Caring sciences
The research group Caring sciences conducts research aiming to develop knowledge about health promoting activities to improve health, quality of life and relieve suffering
Description
The research group Caring sciences conducts research that aims to develop and evaluate health promoting activities and cancer rehabilitation. Our research spans over a broad field, from reproductive, perinatal and sexual health, to care of elders and transcultural care including health of migrants and global public health problems.
The research group consist of approximately 50 members, and is led by professor Lena Wettergren.
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About us
Read more about our research areas
Publications
Our recent scientific articles and theses
Ongoing within the research group
Group members
Publications
Experiences of adult patients with cancer at a specialized cancer care facility in Uganda
Part of Journal of Psychosocial Oncology Research and Practice, 2025
- DOI for Experiences of adult patients with cancer at a specialized cancer care facility in Uganda
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Part of International Journal of Adolescence and Youth, 2025
- DOI for The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis
- Download full text (pdf) of The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis
Perceptions of caring behaviors: Experiences of nurses in Ethiopia
Part of Nursing and Health Sciences, 2024
Health-related quality of life among adult patients with cancer in Uganda: a cross-sectional study
Part of Global Health Action, 2024
- DOI for Health-related quality of life among adult patients with cancer in Uganda: a cross-sectional study
- Download full text (pdf) of Health-related quality of life among adult patients with cancer in Uganda: a cross-sectional study
Part of Journal of Advanced Nursing, 2024
Psychosocial correlates of drinking transitions: A longitudinal study among adolescents in Sweden
Part of Drug and Alcohol Review, p. 643-653, 2024
- DOI for Psychosocial correlates of drinking transitions: A longitudinal study among adolescents in Sweden
- Download full text (pdf) of Psychosocial correlates of drinking transitions: A longitudinal study among adolescents in Sweden
Part of Internet Interventions, 2024
- DOI for Efficacy of a web-based psychoeducational intervention, Fex-can sex, for young adult childhood cancer survivors with sexual dysfunction: A randomized controlled trial
- Download full text (pdf) of Efficacy of a web-based psychoeducational intervention, Fex-can sex, for young adult childhood cancer survivors with sexual dysfunction: A randomized controlled trial
Part of International Journal of Cancer, p. 2121-2131, 2024
- DOI for Reproductive late effects and testosterone replacement therapy in male childhood cancer survivors: A population-based study (the Fex-Can study)
- Download full text (pdf) of Reproductive late effects and testosterone replacement therapy in male childhood cancer survivors: A population-based study (the Fex-Can study)
Registered nurses' experiences on job satisfaction in nursing home settings
Part of Nursing Open, 2024
- DOI for Registered nurses' experiences on job satisfaction in nursing home settings
- Download full text (pdf) of Registered nurses' experiences on job satisfaction in nursing home settings
Part of Social Science and Medicine, 2024
- DOI for Adolescents' challenging and grief-filled transitions when living with a parent with ALS: A qualitative interpretive study
- Download full text (pdf) of Adolescents' challenging and grief-filled transitions when living with a parent with ALS: A qualitative interpretive study
Part of BMC Psychiatry, 2024
- DOI for Healthcare professionals' perceptions of the contributions of rehabilitation coordinators to patients in Swedish psychiatric care: a qualitative descriptive study
- Download full text (pdf) of Healthcare professionals' perceptions of the contributions of rehabilitation coordinators to patients in Swedish psychiatric care: a qualitative descriptive study
2024
Part of International Journal of Adolescence and Youth, 2024
- DOI for When does a non-drinker become a drinker - and what can we learn from this?: A reply to Boson, Vlasman and Berglund
