Louise von Essen
Professor vid Institutionen för kvinnors och barns hälsa; CIRCLE - Interventionsforskning inom hälsa och vård
- Mobiltelefon:
- 070-425 07 14
- E-post:
- louise-von.essen@uu.se
- Besöksadress:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postadress:
- Akademiska sjukhuset
751 85 UPPSALA
- Akademiska meriter:
- FD, leg. psyk., docent, prof.
- CV:
- Ladda ned CV
Kort presentation
Jag är leg psykolog, fil dr i psykologi och professor i vårdvetenskap. Jag startade och är programsamordnare för U-CARE, se http://www.u-care.uu.se/. Jag är också forskargruppsledare för forskargruppen CIRCLE och föreståndare för Uppsala Trial Forge Centre. Min forskning handlar i stort om att utveckla stöd för föräldrar vars barn behandlats för cancer i Sverige och vårdnadshavare till barn som behandlas för cancer i Tanzania vilket kan öka barnens chanser att överleva sin sjukdom.
Nyckelord
- Childhood cancer
- clinical trials
- complex intervention research
- family
- feasibility trials
- guardians
- mental health
- parents
- public contribution
- recruitment
- retention
Forskning
My present research mainly concerns developing, testing, evaluating, and implementing complex interventions for parents of children treated for cancer in Sweden and guardians of children treated for cancer in Tanzania. Children, guardians, healthcare personnel, parents, national and international researchers, and other interest-holders contribute to all parts of my research, see https://scholar.google.com/citations?user=5JX8LpMAAAAJ&hl=sv

Publikationer
Senaste publikationer
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Ingår i JMIR Human Factors, 2026
- DOI för e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
- Ladda ner fulltext (pdf) av e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
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Ingår i Dementia, s. 801-823, 2026
- DOI för Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
- Ladda ner fulltext (pdf) av Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
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Ingår i Aging & Mental Health, 2026
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Ingår i Cancer Medicine, 2026
- DOI för "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
- Ladda ner fulltext (pdf) av "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
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Ingår i Health Expectations, 2026
Alla publikationer
Artiklar i tidskrift
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Ingår i JMIR Human Factors, 2026
- DOI för e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
- Ladda ner fulltext (pdf) av e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
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Ingår i Dementia, s. 801-823, 2026
- DOI för Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
- Ladda ner fulltext (pdf) av Experiences of formal and informal support among adult-daughter caregivers of people with dementia in Sweden: A qualitative study
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Ingår i Aging & Mental Health, 2026
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Ingår i Cancer Medicine, 2026
- DOI för "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
- Ladda ner fulltext (pdf) av "Nothing for Us Without Us": A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors
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Ingår i Health Expectations, 2026
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Ingår i BMC Psychiatry, 2025
- DOI för The acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: findings from a qualitative study involving public contributors
- Ladda ner fulltext (pdf) av The acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: findings from a qualitative study involving public contributors
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Ingår i BMC Geriatrics, 2025
- DOI för People with dementia and informal caregivers’ perceptions of barriers and facilitators to implementing a behavioral activation intervention: a qualitative study using Normalization Process Theory
- Ladda ner fulltext (pdf) av People with dementia and informal caregivers’ perceptions of barriers and facilitators to implementing a behavioral activation intervention: a qualitative study using Normalization Process Theory
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Ingår i BMC Psychology, 2025
- DOI för "It is today that counts, and today everything is fine": coping strategies utilized by parents of children treated for cancer who seek psychological support - a qualitative study
- Ladda ner fulltext (pdf) av "It is today that counts, and today everything is fine": coping strategies utilized by parents of children treated for cancer who seek psychological support - a qualitative study
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Ingår i Health Expectations, 2025
- DOI för Addressing the Health Needs of Underserved Populations Through Public Contribution: Prioritisation and Development of a Peer Support Intervention for Sexual and Gender Minority Forced Migrants
- Ladda ner fulltext (pdf) av Addressing the Health Needs of Underserved Populations Through Public Contribution: Prioritisation and Development of a Peer Support Intervention for Sexual and Gender Minority Forced Migrants
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Ingår i JMIR Formative Research, 2025
- DOI för Engagement With an Internet-Administered, Guided, Low-Intensity Cognitive Behavioral Therapy Intervention for Parents of Children Treated for Cancer: Analysis of Log-Data From the ENGAGE Feasibility Trial
- Ladda ner fulltext (pdf) av Engagement With an Internet-Administered, Guided, Low-Intensity Cognitive Behavioral Therapy Intervention for Parents of Children Treated for Cancer: Analysis of Log-Data From the ENGAGE Feasibility Trial
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Designing Software for Web-based Psychosocial Care: Longitudinal Design Science Research in U-CARE
Ingår i Communications of the Association for Information Systems, s. 1153-1192, 2024
