Femte numret: Barns röster i forskning och vård – Deltagande, assent autonomi

de Miranda, L. (2026). Eudynamic bioethics. Medicine, Health care and Philosophy

Jakobsson, M., Ventovaara, H., Brostrom, E., Pergert, P., Tiselius, E. & Jungner, J. G. (2026). Interpreter use in Nordic paediatric oncology care: -a multicentre cross-sectional study. Acta Oncologica, 65, 721-729

Inoue, Y. & Viberg Johansson, J. (2026). Ethics of Health Data Infrastructures: Toward Continuous Governance and Public Trust. Journal of Medical Internet Research, 28, Article ID e104402.

Behera, B., Ingvoldstad, C., Astrom, E., Chitty, L. S., Crowe, B., David, A. L., . . . Hill, M. (2026). Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta. European Journal of Human Genetics, 34(8), 1176-1184

Evers, K. & Farisco, M. (2026). Is conscious AI desirable?. Behavioral and Brain Sciences, 49, Article ID e332.

Sjöstrand, M., Juth, N., Karlsson, E. & Rahm, C. (2026). Third-Party Perspective in Medical Research Ethics: A Case Series of Clinical Trials Involving Individuals with Sexual Interest in Children. Journal of Bioethical Inquiry.

Driouach, R., Badea, C. & Martin, S. (2026). A systematic review culturally adapted Cognitive Behavioral Therapy (CaCBT) for Arabic-speaking populations including North African subgroups. BMC Psychology, 14(1), Article ID 1215.

Ancillotti, M., Andersson, D. I. & Sandegren, L. (2026). When Does Evidence Create a Moral Obligation to Depart from Antibiotic Guidelines?. American Journal of Bioethics, 26(9), 109-111

Soller, M. J., Luckhaus, J. L., Juran, S. & Ingvoldstad Malmgren, C. (2026). Diagnostic delay, care needs, and trust in healthcare among persons with rare disease and their next of kin living in Sweden. Journal of Community Genetics, 17(5), Article ID 102.

Falkenström, E. & Selberg, R. (2026). Policy Without Necessary Preconditions: An Analysis of Policy Documents on Swedish Preparedness in the Healthcare Sector Before, During, and After COVID-19. Journal of Contingencies and Crisis Management, 34(3), Article ID e70215.

Farisco, M. (2026). The ethical implications of using Artificial Intelligence in Disorders of Consciousness. In: Raffone, Antonino (Ed.), Consciousness: A Comprehensive Reference (Second Edition): (pp. 119-131). Oxford: Elsevier

Martin, S., Grauman, Å., Coulter, J., Hansson, M. G., Ferlini, A., Fortunato, F., . . . Veldwijk, J. (2026). What is at stake in genetic newborn screening for rare diseases? An exploratory qualitative study of parents’ and expectant parents’ concerns in the Screen4Care project. Public Health Genomics, 29(1), 242-256

Colonnello, C., Fernow, J., Luigi Marta, F. & Turco, F. (2026). Lines of flight: good practices in MINDtheGEPs’ Gender Equality Plans. In: Cristina Solera & Manuela Naldini (Ed.), Gender (In)equality in Research and Science: A Multilevel Analysis across Europe (pp. 213-232). Uppsala: Edward Elgar Publishing

Driouach, R., Badea, C. & Martin, S. (2026). Comparing emotion regulation, perceived discrimination, perceived social support and anxiety in North African immigrant and native French populations. Scientific Reports, 16(1), Article ID 20549.

Clarke, A., Horn, R., Avram, E., Banka, S., Boardman, F., Charlton, V., . . . Forzano, F. (2026). Rare disease genomics and justice: overview of a workshop at the Fondation Brocher, 22-24 January 2025. Journal of Community Genetics, 17(4), Article ID 82.

Martin, S., Grauman, Å., Coulter, J., Hasan, B., Veldwijk, J., Hansson, M. G., . . . Zschuentzsch, J. (2026). Patients' and Providers' Attitudes Toward Artificial Intelligence and Electronic Health Record Use in Deep Phenotyping and Rare-Disease Screening: An Empty Systematic Review. Healthcare, 14(14), Article ID 2153.