- Download full text (pdf) of When does a non-drinker become a drinker - and what can we learn from this?: A reply to Boson, Vlasman and Berglund
Nurses' perceptions of caring behaviors at referral hospitals in Ethiopia: A mixed-methods approach
Part of BMC Nursing, 2024
- DOI for Nurses' perceptions of caring behaviors at referral hospitals in Ethiopia: A mixed-methods approach
- Download full text (pdf) of Nurses' perceptions of caring behaviors at referral hospitals in Ethiopia: A mixed-methods approach
Part of Supportive Care in Cancer, 2024
- DOI for Health-related quality of life and supportive care needs in young adult cancer survivors: a longitudinal population-based study
- Download full text (pdf) of Health-related quality of life and supportive care needs in young adult cancer survivors: a longitudinal population-based study
My grief app for prolonged grief in bereaved parents: a randomised waitlist-controlled trial
Part of Cognitive Behaviour Therapy, p. 1-17, 2024
Part of Digital Health, 2024
- DOI for Efficacy of a web-based psychoeducational intervention targeting young adults with sexual problems 1.5 years after cancer diagnosis—Results from a randomized controlled trial
- Download full text (pdf) of Efficacy of a web-based psychoeducational intervention targeting young adults with sexual problems 1.5 years after cancer diagnosis—Results from a randomized controlled trial
Part of Journal of Psychosocial Oncology Research and Practice, p. 100-100, 2024
Part of Journal of Psychosocial Oncology Research and Practice, p. 103-103, 2024
Part of Journal of Psychosocial Oncology Research and Practice, p. 101-101, 2024
Part of Journal of Adolescent Health, p. 1225-1230, 2024
- DOI for Early Drinking Onset and Subsequent Alcohol Use in Late Adolescence: a Longitudinal Study of Drinking Patterns
- Download full text (pdf) of Early Drinking Onset and Subsequent Alcohol Use in Late Adolescence: a Longitudinal Study of Drinking Patterns
Part of Human Reproduction, p. 1247-1255, 2024
- DOI for Using the theory of planned behavior to predict parents' disclosure of donor conception to their children: a longitudinal study
- Download full text (pdf) of Using the theory of planned behavior to predict parents' disclosure of donor conception to their children: a longitudinal study
Patients' experience of undergoing maintenance hemodialysis: An interview study from Ethiopia
Part of PLOS ONE, 2023
- DOI for Patients' experience of undergoing maintenance hemodialysis: An interview study from Ethiopia
- Download full text (pdf) of Patients' experience of undergoing maintenance hemodialysis: An interview study from Ethiopia
Part of Internet Interventions, 2023
- DOI for Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
- Download full text (pdf) of Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
Part of Journal of the Neurological Sciences, 2023
- DOI for Symptoms of anxiety and depression in patients with amyotrophic lateral sclerosis and their relatives during the disease trajectory
- Download full text (pdf) of Symptoms of anxiety and depression in patients with amyotrophic lateral sclerosis and their relatives during the disease trajectory
Part of Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, p. 727-735, 2023
- DOI for Living with a parent with ALS: adolescents' need for professional support from the adolescents' and the parents' perspectives
- Download full text (pdf) of Living with a parent with ALS: adolescents' need for professional support from the adolescents' and the parents' perspectives
Part of European Journal of Oncology Nursing, 2023
- DOI for Understanding the challenges and need for support of informal caregivers to individuals with head and neck cancer - A basis for developing internet-based support
- Download full text (pdf) of Understanding the challenges and need for support of informal caregivers to individuals with head and neck cancer - A basis for developing internet-based support
Part of Cancer Medicine, p. 17273-17283, 2023
- DOI for The role of a discussion forum within a web-based psychoeducational intervention focusing on sex and fertility: What do young adults communicate?
- Download full text (pdf) of The role of a discussion forum within a web-based psychoeducational intervention focusing on sex and fertility: What do young adults communicate?