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Ingår i Digital Health, 2024
- DOI för E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: A qualitative study
- Ladda ner fulltext (pdf) av E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: A qualitative study
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Ingår i BMC Geriatrics, 2024
- DOI för Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden: A qualitative study exploring the needs and preferences of key stakeholders
- Ladda ner fulltext (pdf) av Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden: A qualitative study exploring the needs and preferences of key stakeholders
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Ingår i Cancer Medicine, 2024
- DOI för Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project: A mixed‐methods study protocol
- Ladda ner fulltext (pdf) av Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project: A mixed‐methods study protocol
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Ingår i BMC Nephrology, 2024
- DOI för "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease
- Ladda ner fulltext (pdf) av "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease
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Ingår i BMC Cancer, 2024
- DOI för The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
- Ladda ner fulltext (pdf) av The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
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Ingår i Qualitative Health Research, s. 676-690, 2024
- DOI för Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness
- Ladda ner fulltext (pdf) av Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness
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Ingår i Research Involvement and Engagement, 2024
- DOI för Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol
- Ladda ner fulltext (pdf) av Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol
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Pain in pediatric oncology: A Swedish nationwide follow-up study among nurses and physicians
Ingår i Acta Paediatrica, 2023
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Ingår i BMJ Open, 2023
- DOI för Effectiveness, acceptability, and completeness and quality of intervention reporting of psychological interventions for people with dementia or mild cognitive impairment: Protocol for a mixed-methods systematic review
- Ladda ner fulltext (pdf) av Effectiveness, acceptability, and completeness and quality of intervention reporting of psychological interventions for people with dementia or mild cognitive impairment: Protocol for a mixed-methods systematic review
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Ingår i Cancer Medicine, s. 6225-6243, 2023
- DOI för Internet‐administered, low‐intensity cognitive behavioral therapy for parents of children treated for cancer: A feasibility trial (ENGAGE)
- Ladda ner fulltext (pdf) av Internet‐administered, low‐intensity cognitive behavioral therapy for parents of children treated for cancer: A feasibility trial (ENGAGE)
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Ingår i Psycho-Oncology, s. 237-246, 2023
- DOI för Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet-administered, low-intensity cognitive behavioral therapy intervention
- Ladda ner fulltext (pdf) av Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet-administered, low-intensity cognitive behavioral therapy intervention
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Ingår i JMIR Human Factors, 2023
- DOI för Barriers to and Facilitators of the Implementation of Digital Mental Health Interventions as Perceived by Primary Care Decision Makers: Content Analysis of Structured Open-Ended Survey Data
- Ladda ner fulltext (pdf) av Barriers to and Facilitators of the Implementation of Digital Mental Health Interventions as Perceived by Primary Care Decision Makers: Content Analysis of Structured Open-Ended Survey Data
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Ingår i JMIR Research Protocols, 2023
- DOI för An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study
- Ladda ner fulltext (pdf) av An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study
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Ingår i BMC Nephrology, 2023
- DOI för Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey
- Ladda ner fulltext (pdf) av Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey
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Ingår i JMIR Human Factors, 2023
- DOI för Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study
- Ladda ner fulltext (pdf) av Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study
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Ingår i BMC Psychiatry, 2023
- DOI för Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression: a systematic review and meta-analysis
- Ladda ner fulltext (pdf) av Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression: a systematic review and meta-analysis
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Ingår i Internet Interventions, 2023
- DOI för Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
- Ladda ner fulltext (pdf) av Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
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Ingår i Journal of Affective Disorders, s. 474-498, 2023
- DOI för Psychological interventions for symptoms of depression among informal caregivers of older adult populations: A systematic review and meta-analysis of randomized controlled trials
- Ladda ner fulltext (pdf) av Psychological interventions for symptoms of depression among informal caregivers of older adult populations: A systematic review and meta-analysis of randomized controlled trials
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Ingår i Cancer, s. 2400-2404, 2022
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Ingår i BMC Medical Research Methodology, 2022
- DOI för The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial: an embedded randomised controlled recruitment trial
