Ylva Söderfeldt
Senior Lecturer/Associate Professor at Department of History of Science and Ideas
- Telephone:
- +46 18 471 15 69
- E-mail:
- ylva.soderfeldt@idehist.uu.se
- Visiting address:
- Engelska parken, Thunbergsvägen 3P
- Postal address:
- Box 629
751 26 UPPSALA
Download contact information for Ylva Söderfeldt at Department of History of Science and Ideas
Senior Lecturer/Associate Professor at Department of History of Science and Ideas; Centre for Medical Humanities
- Visiting address:
- Engelska parken, Thunbergsvägen 3P
- Postal address:
- Box 629
751 26 UPPSALA
Short presentation
Docent and senior lecturer in History of Science and Ideas.
Director of the Centre for Medical Humanities.
PI of the ERC Starting Grant funded project ActDisease
Keywords
- history of medicine
- emotion
- disability
- patient involvement
- patient organizations
- womher
- medical humanities
Biography
Postdoctoral Fellow, Max Planck Institute for History of Science/Berlin Centre for the History of Knowledge 2016-2017
Research Associate and Lecturer, Institute for History, Theory and Ethics in Medicine at RWTH Aachen University Hospital 2012-2016
Ph.D. in History, Stuttgart University/ Institute for the History of Medicine of the Robert Bosch Foundation 2008-2011
B. A. and M.A. in History of Ideas, Stockholm University 2002-2006
Research
My primary research interests are directed towards the relationship between expertise and subjectivity, i. e. between those who produce knowledge and the ones they produce knowledge about. This has led me to study people who, due to some deviation from the norm, become objects of concern for various kinds of experts who study, describe, manage, and treat them in various ways. Specifically, I am interested in how groups marked as “others” participate in defining themselves and how this process that affects both the “others” and the people, practices, institutions, and discourses surrounding them.
In a Swedish Research Council funded project and an ERC Starting Grant funded project I study the emergence of patient organizations and their relationship to medical expertise. The self-governed organizations people with particular illnesses in common began forming in the late 19th century have in the 20th century grown into an influential social movement, where patients engage in self-help, sociability, lobbying, and knowledge generation.

Publications
Selection of publications
Part of Journal of Open Humanities Data, 2025
Curating a historical source corpus of 20th century patient organization periodicals.
Part of Proceedings of the Huminfra Conference (HiC 2024), 2024
Part of Disability and labour in the twentieth century, p. 36-63, Routledge, 2023
Claimed by culture: Circumcision, cochlear implants and the ‘intact’ body
Part of Medical Humanities, 2021
- DOI for Claimed by culture: Circumcision, cochlear implants and the ‘intact’ body
- Download full text (pdf) of Claimed by culture: Circumcision, cochlear implants and the ‘intact’ body
Seeing the value of experiential knowledge through COVID‑19
Part of History and Philosophy of the Life Sciences, 2021
- DOI for Seeing the value of experiential knowledge through COVID‑19
- Download full text (pdf) of Seeing the value of experiential knowledge through COVID‑19
The Truth Within: Making Medical Knowledge in the Hay Fever Association of Heligoland, 1899–1909
Part of Isis, p. 531-547, 2021
Part of Oxford Handbook on Disability History, p. 265-280, Oxford University Press, 2018
Recent publications
Part of Journal of Open Humanities Data, 2025
Part of Selected papers from the CLARIN Annual Conference 2023, 2024
Part of Journal of the Neurological Sciences, 2024
- DOI for Developing education in environmental health and medicine focusing on neurology: Initiatives in Sweden (the UPRISE model), France, and Turkey
- Download full text (pdf) of Developing education in environmental health and medicine focusing on neurology: Initiatives in Sweden (the UPRISE model), France, and Turkey
Curating a historical source corpus of 20th century patient organization periodicals.