Sandman, L., Henriksson, M., Gustavsson, E., Lindqvist, D. & Juth, N. (2026). Cost-effectiveness, pharmaceutical pricing and the value flower: doing some gardening. Medicine, Health care and Philosophy

Sallin, K. (2026). An Examination of Resignation Syndrome with Implications for the Understanding and Management of Culture-Bound Endemics. (Doctoral dissertation). Uppsala: Acta Universitatis Upsaliensis

Hidalgo, I. R., Pisano-Gonzalez, M. M., Garcia, C. F., Schölin Bywall, K., Andersson, S. W., Avagnina, B. & Fernandez-Feito, A. (2026). Digital health literacy and immigrants' access to digitalized healthcare: a comparative study of Spain, and Sweden - implications for public health policy. BMC Public Health, 26(1), Article ID 660.

Ying, G., Juth, N., Wanhainen, A., Lindblom, R., James, S., Fernandez Prendes, C. & Mani, K. (2026). Endo-Bentall Repair for Inoperable Aortic Disease: Balancing Innovation and Ethical Responsibility. EJVES Vascular Forum, 66, 37-44

Jimenez-Moreno, A. C., Blain, A., Pinto, C. A., Soekhai, V., Viberg Johansson, J., Dyer, C., . . . Gorman, G. S. (2026). Patient Preferences in Neuromuscular Diseases: Insights for Future Drug Development. JIMD Reports, 67(4), Article ID e70100.

Persson, V., Bülow, W., Johansson, M. & Wahlberg, L. (2026). Etikprövningens relation till den akademiska friheten. Nordisk socialrättslig tidskrift (2026 45), 39-58

Lundholm, M., Angelin, A. & Bülow O'Nils, W. (2026). Gräsrotsbyråkraten och den motvillige brukaren: Erfarenheter från en tidig insats med förebyggande skul­drådgivning. Socialvetenskaplig tidskrift, 32(3-4)

Klempp, L., Tanriverdi, N. Z., Loerbroks, A., Juth, N. & Hansson, N. (2026). Who deserves credit, who receives credit?: A cross-sectional survey on the handling of co-authorship in medical dissertations in Germany. Research Integrity and Peer Review, 11, Article ID 34.

Scheer, S., Guerrero, M., Asaba, E., Bürk, T. & Mondaca, M. (2026). Living in Stand-by Mode While Constructing Lived Citizenship. Journal of Immigrant & Refugee Studies, 1-17

Marelli, L., Colussi, I., Schlünder, I., Bahr, A., Huys, I., Krekora-Zajac, D., . . . Southerington, T. (2026). Two-faced Janus? Consent to participate in research and consent to data processing in the EHDS era: a comparative analysis of requirements and standards in eight European countries. JOURNAL OF LAW AND THE BIOSCIENCES, 13(1), Article ID lsag016.

de Miranda, L. (2026). Bioethics as bios ethikos. Medicine, Health care and Philosophy

Siglen, E., Ylistalo, E., Lunde, A., Tomasdottir, A., Lodahl, M., Ingvoldstad Malmgren, C., . . . Pestoff, R. (2026). Meeting the demand: A collaborative approach in developing genetic counselling education in the Nordic countries [Letter to the editor]. Journal of Community Genetics, 17(3), Article ID 55.

Palmryd, L., Godskesen, T., Alvariza, A. & Rejnö, Å. (2026). Satisfaction with end-of-life care and self-rated health among bereaved family members: a descriptive cross-sectional study in an intensive care context. BMC Palliative Care, 25(1), Article ID 125.

de Miranda, L. (2026). Can Philosophy Help Us Create the Best of All Possible Worlds?: Introducing Global Philosophical Health. Think, 25(72), 69-76

Farisco, M. (2026). L’enigma della coscienza: Cosa ci insegna il suo rapporto con il cervello?. Rubbettino

Farisco, M. (2026). Ethical issues identified by analyzing the attitudes of Swedish radiologists and screening participants toward the use of AI in mammography screening. AI and Ethics, 6(3), Article ID 274.