SIENNA
SIENNA addresses ethical challenges posed by new technologies, offering frameworks for research, professional codes, and legal improvements to balance benefits and societal concerns.
Details
- Period: 2017-10-01 – 2021-03-31
- Budget: 45,898,708 SEK
- Funder: EU – Horizon 2020
- Type of funding: Projektbidrag
Ethics, human rights and responsible innovation
Technologies, new and old, have both ethical and human rights impact. Today, we are closer to scenarios we only pictured in science fiction a few decades ago. Technology develops fast and it is difficult to predict what is on the horizon. The legislation, regulation and ethical guidance we have today was developed for a different future. Policy makers struggle to assess the ethical, legal and human rights impact of new and emerging technologies.
The SIENNA project (short for Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact) will deliver proposals for professional ethics codes, guidelines for research ethics committees and better regulation in three areas: human genetics and genomics, human enhancement, and artificial intelligence & robotics.
Uppsala University’s Centre for Research Ethics & Bioethics contributes expertise on the ethical, legal and social issues of genetics and genomics, and experience of communicating European research.
Collaborators
- University of Twente, Netherlands
- Trilateral Research, United Kingdom
- Uppsala University, Sweden
- Helsinki Foundation for Human Rights, Poland
- European Network of Research Ethics Committees, Germany
- University of Granada, Spain
- Ionian University, Greece
- Federal University of Rio de Janeiro, Brazil
- Dalian University of Technology, China
- University of Maastricht, Netherlands
- The University of Cape Town, South Africa
People in the project
Mats Hansson
Senior professor in biomedical ethics with expertise in clinical issues, genetics and biobanks. Research focus on drug safety during pregnancy and breastfeeding, and genetic screening.
Josepine Fernow
Science communicator, project manager, communications strategist and CRB coordinator. Develops strategy and plan for science communication and research impact at the center and in EU-funded research consortia.
Amal Matar
Researcher and medical doctor focusing on issues related to artificial intelligence, culture and neuroscience, social and ethical aspects of new applications of genomics and reproductive technology.
Anna Holm Bodin
Science communicator and responsible for the Centre's web and social media. Responsible for communication in several EU-funded research consortia.