- Ladda ner fulltext (pdf) av The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial: an embedded randomised controlled recruitment trial
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Ingår i International Journal of Qualitative Studies on Health and Well-being, 2022
- DOI för Experiences of nurses and coordinators in a childhood obesity prevention trial based on motivational interviewing within Swedish child health services
- Ladda ner fulltext (pdf) av Experiences of nurses and coordinators in a childhood obesity prevention trial based on motivational interviewing within Swedish child health services
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Ingår i BMJ Open, 2022
- DOI för Opt-out rates and reasons for non-participation in a single-arm feasibility trial (ENGAGE) of a guided internet-administered CBT-based intervention for parents of children treated for cancer: A nested cross-sectional survey
- Ladda ner fulltext (pdf) av Opt-out rates and reasons for non-participation in a single-arm feasibility trial (ENGAGE) of a guided internet-administered CBT-based intervention for parents of children treated for cancer: A nested cross-sectional survey
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Ingår i BMJ Open, 2022
- DOI för Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
- Ladda ner fulltext (pdf) av Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
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Ingår i BMJ Open, 2021
- DOI för Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA): a study protocol using codesign and participatory action research
- Ladda ner fulltext (pdf) av Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA): a study protocol using codesign and participatory action research
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Ingår i Journal of Medical Internet Research, 2021
- DOI för Internet-Based Cognitive Behavioral Therapy for Patients Reporting Symptoms of Anxiety and Depression After Myocardial Infarction: U-CARE Heart Randomized Controlled Trial Twelve-Month Follow-up
- Ladda ner fulltext (pdf) av Internet-Based Cognitive Behavioral Therapy for Patients Reporting Symptoms of Anxiety and Depression After Myocardial Infarction: U-CARE Heart Randomized Controlled Trial Twelve-Month Follow-up
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Ingår i Journal of Medical Internet Research, 2021
- DOI för Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
- Ladda ner fulltext (pdf) av Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
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Ingår i BMJ Open, 2021
- DOI för Help-seeking behaviour and attitudes towards internet-administered psychological support among adolescent and young adults previously treated for cancer during childhood: Protocol for a survey and embedded qualitative interview study in Sweden
- Ladda ner fulltext (pdf) av Help-seeking behaviour and attitudes towards internet-administered psychological support among adolescent and young adults previously treated for cancer during childhood: Protocol for a survey and embedded qualitative interview study in Sweden
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Ingår i JMIR Formative Research, 2021
- DOI för Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study
- Ladda ner fulltext (pdf) av Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study
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Ingår i JMIR Formative Research, 2021
- DOI för Conducting Digital Health Care Research: Document Analysis of Challenges Experienced During Intervention Development and Feasibility Study Setup of an Internet-Administered Intervention for Parents of Children Treated for Cancer
- Ladda ner fulltext (pdf) av Conducting Digital Health Care Research: Document Analysis of Challenges Experienced During Intervention Development and Feasibility Study Setup of an Internet-Administered Intervention for Parents of Children Treated for Cancer
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Ibuprofen in needle procedures in children with cancer: A feasibility and pilot study
Ingår i Acta Paediatrica, s. 704-710, 2021
- DOI för Ibuprofen in needle procedures in children with cancer: A feasibility and pilot study
- Ladda ner fulltext (pdf) av Ibuprofen in needle procedures in children with cancer: A feasibility and pilot study
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Ingår i International Journal of Cancer, s. 2535-2541, 2021
- DOI för Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden: A population based difference-in-difference study
- Ladda ner fulltext (pdf) av Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden: A population based difference-in-difference study
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Ingår i Supportive Care in Cancer, s. 4869-4879, 2020
- DOI för Prevention of oral mucositis with cryotherapy in children undergoing hematopoietic stem cell transplantations: A feasibility study and randomized controlled trial
- Ladda ner fulltext (pdf) av Prevention of oral mucositis with cryotherapy in children undergoing hematopoietic stem cell transplantations: A feasibility study and randomized controlled trial
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Ingår i Acta Oncologica, s. 351-357, 2020
- DOI för Parents' needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study
- Ladda ner fulltext (pdf) av Parents' needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study
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Ingår i Cancer Nursing, 2020
- DOI för Concerns and Needs of Support Among Guardians of Children on Cancer Treatment in Dar es Salaam: A Qualitative Study
- Ladda ner fulltext (pdf) av Concerns and Needs of Support Among Guardians of Children on Cancer Treatment in Dar es Salaam: A Qualitative Study
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Ingår i Implementation Science, 2020
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Ingår i Journal of Medical Internet Research, 2020
