PREFER looks at how and when it is best to perform and include patient preferences in decision making during the medical product life cycle, involving stakeholders at all stages.

  • Period: 2016-10-01 – 2022-05-31
  • Funder: Innovative Medicines Initiative
  • Type of funding: Projektbidrag

The patient perspective

PREFER was a public-private collaborative research project under the Innovative Medicines Initiative (IMI) that ran from 2016-2022. In addition to academia and the biopharmaceutical companies, PREFER also included patient organisations, Health Technology Assessment (HTA) bodies and small and medium-sized enterprises.

PREFER was established to assess when and how it is best to perform and include patient preferences study results in decision making at various stages of the medical product life cycle. PREFER finished in May 2022 with the deliverable of PREFER Recommendations and a Qualification Opinion from EMA. These recommendations guide industry, regulatory authorities, HTA bodies and reimbursement agencies on when and how patient preference studies should be performed, and the results used to inform decision making.

Over the five years of IMI PREFER, project participants ran patient preference studies in both academic and industry settings. Their experience provided a better understanding of what is a recommended best-practice approach to patient-preference research. The project demonstrated how patient preference studies can give valuable information to support decision making for regulators and HTA bodies.

The PREFER EXPERT NETWORK is a voluntary network of pharmaceutical companies, academic institutions, consultants, and patient representatives devoted to promoting the development and adoption of patient preferences in decision-making about medical products. The group was created from the IMI PREFER public-private partnership to capitalize on the experience and expertise gained through the project, and to support its sustainability goals.

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PREFER had 31 partners. The consortium was co-ordinated by Uppsala University's Centre for Research Ethics & Bioethics, and managed together with Novartis that acted as project leader.

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People in the project