Louise von Essen
Professor vid Institutionen för kvinnors och barns hälsa; CIRCLE - Interventionsforskning inom hälsa och vård
- Mobiltelefon:
- 070-425 07 14
- E-post:
- louise-von.essen@uu.se
- Besöksadress:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postadress:
- Akademiska sjukhuset
751 85 UPPSALA
- Akademiska meriter:
- FD, leg. psyk., docent, prof.
- CV:
- Ladda ned CV
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Kort presentation
Jag är leg psykolog, fil dr i psykologi och professor i vårdvetenskap. Jag startade och är programsamordnare för U-CARE, se http://www.u-care.uu.se/. Jag är också forskargruppsledare för gruppen Hälsovetenskap och e-hälsa vid Institutionen för kvinnors och barns hälsa. Min forskning handlar om att hjälpa föräldrar vars barn behandlats för cancer i Sverige respektive Tanzania att handskas med sin livssituation. Se min Google Scholar profil http://scholar.google.se/citations?user=5JX8LpMAAAAJ
Nyckelord
- childhood cancer
- clinical psychology
- clinical trials
- ehealth
- family
- feasibility trials
- informal care
- mental health
- parents
- public involvement
- recruitment
Forskning
The goal of my research is to improve mental health in those struck by a somatic disease in oneself or a close one. My present research mainly concerns developing, testing, evaluating, and implementing e-Mental health interventions for parents of children treated for cancer in Sweden and guardians of children treated for cancer in Tanzania. In my research I collaborate with parents and guardians, and national and international experts e.g. in e-Health, health economy, nursing, and psychology.
Publikationer
Senaste publikationer
- Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden (2024)
- Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings (2024)
- Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project (2024)
- "Systems seem to get in the way" (2024)
- The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual (2024)
Alla publikationer
Artiklar
- Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden (2024)
- Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings (2024)
- Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project (2024)
- "Systems seem to get in the way" (2024)
- The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual (2024)
- E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer (2024)
- Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer (2024)
- Barriers to and Facilitators of the Implementation of Digital Mental Health Interventions as Perceived by Primary Care Decision Makers (2023)
- An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project) (2023)
- Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease (2023)
- Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease (2023)
- Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety (2023)
- Pain in pediatric oncology (2023)
- Concerns experienced by parents of children treated for cancer (2023)
- Psychological interventions for symptoms of depression among informal caregivers of older adult populations (2023)
- Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression (2023)
- Effectiveness, acceptability, and completeness and quality of intervention reporting of psychological interventions for people with dementia or mild cognitive impairment (2023)
- Internet‐administered, low‐intensity cognitive behavioral therapy for parents of children treated for cancer (2023)
- Generalizing approaches to surveillance for complex social outcomes in broad‐range patient populations— (2022)
- Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases (2022)
- Experiences of nurses and coordinators in a childhood obesity prevention trial based on motivational interviewing within Swedish child health services (2022)
- Opt-out rates and reasons for non-participation in a single-arm feasibility trial (ENGAGE) of a guided internet-administered CBT-based intervention for parents of children treated for cancer (2022)
- Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport) (2022)
- The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial (2022)
- Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders (2021)
- Internet-Based Cognitive Behavioral Therapy for Patients Reporting Symptoms of Anxiety and Depression After Myocardial Infarction (2021)
- Ibuprofen in needle procedures in children with cancer (2021)
- Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer (2021)
- Conducting Digital Health Care Research (2021)