- DOI för Views of Implementers and Nonimplementers of Internet-Administered Cognitive Behavioral Therapy for Depression and Anxiety: Survey of Primary Care Decision Makers in Sweden
- Ladda ner fulltext (pdf) av Views of Implementers and Nonimplementers of Internet-Administered Cognitive Behavioral Therapy for Depression and Anxiety: Survey of Primary Care Decision Makers in Sweden
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Ingår i PeerJ, 2020
- DOI för Heeding the psychological concerns of young cancer survivors: A single-arm feasibility trial of CBT and a cognitive behavioral conceptualization of distress
- Ladda ner fulltext (pdf) av Heeding the psychological concerns of young cancer survivors: A single-arm feasibility trial of CBT and a cognitive behavioral conceptualization of distress
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Ingår i Contemporary Clinical Trials Communications, 2020
- DOI för Study within a trial (SWAT) protocol. Investigating the effect of personalised versus non-personalised study invitations on recruitment: An embedded randomised controlled recruitment trial
- Ladda ner fulltext (pdf) av Study within a trial (SWAT) protocol. Investigating the effect of personalised versus non-personalised study invitations on recruitment: An embedded randomised controlled recruitment trial
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Ingår i Psycho-Oncology, s. 2012-2018, 2020
- DOI för Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
- Ladda ner fulltext (pdf) av Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
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Children's self-reports of fear and pain levels during needle procedures
Ingår i Nursing Open, s. 376-382, 2020
- DOI för Children's self-reports of fear and pain levels during needle procedures
- Ladda ner fulltext (pdf) av Children's self-reports of fear and pain levels during needle procedures
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Ingår i BMC Cancer, 2019
- DOI för Cancer-related concerns and needs among young adults and children on cancer treatment in Tanzania: A qualitative study
- Ladda ner fulltext (pdf) av Cancer-related concerns and needs among young adults and children on cancer treatment in Tanzania: A qualitative study
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Ingår i BMJ Open, 2019
- DOI för Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression: A systematic review, meta-analysis and thematic synthesis protocol
- Ladda ner fulltext (pdf) av Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression: A systematic review, meta-analysis and thematic synthesis protocol
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Psychological distress in parents of children treated for cancer: An explorative study
Ingår i PLOS ONE, 2019
- DOI för Psychological distress in parents of children treated for cancer: An explorative study
- Ladda ner fulltext (pdf) av Psychological distress in parents of children treated for cancer: An explorative study
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Ingår i Journal of Medical Internet Research, 2018
- DOI för Predicting Adherence to Internet-Delivered Psychotherapy for Symptoms of Depression and Anxiety After Myocardial Infarction: Machine Learning Insights From the U-CARE Heart Randomized Controlled Trial
- Ladda ner fulltext (pdf) av Predicting Adherence to Internet-Delivered Psychotherapy for Symptoms of Depression and Anxiety After Myocardial Infarction: Machine Learning Insights From the U-CARE Heart Randomized Controlled Trial
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Ingår i Journal of Medical Internet Research, 2018
- DOI för Internet-based Cognitive Behavior Therapy for Symptoms of Depression and Anxiety among Patients with a Recent Myocardial Infarction: The U-CARE Heart Randomized Trial
- Ladda ner fulltext (pdf) av Internet-based Cognitive Behavior Therapy for Symptoms of Depression and Anxiety among Patients with a Recent Myocardial Infarction: The U-CARE Heart Randomized Trial
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Ingår i Journal of Medical Internet Research, 2018
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Ingår i Journal of Medical Internet Research, 2018
- DOI för Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer: Web-Based Survey
- Ladda ner fulltext (pdf) av Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer: Web-Based Survey
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Ingår i BMJ Open, 2018
- DOI för Study protocol for a feasibility study of an internet-administered, guided, CBT-based, self-help intervention (ENGAGE) for parents of children previously treated for cancer
- Ladda ner fulltext (pdf) av Study protocol for a feasibility study of an internet-administered, guided, CBT-based, self-help intervention (ENGAGE) for parents of children previously treated for cancer
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Ingår i PeerJ, 2018
- DOI för An open trial of individualized face-to-face cognitive behavior therapy for psychological distress in parents of children after end of treatment for childhood cancer including a cognitive behavioral conceptualization
- Ladda ner fulltext (pdf) av An open trial of individualized face-to-face cognitive behavior therapy for psychological distress in parents of children after end of treatment for childhood cancer including a cognitive behavioral conceptualization
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Ingår i Acta Oncologica, s. 950-957, 2018
- DOI för Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child's death
- Ladda ner fulltext (pdf) av Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child's death
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Ingår i PLOS ONE, 2018
- DOI för Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support
- Ladda ner fulltext (pdf) av Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support
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Ingår i Journal of Medical Internet Research, 2017
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Ingår i Journal of Medical Internet Research, 2017
- DOI för Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