Part of International Journal of Nursing Sciences, p. 391-397, 2023
- DOI for Patients' perceptions of caring behaviors at referral hospitals in Ethiopia: A cross-sectional survey
- Download full text (pdf) of Patients' perceptions of caring behaviors at referral hospitals in Ethiopia: A cross-sectional survey
Part of Health and Quality of Life Outcomes, 2023
- DOI for Health-related quality of life among patients with end-stage renal disease undergoing hemodialysis in Ethiopia: a cross-sectional survey
- Download full text (pdf) of Health-related quality of life among patients with end-stage renal disease undergoing hemodialysis in Ethiopia: a cross-sectional survey
Part of JMIR Cancer, 2023
- DOI for Positive Design Framework for Carer-eSupport: A Qualitative Study to Support Informal Caregivers of Patients with Head and Neck Cancer in Sweden
- Download full text (pdf) of Positive Design Framework for Carer-eSupport: A Qualitative Study to Support Informal Caregivers of Patients with Head and Neck Cancer in Sweden
Part of Cancer Medicine, p. 9893-9901, 2023
Part of Omega, 2023
- DOI for Experiences of Next-of-Kin to Foreign-Born Dying Patients Cared for in Specialist Palliative Care: A Qualitative Study
- Download full text (pdf) of Experiences of Next-of-Kin to Foreign-Born Dying Patients Cared for in Specialist Palliative Care: A Qualitative Study
Part of Acta Oncologica, p. 1599-1606, 2023
- DOI for Prevalence and predictors for fertility-related distress among 1010 young adults 1.5 years following cancer diagnosis: results from the population-based Fex-Can Cohort study
- Download full text (pdf) of Prevalence and predictors for fertility-related distress among 1010 young adults 1.5 years following cancer diagnosis: results from the population-based Fex-Can Cohort study
Part of Sexual Medicine, 2023
- DOI for Psychometric evaluation of the Swedish version of the PROMIS Sexual Function and Satisfaction Measures in clinical and nonclinical young adult populations
- Download full text (pdf) of Psychometric evaluation of the Swedish version of the PROMIS Sexual Function and Satisfaction Measures in clinical and nonclinical young adult populations
Part of International Journal of Cancer, p. 644-653, 2023
- DOI for Premature ovarian insufficiency and chance of pregnancy after childhood cancer: A population-based study (the Fex-Can study)
- Download full text (pdf) of Premature ovarian insufficiency and chance of pregnancy after childhood cancer: A population-based study (the Fex-Can study)
Part of Palliative & Supportive Care, 2023
- DOI for Pain in patients with motor neuron disease: Variation of pain and association with disease severity, health-related quality of life and depression – A longitudinal study
- Download full text (pdf) of Pain in patients with motor neuron disease: Variation of pain and association with disease severity, health-related quality of life and depression – A longitudinal study
Part of Internet Interventions, 2022
- DOI for Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content
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Cancer in young adulthood: classifying the intensity of treatment
Part of Acta Oncologica, p. 809-813, 2022
Part of PEC Innovation, 2022
- DOI for Determinants of exercise adherence and maintenance for cancer survivors: Implementation of a community-based group exercise program. A qualitative feasibility study
- Download full text (pdf) of Determinants of exercise adherence and maintenance for cancer survivors: Implementation of a community-based group exercise program. A qualitative feasibility study
Part of PLOS ONE, 2022
- DOI for Translation and psychometric evaluation of chronic illness anticipated stigma scale (CIASS) among patients in Ethiopia
- Download full text (pdf) of Translation and psychometric evaluation of chronic illness anticipated stigma scale (CIASS) among patients in Ethiopia
Part of Palliative & Supportive Care, p. 203-211, 2022
- DOI for Quality of life among relatives of patients with amyotrophic lateral sclerosis: A prospective and longitudinal study.
- Download full text (pdf) of Quality of life among relatives of patients with amyotrophic lateral sclerosis: A prospective and longitudinal study.