- Help-seeking behaviour and attitudes towards internet-administered psychological support among adolescent and young adults previously treated for cancer during childhood (2021)
- Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden (2021)
- Views of Implementers and Nonimplementers of Internet-Administered Cognitive Behavioral Therapy for Depression and Anxiety (2020)
- Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases (2020)
- Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases (2020)
- Heeding the psychological concerns of young cancer survivors (2020)
- Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression (2020)
- Children's self-reports of fear and pain levels during needle procedures (2020)
- Prevention of oral mucositis with cryotherapy in children undergoing hematopoietic stem cell transplantations (2020)
- Concerns and Needs of Support Among Guardians of Children on Cancer Treatment in Dar es Salaam (2020)
- Psychological interventions for depression among informal caregivers of older adult populations (2020)
- Study within a trial (SWAT) protocol. Investigating the effect of personalised versus non-personalised study invitations on recruitment (2020)
- Psychological distress in parents of children treated for cancer (2019)
- Parents' needs of support following the loss of a child to cancer (2019)
- Cancer-related concerns and needs among young adults and children on cancer treatment in Tanzania (2019)
- Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression (2019)
- Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support (2018)
- An open trial of individualized face-to-face cognitive behavior therapy for psychological distress in parents of children after end of treatment for childhood cancer including a cognitive behavioral conceptualization (2018)
- Internet-based Cognitive Behavior Therapy for Symptoms of Depression and Anxiety among Patients with a Recent Myocardial Infarction (2018)
- Predicting Adherence to Internet-Delivered Psychotherapy for Symptoms of Depression and Anxiety After Myocardial Infarction (2018)
- Development of an Internet-Administered Cognitive Behavior Therapy Program (ENGAGE) for Parents of Children Previously Treated for Cancer (2018)
- Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child's death (2018)
- Study protocol for a feasibility study of an internet-administered, guided, CBT-based, self-help intervention (ENGAGE) for parents of children previously treated for cancer (2018)
- Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer (2018)
- Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan) (2017)
- Twelve-Month Follow-Up of a Randomized Controlled Trial of Internet-Based Guided Self-Help for Parents of Children on Cancer Treatment (2017)
- Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting (2017)
- Impact of a child’s cancer disease on parents’ everyday life (2017)
- Perceptions of support among Swedish parents of children after end of successful cancer treatment (2017)
- An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study (2017)
- The interdependence of posttraumatic stress symptoms in parental dyads during and after their child’s treatment for cancer (2017)
- Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence (2016)
- Posttraumatic stress and attentional bias towards cancer-related stimuli in parents of children recently diagnosed with cancer (2016)
- Dimensions of Posttraumatic Stress Symptoms and their Relationships with Depression, Anxiety, and Quality of Life in Parents of Children Recently Diagnosed with Cancer (2016)
- Experiential Avoidance and Rumination in Parents of Children on Cancer Treatment (2016)
- The relationship between fear and pain levels during needle procedures in children from the parents’ perspective (2016)
- Posttraumatic Stress in Parents of Children Diagnosed with Cancer (2016)
- Impressions that last (2016)
- Acceptance as a Mediator for Change in Acceptance and Commitment Therapy for Persons with Chronic Pain? (2016)
- Parents of children diagnosed with cancer (2016)
- Internet-based guided self-help for parents of children on cancer treatment (2015)
- Does time heal all wounds? A longitudinal study of the development of posttraumatic stress symptoms in parents of survivors of childhood cancer and bereaved parents (2015)
- Effect of high-dose paracetamol on needle procedures in children with cancer - a RCT (2014)
- Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation (2014)