- Ladda ner fulltext (pdf) av Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
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Ingår i Journal of Pain Research, s. 2195-2203, 2017
- DOI för An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study
- Ladda ner fulltext (pdf) av An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study
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Ingår i BMJ Open, 2017
- DOI för Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan): study protocol for a feasibility trial
- Ladda ner fulltext (pdf) av Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan): study protocol for a feasibility trial
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Impact of a child’s cancer disease on parents’ everyday life: A longitudinal study from Sweden
Ingår i Acta Oncologica, s. 93-100, 2017
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Ingår i Acta Oncologica, s. 1698-1704, 2017
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Ingår i Acta Oncologica, s. 1705-1711, 2017
- DOI för Perceptions of support among Swedish parents of children after end of successful cancer treatment: A prospective, longitudinal study
- Ladda ner fulltext (pdf) av Perceptions of support among Swedish parents of children after end of successful cancer treatment: A prospective, longitudinal study
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Ingår i European Journal of Pain, s. 223-230, 2016
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Ingår i PLOS ONE, 2016
- DOI för Posttraumatic Stress in Parents of Children Diagnosed with Cancer: Hyperarousal and Avoidance as Mediators of the Relationship between Re-Experiencing and Dysphoria
- Ladda ner fulltext (pdf) av Posttraumatic Stress in Parents of Children Diagnosed with Cancer: Hyperarousal and Avoidance as Mediators of the Relationship between Re-Experiencing and Dysphoria
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Ingår i Journal of clinical psychology in medical settings, s. 67-76, 2016
- DOI för Experiential Avoidance and Rumination in Parents of Children on Cancer Treatment: Relationships with Posttraumatic Stress Symptoms and Symptoms of Depression
- Ladda ner fulltext (pdf) av Experiential Avoidance and Rumination in Parents of Children on Cancer Treatment: Relationships with Posttraumatic Stress Symptoms and Symptoms of Depression
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Ingår i Acta Oncologica, s. 1152-1157, 2016
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Ingår i PLOS ONE, 2016
- DOI för Posttraumatic stress and attentional bias towards cancer-related stimuli in parents of children recently diagnosed with cancer
- Ladda ner fulltext (pdf) av Posttraumatic stress and attentional bias towards cancer-related stimuli in parents of children recently diagnosed with cancer
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Ingår i PLOS ONE, 2016
- DOI för Impressions that last: Particularly negative and positive experiences reported by parents five years after the end of a child's successful cancer treatment or death
- Ladda ner fulltext (pdf) av Impressions that last: Particularly negative and positive experiences reported by parents five years after the end of a child's successful cancer treatment or death
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Ingår i International Journal of Behavioral Medicine, s. 21-29, 2016
- DOI för Acceptance as a Mediator for Change in Acceptance and Commitment Therapy for Persons with Chronic Pain?
- Ladda ner fulltext (pdf) av Acceptance as a Mediator for Change in Acceptance and Commitment Therapy for Persons with Chronic Pain?
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Ingår i Psycho-Oncology, s. 582-589, 2016
- DOI för Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study
- Ladda ner fulltext (pdf) av Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study
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Ingår i Psycho-Oncology, s. 76-76, 2016
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Ingår i Psycho-Oncology, s. 1152-1158, 2015
- DOI för Internet-based guided self-help for parents of children on cancer treatment: A randomized controlled trial
- Ladda ner fulltext (pdf) av Internet-based guided self-help for parents of children on cancer treatment: A randomized controlled trial
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Ingår i Psycho-Oncology, s. 1792-1798, 2015
- DOI för Does time heal all wounds? A longitudinal study of the development of posttraumatic stress symptoms in parents of survivors of childhood cancer and bereaved parents
- Ladda ner fulltext (pdf) av Does time heal all wounds? A longitudinal study of the development of posttraumatic stress symptoms in parents of survivors of childhood cancer and bereaved parents
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Ingår i PLOS ONE, 2014
- DOI för Long-term positive and negative psychological late effects for parents of childhood cancer survivors: A systematic review
- Ladda ner fulltext (pdf) av Long-term positive and negative psychological late effects for parents of childhood cancer survivors: A systematic review
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Ingår i JMIR Research Protocols, 2014
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Ingår i Acta Paediatrica, s. 630-636, 2014
- DOI för Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation
- Ladda ner fulltext (pdf) av Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation
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Ingår i Psycho-Oncology, s. 1229-1235, 2014
- DOI för Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden
- Ladda ner fulltext (pdf) av Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden
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Effect of high-dose paracetamol on needle procedures in children with cancer - a RCT
Ingår i Acta Paediatrica, s. 314-319, 2014
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Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment
Ingår i Journal of Pain and Symptom Management, s. 366-375, 2013
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Ingår i Acta Oncologica, s. 1076-1085, 2013
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Ingår i Journal of psychosocial oncology, s. 13-29, 2013
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Säker och god vård vid universitet
Ingår i Läkartidningen, 2013
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Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment
Ingår i Pediatric Blood & Cancer, s. 42-42, 2013
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Ingår i Health and Quality of Life Outcomes, s. 133, 2012
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Ingår i PLOS ONE, 2012
- DOI för Objective and subjective factors as predictors of post-traumatic stress symptoms in parents of children with cancer: a longitudinal study
- Ladda ner fulltext (pdf) av Objective and subjective factors as predictors of post-traumatic stress symptoms in parents of children with cancer: a longitudinal study
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The factor structure of traumatic stress in parents of children with cancer: A longitudinal analysis
Ingår i Journal of Pediatric Psychology, s. 448-457, 2012
- DOI för The factor structure of traumatic stress in parents of children with cancer: A longitudinal analysis
- Ladda ner fulltext (pdf) av The factor structure of traumatic stress in parents of children with cancer: A longitudinal analysis
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Ingår i Journal of psychosocial oncology, s. 51-66, 2011
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Ingår i European Journal of Oncology Nursing, s. 80-84, 2011
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Ingår i PLOS ONE, 2011
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Ingår i Supportive Care in Cancer, s. 605-611, 2011
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Findings on how adolescents cope with cancer: a matter of methodology?
Ingår i Psycho-Oncology, s. 1053-1060, 2011
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Ingår i Journal of Clinical Nursing, s. 1568-1577, 2011
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Effect of morphine in needle procedures in children with cancer
Ingår i European Journal of Pain, s. 1056-1060, 2011
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Ingår i Journal of Pain and Symptom Management, s. 661-670, 2010
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Ingår i European Journal of Cancer, s. 1062-1068, 2010
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Effect of morphine on fear, distress and pain in needle procedures in children with cancer
Ingår i Pediatric Blood & Cancer, s. 954-955, 2010
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Ingår i European Journal of Cancer Care, s. 350-357, 2009
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Randomized interventions for needle procedures in children with cancer
Ingår i European Journal of Cancer Care, s. 358-363, 2009
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Ingår i Annals of Oncology, s. 1722-1727, 2009
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Ingår i Scandinavian Journal of Caring Sciences, s. 107-116, 2009
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Low-dose oral midazolam reduces fear and distress during needle procedures in children with cancer
Ingår i Pediatric Blood & Cancer, s. 1200-1204, 2009
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Ingår i Public Service Review. European union, s. 129-129, 2009
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Physical problems and psychosocial function in children with cancer
Ingår i Paediatric nursing, s. 37-41, 2008
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Posttraumatic stress disorder among parents of children on cancer treatment: a longitudinal study
Ingår i Psycho-Oncology, s. 430-437, 2008
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Ingår i Health and Quality of Life Outcomes, s. 18, 2007
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Ingår i Scandinavian Journal of Caring Sciences, s. 523-529, 2007
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Ingår i European Journal of Cancer, s. 1952-1958, 2007
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Ingår i Quality of Life Research, s. 1635-1645, 2007
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Ingår i Psycho-Oncology, s. 1003-1009, 2007
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Ingår i European Journal of Oncology Nursing, s. 400-408, 2007
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Ingår i European Journal of Cancer Care, s. 493-499, 2007
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Ingår i Journal of Psychiatric and Mental Health Nursing, s. 49-54, 2007
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Ingår i Health and Quality of Life Outcomes, s. 91, 2006
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Ingår i European Journal of Cancer Care, s. 371-378, 2006
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Ingår i Journal of Clinical Nursing, s. 387-394, 2006
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Ingår i Pediatric Blood & Cancer, s. 773-9, 2006
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Ingår i Nordic Journal of Psychiatry, s. 511-515, 2005
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Ingår i Acta Obstetricia et Gynecologica Scandinavica, s. 980-986, 2005
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Perceptions of distress among adolescents recently diagnosed with cancer
Ingår i Journal of pediatric hematology/oncology (Print), s. 15-22, 2005
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Ingår i J Pain Symptom Manage, s. 572-83, 2005
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Swedish Mothers and Fathers of a Child Diagnosed with Cancer: A Look at Their Quality of Life
Ingår i Acta Oncologica, s. 474, 2004
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Ingår i European Journal of Oncology Nursing, s. 6-17, 2004