Part of BMJ Open, 2022
- DOI for Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
- Download full text (pdf) of Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
Part of Health and Quality of Life Outcomes, 2022
- DOI for Psychometric properties of the kidney disease quality of life-36 (KDQOL-36) in Ethiopian patients undergoing hemodialysis
- Download full text (pdf) of Psychometric properties of the kidney disease quality of life-36 (KDQOL-36) in Ethiopian patients undergoing hemodialysis
Part of JMIR Cancer, 2022
- DOI for Efficacy of a Web-Based Psychoeducational Intervention for Young Adults With Fertility-Related Distress Following Cancer (Fex-Can): Randomized Controlled Trial
- Download full text (pdf) of Efficacy of a Web-Based Psychoeducational Intervention for Young Adults With Fertility-Related Distress Following Cancer (Fex-Can): Randomized Controlled Trial
Psychometric Properties of the Caring Behaviors Inventory-16 in Ethiopia
Part of Nursing Reports, p. 387-396, 2022
- DOI for Psychometric Properties of the Caring Behaviors Inventory-16 in Ethiopia
- Download full text (pdf) of Psychometric Properties of the Caring Behaviors Inventory-16 in Ethiopia
Part of Nordic journal of nursing research, p. 18-27, 2022
- DOI for Is it possible to increase the amount of physical activity in patients isolated due to hematopoietic stem cell transplantation using a nursing intervention?: A feasibility study
- Download full text (pdf) of Is it possible to increase the amount of physical activity in patients isolated due to hematopoietic stem cell transplantation using a nursing intervention?: A feasibility study
Part of Acta Oncologica, p. 1165-1172, 2022
- DOI for Prevalence and risk factors for sexual dysfunction in young women following a cancer diagnosis - a population-based study
- Download full text (pdf) of Prevalence and risk factors for sexual dysfunction in young women following a cancer diagnosis - a population-based study
Part of Journal of Leukocyte Biology, p. 655-665, 2022
- DOI for Elevated F-EDN correlates with mucosal eosinophil degranulation in patients with IBS-A possible association with microbiota?
- Download full text (pdf) of Elevated F-EDN correlates with mucosal eosinophil degranulation in patients with IBS-A possible association with microbiota?
Part of Physiotherapy Theory and Practice, p. 141-150, 2022
- DOI for The Phys-Can study: meaningful and challenging - supervising physical exercise in a community-based setting for persons undergoing curative oncological treatment
- Download full text (pdf) of The Phys-Can study: meaningful and challenging - supervising physical exercise in a community-based setting for persons undergoing curative oncological treatment
2021
Part of Open Journal of Nursing, p. 882-895, 2021
- DOI for Cancer Survivors' Experience of Health-Related Quality of Life Six to Eight Years after Diagnosis: A Qualitative Study
- Download full text (pdf) of Cancer Survivors' Experience of Health-Related Quality of Life Six to Eight Years after Diagnosis: A Qualitative Study
Part of BMC Health Services Research, 2021
- DOI for Healthcare professionals' perceptions about interprofessional teamwork: a national survey within Swedish child healthcare services
- Download full text (pdf) of Healthcare professionals' perceptions about interprofessional teamwork: a national survey within Swedish child healthcare services
Equal palliative care for foreign-born patients: A national quality register study
Part of Palliative & Supportive Care, p. 656-663, 2021
- DOI for Equal palliative care for foreign-born patients: A national quality register study
- Download full text (pdf) of Equal palliative care for foreign-born patients: A national quality register study
Part of Acta Oncologica, p. 976-983, 2021
- DOI for Fertility-related information received by young women and men with cancer - a population-based survey
- Download full text (pdf) of Fertility-related information received by young women and men with cancer - a population-based survey
Taxane-induced pain in breast cancer patients as perceived by nurses
Part of Acta Oncologica, p. 412-418, 2021
Part of Journal of Advanced Nursing, p. 2472-2480, 2021
- DOI for Towards a new understanding of HIV-related stigma in the era of efficient treatment: A qualitative reconceptualization of existing theory