- Negative and positive consequences of adolescent cancer 10 years after diagnosis (2014)
- Long-term positive and negative psychological late effects for parents of childhood cancer survivors: A systematic review (2014)
- The Origin and Impact of Ideals in eHealth Research (2014)
- Guided self-help as intervention for traumatic stress in parents of children with cancer: Conceptualization, intervention strategies, and a case study (2013)
- Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment (2013)
- Parents' Perceptions of Their Child's Symptom Burden During and After Cancer Treatment (2013)
- A longitudinal assessment of work situation, sick leave, and household income of mothers and fathers of children with cancer in Sweden (2013)
- Säker och god vård vid universitet (2013)
- The factor structure of traumatic stress in parents of children with cancer (2012)
- Objective and subjective factors as predictors of post-traumatic stress symptoms in parents of children with cancer (2012)
- Health-related quality of life and needs of care and support of adult Tanzanians with cancer (2012)
- Cancer during adolescence (2011)
- Findings on how adolescents cope with cancer (2011)
- Are nurses and physicians able to assess which strategies adolescents recently diagnosed with cancer use to cope with disease- and treatment-related distress? (2011)
- Longitudinally derived psychosocial states among individuals diagnosed with cancer during adolescence up to four years after diagnosis (2011)
- Swedish mothers and fathers of children with cancer (2011)
- Effect of morphine in needle procedures in children with cancer (2011)
- Early avoidance of disease- and treatment-related distress predicts post-traumatic stress in parents of children with cancer (2011)
- Mode of administration only has a small effect on data quality and self-reported health status and emotional distress among Swedish adolescents and young adults (2011)
- Aspects of quality of life, anxiety, and depression among persons diagnosed with cancer during adolescence (2010)
- Effect of morphine on fear, distress and pain in needle procedures in children with cancer (2010)
- Parents' Perceptions of Their Children's Cancer-Related Symptoms During Treatment (2010)
- Is satisfaction with doctors' care related to health related quality of life, anxiety, and depression among patients with carcinoid tumours? (2009)
- Low-dose oral midazolam reduces fear and distress during needle procedures in children with cancer (2009)
- Randomized interventions for needle procedures in children with cancer (2009)
- Empirically derived psychosocial states among adolescents diagnosed with cancer during the acute and extended phase of survival (2009)
- Perceptions of support among Swedish parents of children on cancer treatment (2009)
- Better Care at a Lower Cost (2009)
- Physical problems and psychosocial function in children with cancer (2008)
- Are there any positive consequences of childhood cancer? (2008)
- Posttraumatic stress disorder among parents of children on cancer treatment (2008)
- Spontaneous reports of most distressing concerns in patients with inoperable lung cancer (2007)
- Prevalence of aspects of distress, coping, support and care among adolescents and young adolescents undergoing and being off cancer treatment (2007)
- Patient attitudes, behaviours, and other factors considered by doctors when estimating cancer patients' anxiety and desire for information (2007)
- Health related quality of life and psychosocial function among patients with carcinoid tumours. A longitudinal, prospective, and comparative study (2007)
- Psychiatric care behind locked doors. A study regarding the frequency of and the reasons for locked psychiatric wards in Sweden (2007)
- Health-related quality of life, anxiety and depression among adolescents and young adults with cancer (2007)
- Are importance-satisfaction discrepancies with regard to ratings of specific health-related quality-of-life aspects valid indicators of disease- and treatment-related distress among patients with endocrine gastrointestinal tumours? (2007)
- Positive and negative consequences with regard to cancer during adolescence (2007)
- Is doctors' ability to identify cancer patients' worry and wish for information related to doctors' self-efficacy with regard to communicating about difficult matters? (2006)
- Psychiatric wards with locked doors (2006)
- Accuracy of assessment of distress, anxiety, and depression by physicians and nurses in adolescents recently diagnosed with cancer (2006)
