Public involvement in research - how do we do it in a meaningful and ethical way?

Description

Involving patient or representatives for the public in research leads to improvements in both the research process and the results. However, knowing how to work with involvement is not always easy. In this project, we investigate public involvement with forced migrants, to see how this can be done in a meaningful and ethical way.

In CHAP, we work with public involvement in several of our research projects, mainly with children and families. The involvement activities differ between project, but often include that children or parents are included in the project team, that we collaborate around data collection or write articles together.

This project focuses specifically on public involvement with forced migrants. We are specifically interested in the perspective of those involved in research. We are also interested in exploring group dynamics in a meeting where experts with different kinds of knowledge – experience-based, professional, academic – meet. We observe these meetings, using an observation protocol, developed for assessing involvement in research meetings. Finally, we investigate the ethical aspects of involvement with forced migrants, aiming to create an ethical framework for involvement in research.

Projekt team

Georgina Warner, Associate professor

Elin Inge, PhD student