Ireland, Bahrain and Africa.
Publications
Part of Frontiers in Genetics, 2022
- DOI for Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
- Download full text (pdf) of Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
Artificial Intelligence Needs Data: Challenges Accessing Italian Databases to Train AI
Part of Asian Bioethics Review, p. 423-435, 2024
- DOI for Artificial Intelligence Needs Data: Challenges Accessing Italian Databases to Train AI
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Part of European Journal of Human Genetics, p. 1146-1157, 2021
- DOI for Balancing scientific interests and the rights of participants in designing a recall by genotype study
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Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participants
Part of Frontiers in Medicine, 2024
- DOI for Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participants
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Part of Journal of Medical Internet Research, 2023
Part of Journal of Community Genetics, p. 577-592, 2021
- DOI for Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants
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Part of European Journal of Human Genetics, p. 1159-1167, 2019
- DOI for The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
- Download full text (pdf) of The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks