Nurse-led clinic (QLinCaM): perceived Quality of Care, and Quality of Life for patients with liver cirrhosis

The project compares patients’ rated quality of care, and quality of life, after receiving either adjunctive nurse-led outpatient clinic intervention (the Quality Liver Nursing Care Model - QLiNCaM), or care at a standard physician-led outpatient clinic.

Description

Liver cirrhosis is the sixth leading cause of death in adults. In late stages, persons with this disease report a low quality of life in comparison with other chronic diseases. Liver cirrhosis is an unpredictable disease, with fluctuating symptoms, deep concerns about future life and personal suffering due to a progressive, stigmatizing disease. Self-care can prevent disease progression and thus alleviate symptoms and prevent complications. Registered Nurses' involvement in gastroenterology outpatient care has been sparse, with few studies on nursing for patients with liver cirrhosis.

In this project, a complementary nurse-led clinic intervention for patients with liver cirrhosis is compared with standard physician-led reception. Data has been collected continuously at two regional hospitals and four university hospitals during 2016-2022. Data analysis was performed during 2023, with publications developed during both 2023 and 2024.

Contact

Email address: elenor.kaminsky@uu.se

Centrum för klinisk forskning, Region Dalarna; Högskolan Dalarna

Project leader: Maria Hjort
Co-investigators: Elenor Kaminsky, Anncarin Svanberg, Daniel Sjöberg, Fredrik Rorsman

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