- Download full text (pdf) of Towards a new understanding of HIV-related stigma in the era of efficient treatment: A qualitative reconceptualization of existing theory
Sexual dysfunction in young adult survivors of childhood cancer - A population-based study
Part of European Journal of Cancer, p. 147-156, 2021
- DOI for Sexual dysfunction in young adult survivors of childhood cancer - A population-based study
- Download full text (pdf) of Sexual dysfunction in young adult survivors of childhood cancer - A population-based study
Part of BMC Palliative Care, 2021
- DOI for Pain, disease severity and associations with individual quality of life in patients with motor neuron diseases
- Download full text (pdf) of Pain, disease severity and associations with individual quality of life in patients with motor neuron diseases
Psychometric properties of the EORTC QLQ-C30 in Uganda
Part of Health and Quality of Life Outcomes, 2021
- DOI for Psychometric properties of the EORTC QLQ-C30 in Uganda
- Download full text (pdf) of Psychometric properties of the EORTC QLQ-C30 in Uganda
Part of Socialmedicinsk Tidskrift, p. 624-632, 2021
Part of Human Reproduction, p. 2181-2188, 2021
- DOI for Positioning the donor in a new landscape-mothers' and fathers' experiences as their adult children obtained information about the identity-release sperm donor
- Download full text (pdf) of Positioning the donor in a new landscape-mothers' and fathers' experiences as their adult children obtained information about the identity-release sperm donor
Part of Human Reproduction, p. 395-404, 2021
- DOI for Understanding parents' intention to disclose the donor conception to their child by application of the theory of planned behaviour
- Download full text (pdf) of Understanding parents' intention to disclose the donor conception to their child by application of the theory of planned behaviour
Part of Clinical Psychology Review, 2020
Part of Psycho-Oncology, p. 1772-1785, 2020
Part of Geriatric Nursing, p. 790-803, 2020
Part of Research Involvement and Engagement, 2020
- DOI for What makes it work?: Exploring experiences of patient research partners and researchers involved in a long-term co-creative research collaboration
- Download full text (pdf) of What makes it work?: Exploring experiences of patient research partners and researchers involved in a long-term co-creative research collaboration
Part of PLOS ONE, 2020
- DOI for Experiences of a web-based psycho-educational intervention targeting sexual dysfunction and fertility distress in young adults with cancer-A self-determination theory perspective
- Download full text (pdf) of Experiences of a web-based psycho-educational intervention targeting sexual dysfunction and fertility distress in young adults with cancer-A self-determination theory perspective
Part of Medicine, 2020
- DOI for Study protocol for the Fex-Can Childhood project An observational study and a randomized controlled trial focusing on sexual dysfunction and fertility-related distress in young adult survivors of childhood cancer
- Download full text (pdf) of Study protocol for the Fex-Can Childhood project An observational study and a randomized controlled trial focusing on sexual dysfunction and fertility-related distress in young adult survivors of childhood cancer
Using communication to manage missed care: A case study applying the Fundamentals of Care framework
Part of Journal of Nursing Management, p. 2091-2102, 2020
Part of Supportive Care in Cancer, p. 3343-3350, 2020
Part of European Journal of Oncology Nursing, 2020
- DOI for Exercise: A positive feature on functioning in daily life during cancer treatment — Experiences from the Phys-Can study
- Download full text (pdf) of Exercise: A positive feature on functioning in daily life during cancer treatment — Experiences from the Phys-Can study
Part of Health and Quality of Life Outcomes, 2020
- DOI for Cultural adaptation and psychometric evaluation of the Swedish version of the Reproductive Concerns After Cancer (RCAC) scale
- Download full text (pdf) of Cultural adaptation and psychometric evaluation of the Swedish version of the Reproductive Concerns After Cancer (RCAC) scale
Part of BMC Cancer, 2020