- Measuring health-related quality of life in adolescents and young adults (2006)
- Discrepancies and similarities in how patients with lung cancer and their professional and family caregivers assess symptom occurrence and symptom distress. (2005)
- Swedish teenager perceptions of teenage pregnancy, abortion, sexual behavior, and contraceptive habits (2005)
- Locked entrance doors at psychiatric wards (2005)
- Perceptions of distress among adolescents recently diagnosed with cancer (2005)
- Medication administration in inpatient psychiatric care (2004)
- Distressing and positive experiences and important aspects of care for adolescents treated for cancer (2004)
- Proxy Ratings of Patient Quality of Life (2004)
- Swedish Mothers and Fathers of a Child Diagnosed with Cancer (2004)
- Patients' satisfaction ratings and their desire for care improvement across oncology settings from France, Italy, Poland and Sweden (2003)
- Forced medication in psychiatric care (2003)
- Distressing events for children and adolescents with cancer (2003)
- Distress, quality of life and strategies to 'keep a good mood' in patients with carcinoid tumours (2003)
- Important aspects of care and assistance for siblings of children treated for cancer (2003)
- The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff (2003)
- Women's voices about emergency contraceptive pills "over-the-counter" (2002)
- Trots lättillgängliga akut-p-piller sjunker inte antalet aborter (2002)
- Important aspects of care and assistance for children 0-7 years of age being treated for cancer (2002)
- 'Satisfaction with care' (2002)
- A comprehensive assessment of satisfaction with care (2001)
- Health-Related Quality of Life, Anxiety and Depression in Patients with Midgut Carcinoid Tumours (2001)
- Important aspects of care and assistance for parents of children, 0-18 years of age, on or off treatment for cancer. Parent and nurse perceptions. (2001)
- Important aspects of care and assistance for children with cancer (2000)
- Cancer Patients' and their Physicians' Perceptions of the Formers' need for Occupational Therapy (2000)
- God kommunikation (2000)
- Self-esteem, depression and anxiety among Swedish children and adolescents on and off cancer treatment (2000)
- Perceptions of caring among patients with cancer and their staff (2000)
- Importance-satisfaction discrepancies are associated with health-related quality of life in five-year survivors of endocrine gastrointestinal tumours (1999)
- Health-related quality of life in patients with endocrine tumours of the gastrointestinal tract (1999)
- Development of the Royal Marsden Hospital Paediatric Oncology Quality of Life Questionnaire (1999)
- Quality of life in patients with endocrine tumors of the gastrointestinal tract (1998)
- Cancer patient and staff ratings of the importance of caring behaviours and their relations to patient anxiety and depression (1998)
- Cancer Patient and Staff Perceptions of Caring and Clinical Care in Free versus Forced Choice Response Formats (1998)
- Perceptions of caring (1998)
- Development of a tool to measure the life situation of parents of children with cancer (1997)
- Vad är god omvårdnad? (1997)
- Psykosocial funktion bland barn och ungdomar med cancer (1997)
- Anxiety and depression in hospitalized patients with cancer (1996)
- Psychological long-term coping with experience of disease and treatment in childhood cancer survivors. (1996)
- Invited commentary: Psychological long-term coping with experience of disease and treatment in childhood cancer survivors (1996)
- Cancer patient and staff perceptions of caring vs clinical care (1996)
- Nursing behaviors that make patients feel cared for (1995)
- Perceived occurrence and importance of caring behaviours among patients and staff in psychiatric, medical and surgical care (1995)
- Perceptions of caring behaviors and patient anxiety and depression in cancer patient-staff dyads (1994)
- Perceived importance of caring behaviors to Swedish psychiatric inpatients and staff, with comparisons to somatically-ill samples (1993)
- The importance of nurse caring behaviors as perceived by Swedish hospital patients and nursing staff (1991)
- Patient and staff perceptions of caring (1991)
- Patienter och personal inte ense om "god vård" (In Swedish) (1991)
- Forskning bekräftar inte alltid beprövad erfarenhet (In Swedish) (1990)
- Locked entrance doors at psychiatric wards. Occurrence and reasons.