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Medication administration in inpatient psychiatric care: get control and leave control
Ingår i Journal of Psychiatric and Mental Health Nursing, s. 229-234, 2004
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Proxy Ratings of Patient Quality of Life: Factors Related to Patient - Proxy Agreement
Ingår i Acta Oncologica, s. 229, 2004
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Forced medication in psychiatric care: patient experiences and nurse perceptions
Ingår i Journal of Psychiatric and Mental Health Nursing, s. 65-72, 2003
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Ingår i European Journal of Cancer Care, s. 46-57, 2003
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Ingår i Cancer Nursing, s. 203-210, 2003
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The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff
Ingår i International Journal of Nursing Studies, s. 487-497, 2003
-
Ingår i Psycho-Oncology, s. 68-77, 2003
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Distressing events for children and adolescents with cancer: Child, parent, and nurse perceptions
Ingår i Journal of Pediatric Oncology Nursing, s. 120-132, 2003
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Ingår i Supportive Care in Cancer, s. 601-612, 2002
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Women's voices about emergency contraceptive pills "over-the-counter": a Swedish perspective
Ingår i Contraception, s. 339-343, 2002
-
Ingår i European Journal of Cancer Care, s. 91-99, 2002
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Ingår i Läkartidningen, s. 4730-4735, 2002
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Ingår i European Journal of Oncology Nursing, s. 254-264, 2001
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Ingår i Patient Education and Counseling, s. 243-252, 2001
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Health-Related Quality of Life, Anxiety and Depression in Patients with Midgut Carcinoid Tumours
Ingår i Acta Oncologica, s. 825-831, 2001
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Important aspects of care and assistance for children with cancer
Ingår i Journal of Pediatric Oncology Nursing, s. 239-249, 2000
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Perceptions of caring among patients with cancer and their staff: differences and disagreements
Ingår i Cancer Nursing, s. 32-39, 2000
-
Cancer Patients' and their Physicians' Perceptions of the Formers' need for Occupational Therapy
Ingår i Scandinavian Journal of Occupational Therapy, s. 77-86, 2000
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Ingår i Acta Paediatrica, s. 229-236, 2000
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God kommunikation: en förutsättning för god livskvalitet?
Ingår i Omsorg, s. 41-44, 2000
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Health-related quality of life in patients with endocrine tumours of the gastrointestinal tract
Ingår i Acta Oncologica, s. 481-490, 1999
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Ingår i Annals of Oncology, s. 1321-1327, 1999
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Development of the Royal Marsden Hospital Paediatric Oncology Quality of Life Questionnaire
Ingår i International Journal of Cancer, s. 65-70, 1999
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Perceptions of caring: patients' and staff's associations to CARE-Q behaviors
Ingår i Journal of psychosocial oncology, s. 75-96, 1998
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Ingår i Scandinavian Journal of Caring Sciences, s. 238-245, 1998
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Ingår i Journal of Advanced Nursing, s. 855-864, 1998
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Ingår i Cancer Nursing, s. 411-420, 1998
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Psykosocial funktion bland barn och ungdomar med cancer
Ingår i Socialmedicinsk Tidskrift, s. 229-236, 1997
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Development of a tool to measure the life situation of parents of children with cancer
Ingår i Quality of Life Research, s. 248-256, 1997
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Ingår i Omsorg, s. 10-16, 1997
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Ingår i Acta Paediatrica, s. 404-406, 1996
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Ingår i Acta Paediatrica, s. 404-406, 1996
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Cancer patient and staff perceptions of caring vs clinical care
Ingår i Scandinavian Journal of Caring Sciences, s. 227-233, 1996
-
Anxiety and depression in hospitalized patients with cancer: agreement in patient-staff dyads
Ingår i Cancer Nursing, s. 419-428, 1996
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Ingår i Journal of Advanced Nursing, s. 266-276, 1995
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Ingår i Journal of psychosocial oncology, s. 67-87, 1995
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Perceptions of caring behaviors and patient anxiety and depression in cancer patient-staff dyads
Ingår i Scandinavian Journal of Caring Sciences, s. 205-212, 1994
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Ingår i Research in Nursing & Health, s. 293-303, 1993
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Patient and staff perceptions of caring: review and replication
Ingår i Journal of Advanced Nursing, s. 1363-1374, 1991
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The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff
Ingår i International Journal of Nursing Studies, s. 267-281, 1991
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Patienter och personal inte ense om "god vård" (In Swedish)
Ingår i Social Forskning, s. 4-5, 1991
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Forskning bekräftar inte alltid beprövad erfarenhet (In Swedish)
Ingår i Landstingsvärlden, s. 34, 1990
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Locked entrance doors at psychiatric wards. Occurrence and reasons.
