Equal palliative care

The project conducts research focusing on palliative care of foreign-born patients

Description

This project focus on an understudied group within palliative care: foreign-born patients receiving palliative care and their next-of-kin.

Registry studies and qualitative studies are conducted, focusing on investigating associations between country of birth and quality of end-of-life care of patients, and to explore experiences of the specialized palliative care from the perspective of next-of-kin of foreign-born patients.

Registry study

A retrospective registry study has been conducted within the project. The study used data from the Swedish Register of Palliative Care to investigate associations between country of birth and and quality of end-of-life care of patients dying in Sweden. More than 81 000 deceased patients were included in the study. No general patterns of differences in quality regarding end-of-life care was found between Swedish- and foreign-born patients.

Experiences of palliative care

Within the project, a qualitative study has further been conducted. The study focused on preferences, expectations on and experiences of specialist palliative care from the perspective of next-of-kin of foreign-born patients. Semi-structured interviews were conducted with 7 close relatives, and interviews were analyzed using systematic text condensation.

Read about the results of the study here