- A cognitive behavioral conceptualization of cancer-related psychological distress in parents of childhood cancer survivors
- Development and preliminary evaluation of individualized face-to-face cognitive behavior therapy for psychological distress in parents of childhood cancer survivors
Böcker
- Addressing the health challenges in immigration detention, and alternatives to detention (2022)
- What is good caring? (1994)
Kapitel
- Non-standard and preference designs (2015)
- Vad är god omvårdnad? (2005)
- Disease and treatment-related distress among children aged 4-7 years: parent and nurse perceptions (2004)
- Barns reaktioner vid sjukhusvistelse (2000)
- Uppfattningar om god omvårdnad och patienters oro och nedstämdhet bland patienter och personal inom onkologisk vård (1997)
- Vad är god omvårdnad? Uppfattningar hos patienter och personal i onkologisk, kirurgisk och medicinsk sjukhusvård (1995)
Konferenser
- Development of a self-help behavioural activation intervention INVOLVERA for people with dementia (2023)
- Stakeholder perspectives on implementation of e-mental health interventions for caregivers of adults with kidney conditions (2023)
- Sources of support and views of e-mental health among caregivers of adults with kidney conditions (2023)
- Implementation of e-mental health interventions for informal caregivers – a systematic review of what we know and where to go next (2023)
- Development and co-design of a behavioral activation intervention targeting depression among people with dementia for the Swedish context (2023)
- Self-help intervention preferences among informal caregivers of adults with kidney conditions: an online cross-sectional survey (2022)
- The role of perceived responsiveness in a multinational group of caregivers: a moderated mediation model (2022)
- Effectiveness of cognitive behavioural therapy-based interventions for maternal perinatal depression (2022)
- Developing and adapting a guided low-intensity behavioral activation intervention targeting depression in people with dementia for the Swedish context (The INVOLVERA Study) (2022)
- Barriers and facilitators to implementing e-mental health interventions – a systematic review focusing in on interventions for informal cancer and dementia caregivers (2021)
- Implementation of e-mental health interventions for informal caregivers: a systematic review (2021)
- Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA) (2021)
- Baby&Me (2020)
- Development of an integrated behavioural activation and parenting internet-administered intervention for postpartum depression parenting sensitivity (2020)
- Effectiveness and acceptability of cognitive behavioural therapy based interventions for maternal peripartum depression (2020)
- Losing your context - Exploration of emotional suffering after cancer during adolescence (2016)
- Non-standard experimental designs and preference designs (2016)
- Identification of Cancer-related Psychological Suffering Experienced by Young People Diagnosed with Cancer During Adolescence and Development of a Psychological Treatment to Reduce This Suffering (2015)
- Health Economic Outcomes One Year after Internet-based Guided Self-help Targeting Posttraumatic Stress Symptoms in Parents of Children Recently Diagnosed with Cancer (2015)
- Internet-based Guided Self-help for Parents of Children Diagnosed with Cancer (2015)
- Attentional bias towards cancer-related stimuli is related to symptoms of posttraumatic stress in parents of children recently diagnosed with cancer (2015)
- Development, Testing, and Evaluation of an Online, Guided, Psychological Intervention for Parents of Children Previously Treated for Cancer (2015)
- Swedish parents’ need and opportunity to talk to a psychologist after end of their child’s cancer treatment: a longitudinal study (2015)
- Guided Self-help via the Internet for Parents of Children Recently Diagnosed with Cancer (2014)
- Cancer During Adolescence (2014)
- Development of a Psychological Treatment for Psychological Distress in Parents of Children Previously treated for with Cancer (2014)
- Does Time Heal all Wounds? (2014)
- U-CARE (2013)
- U-CARE: Adolescent involvement in psychosocial research including the design of an internet based psychological intervention (2013)
- U-CARE Heart: A Randomized Controlled Study of the Effects of Internet-based Cognitive Behavior Therapy on Depression and Anxiety in Patients with a Previous Myocardial Infarction (2013)
- U-CARE: Economic late effects for mothers and fathers of children diagnosed with cancer (2013)
- U-CARE – internet-based psychosocial care and psychological treatment in connection to somatic disease (2013)
- Post-Traumatic Stress Symptoms in Parental Dyads of Children Diagnosed With Cancer (2013)
- Researching internet-based self-help: ideals and challenges (2013)
- Guided self-help as intervention for traumatic stress in parents of children with cancer (2012)
- Avoidance and hyperarousal mediates the relationship between reexperiencing and dysphoria in parents of children with cancer (2012)
- Avoidance and hyperarousal mediate the relationship between reexperiencing and dysphoria in parents of children with cancer (2012)
- The relationship between traumatic stress, experiential avoidance, and depression in parents of children recently diagnosed with cancer (2012)
- U-CARE (2012)
- Psychosocial care via internet, a mode to achieve improved patient care at a lower cost? (2011)
- Cancer during adolescence: negative and positive consequences reported during the acute and extended phase of survival. (2011)