- DOI for Sexual dysfunction and fertility-related distress in young adults with cancer over 5 years following diagnosis: study protocol of the Fex-Can Cohort study
- Download full text (pdf) of Sexual dysfunction and fertility-related distress in young adults with cancer over 5 years following diagnosis: study protocol of the Fex-Can Cohort study
Part of Fertility Research and Practice, 2020
- DOI for Attitudes among paediatric healthcare professionals in Sweden towards sperm donation to single women: a survey study
- Download full text (pdf) of Attitudes among paediatric healthcare professionals in Sweden towards sperm donation to single women: a survey study
Sexual Dysfunction Among Young Adults in Sweden: A Population-Based Observational Study
Part of Sexual Medicine, p. 631-642, 2020
- DOI for Sexual Dysfunction Among Young Adults in Sweden: A Population-Based Observational Study
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Mothers who have given birth at an advanced age: health status before and after childbirth
Part of Scientific Reports, 2020
- DOI for Mothers who have given birth at an advanced age: health status before and after childbirth
- Download full text (pdf) of Mothers who have given birth at an advanced age: health status before and after childbirth
Part of Disability and Rehabilitation, p. 2123-2132, 2020
Part of Psycho-Oncology, p. 301-308, 2019
Caring in nursing homes to promote autonomy and participation
Part of Nursing Ethics, p. 280-292, 2019
Part of Geriatric Nursing, p. 67-71, 2019
Measuring Pregnancy Planning and the Effect of Childhood Abuse on Reproductive Health
2019
Part of Journal of Medical Internet Research, 2019
- DOI for Identification of Anxiety and Depression Symptoms in Patients With Cancer: Comparison Between Short and Long Web-Based Questionnaires
- Download full text (pdf) of Identification of Anxiety and Depression Symptoms in Patients With Cancer: Comparison Between Short and Long Web-Based Questionnaires
Part of International Journal of Behavioral Medicine, p. 499-511, 2019
- DOI for "Finding my own motivation" - A Mixed Methods Study of Exercise and Behaviour Change Support During Oncological Treatment
- Download full text (pdf) of "Finding my own motivation" - A Mixed Methods Study of Exercise and Behaviour Change Support During Oncological Treatment
Part of Aging & Mental Health, p. 53-60, 2018
- DOI for Development of the PHASE-Proxy scale for rating drug-related signs and symptoms in severe cognitive impairment
- Download full text (pdf) of Development of the PHASE-Proxy scale for rating drug-related signs and symptoms in severe cognitive impairment
2018
Part of Psycho-Oncology, p. 1150-1161, 2018
Part of Scandinavian Journal of Pain, p. 581-591, 2018
Building the Foundation to Generate a Fundamental Care Standardized Data Set
Part of Journal of Clinical Nursing, p. 2481-2488, 2018
Part of Nurse Education Today, p. 233-239, 2018
Descriptions of fundamental care needs in cancer care: an exploratory study
Part of Journal of Clinical Nursing, p. 2322-2332, 2018
Part of Socialmedicinsk tidskrift, 2018
Part of BMC Medical Education, 2018
- DOI for Internationally educated nurses' and medical graduates' experiences of getting a license and practicing in Sweden - a qualitative interview study.
- Download full text (pdf) of Internationally educated nurses' and medical graduates' experiences of getting a license and practicing in Sweden - a qualitative interview study.
Swedish HIV caregivers experiences of providing care to HIV-positive Migrants: A qualitative study
Part of Journal of AIDS and Clinical Research, 2018
From denial to awareness: a conceptual model for obtaining equity in healthcare
Part of International Journal for Equity in Health, 2018
Part of Journal of Evaluation In Clinical Practice, p. 89-95, 2017
A prospective study of quality of life in amyotrophic lateral sclerosis patients
Part of Acta Neurologica Scandinavica, p. 631-638, 2017
Unavoidable pressure ulcers at the end of life and nurse understanding
Part of British Journal of Nursing, 2017
Part of Nurse Education Today, p. 63-67, 2017
Part of BMJ Open, 2017
- DOI for The postoperative handover: a focus group interview study with nurse anaesthetists, anaesthesiologists and PACU nurses
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