Artiklar, forskningsöversikt
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Ingår i Global Mental Health, 2025
- DOI för Prevalence and social determinants of anxiety and depressive disorders and symptoms among adults in Ghana: A systematic review and meta-analysis
- Ladda ner fulltext (pdf) av Prevalence and social determinants of anxiety and depressive disorders and symptoms among adults in Ghana: A systematic review and meta-analysis
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Ingår i JMIR Mental Health, 2022
- DOI för Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases: Mixed Methods Systematic Review With a Qualitative Comparative Analysis and Thematic Synthesis
- Ladda ner fulltext (pdf) av Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases: Mixed Methods Systematic Review With a Qualitative Comparative Analysis and Thematic Synthesis
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Ingår i BMJ Open, 2020
- DOI för Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis
- Ladda ner fulltext (pdf) av Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis
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Ingår i BMJ Open, 2020
- DOI för Psychological interventions for depression among informal caregivers of older adult populations: protocol of a systematic review and meta-analysis of randomised controlled trials.
- Ladda ner fulltext (pdf) av Psychological interventions for depression among informal caregivers of older adult populations: protocol of a systematic review and meta-analysis of randomised controlled trials.
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Are there any positive consequences of childhood cancer?: A review of the literature
Ingår i Acta Oecologica, s. 199-206, 2008
Doktorsavhandlingar, sammanläggning
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1994
Kapitel i böcker, delar av antologi
-
Non-standard and preference designs
Ingår i Complex Interventions in Health, s. 207-212, Routledge, 2015
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Ingår i Palliativ medicin, s. 404-410, Liber, 2005
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Disease and treatment-related distress among children aged 4-7 years: parent and nurse perceptions
Ingår i Perspectives in Paediatric Oncology Nursing, s. 311-326, Whurr Publishers, London, 2004
-
Barns reaktioner vid sjukhusvistelse
Ingår i Barnet och sjukvården, Studentlitteratur, Lund, 2000
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Ingår i Komplekst og varieret, s. 161-182, Studentlitteratur, 1997
-
Ingår i Palliativ Medicin, s. 253, Liber Utbildning AB, 1995
Konferensbidrag
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Bridging lived experience and research: involving dementia caregivers in developing interventions
2025
-
2024
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2024
-
2023
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2023
-
Sources of support and views of e-mental health among caregivers of adults with kidney conditions
2023
-
2023
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2023
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2023
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2023
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2022
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2022
-
Ingår i BABCP 50th Annual Conference, 2022
-
Ingår i EHPS 2022 36th Annual Conference of the European Health Psychology Society, 23-27 August, 2022, Bratislava, Slovakia, 2022
-
2021
-
Implementation of e-mental health interventions for informal caregivers: a systematic review
2021
-
2021
-
Ingår i 6th International Congress of Clinical Psychology and Health with Children and Adolescents, s. 84-84, 2020
-
2020
-
2020
-
Losing your context - Exploration of emotional suffering after cancer during adolescence
s. 81-81, 2016
-
Non-standard experimental designs and preference designs
2016
-
2015
-
s. 257-257, 2015
-
s. 89-89, 2015
-
s. 114-115, 2015
-
s. 125-125, 2015
-
s. 125-126, 2015
-
s. 65-65, 2014
-
s. 323-323, 2014
-
s. 102-102, 2014
-
s. 55-56, 2014
-
U-CARE: Economic late effects for mothers and fathers of children diagnosed with cancer
s. 7, 2013
-
s. 143-144, 2013
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s. 244-244, 2013
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2013
-
Researching internet-based self-help: ideals and challenges
2013
-
2013
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2013
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Ingår i 12th international Congress of Behavioral Medicine, 29 August - 1 September 2012, Budapest Hilton Hungary, s. 138-138, 2012
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s. 1124-1124, 2012
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U-CARE: a research program on psychosocial care via the internet
2012
-
Ingår i 12th International Congress of Behavioral Medicine, 2012
-
2012
-
Psychosocial care via internet, a mode to achieve improved patient care at a lower cost?
2011
-
2011
Manuskript (preprint)
-
2011
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