Part of Proceedings of the Huminfra Conference (HiC 2024), 2024
Visualizing longitudinal trends in digitized periodicals from the Swedish diabetes association
2024
All publications
Articles in journal
Part of Journal of Open Humanities Data, 2025
Part of Journal of the Neurological Sciences, 2024
- DOI for Developing education in environmental health and medicine focusing on neurology: Initiatives in Sweden (the UPRISE model), France, and Turkey
- Download full text (pdf) of Developing education in environmental health and medicine focusing on neurology: Initiatives in Sweden (the UPRISE model), France, and Turkey
Part of Historisk Tidskrift, p. 289-293, 2023
Claimed by culture: Circumcision, cochlear implants and the ‘intact’ body
Part of Medical Humanities, 2021
- DOI for Claimed by culture: Circumcision, cochlear implants and the ‘intact’ body
- Download full text (pdf) of Claimed by culture: Circumcision, cochlear implants and the ‘intact’ body
Seeing the value of experiential knowledge through COVID‑19
Part of History and Philosophy of the Life Sciences, 2021
- DOI for Seeing the value of experiential knowledge through COVID‑19
- Download full text (pdf) of Seeing the value of experiential knowledge through COVID‑19
The Truth Within: Making Medical Knowledge in the Hay Fever Association of Heligoland, 1899–1909
Part of Isis, p. 531-547, 2021
Pandemi avslöjar mediciens makt
Part of Tidningen Curie, 2020
Distress, disease, desire: perspectives on the medicalisation of premature ejaculation.
Part of Journal of Medical Ethics, p. 865-866, 2017
"Opfer der Arbeit": verkörperte Differenz in der Arbeiterbewegung 1917-1933
Part of Westfälische Forschungen, p. 107-129, 2015
Part of Paedagogica historica, p. 479-493, 2014
Part of Sign Language Studies, p. 250-265, 2014
Jüdische Gehörlose in Deutschland 1800-1933. Blicke in die Geschichte einer doppelten Minderheit.
Part of Medizin, Gesellschaft, und Geschichte : Jahrbuch des Instituts fur Geschichte der Medizin der Robert Bosch Stiftung, p. 207-30, 2014
Information, consent and treatment of patients with Morgellons disease: an ethical perspective.
Part of American Journal of Clinical Dermatology, p. 71-6, 2014
From Comparison to Indices: A disabling perspective on the history of happiness
Part of Health, Culture and Society, p. 249-264, 2013
Der Anfang einer Selbsthilfebewegung?: Die Organisation der Gehörlosen im 19. Jahrhundert.
Part of Selbsthilfejahrbuch, p. 43-48, 2013
The galvanic treatment of deafness and the trials at the Berlin Royal Deaf-Mute Asylum in 1802.
Part of European Archives of Oto-Rhino-Laryngology, p. 1953-8, 2013
Part of Virus. Beiträge zur Sozialgeschichte der Medizin, p. 91-102, 2012
Taubstumme Genossen.: Vor 100 Jahren wurde eine spezielle Sektion der SPD gegründet
Part of junge Welt, Beilage Behindertenpolitik, p. 6, 2011
Dödsfallet på dövskolan berodde på okänt syndrom
Part of Läkartidningen, p. 777-8, 2010
Part of Das Zeichen, p. 375-379, 2009
Books
A beginner's guide to Swedish academia
Sveriges unga akademi, 2022
Krankheit verbindet: Strategien und Strukturen deutscher Patientenvereine im 20. Jahrhundert
Franz Steiner Verlag, 2020
Kassel University Press, 2017
Von Wechselbälgen und verkörperter Differenz: Zwei Beiträge zu den Disability Studies
Verlag der Evangelischen Gesellschaft, 2017
Uberwindung der Körperlichkeit.: Historische Perspektiven auf den künstlichen Körper
Kassel University Press GmbH, 2015
Utopin i vardagen: sinnen, kvinnor, idéer : en vänbok till Elisabeth Mansén
Ellerströms förlag, 2014
From pathology to public sphere: The German deaf movement, 1848-1914
Transcript Verlag, 2013
Chapters in book
Part of Disability and labour in the twentieth century, p. 36-63, Routledge, 2023
Part of Communicating the history of medicine, p. 43-65, Manchester University Press, 2020
Die 'Lex Zwickau': Zwangssterilisierungsdebatten in der Gehörlosenbewegung
Part of Zwischen Fremdbestimmung und Autonomie, p. 155-192, Transcript Verlag, 2019
Part of Oxford Handbook on Disability History, p. 265-280, Oxford University Press, 2018
The Blind Finch: Expanding the Role of Disability in Heritage and Human-Animal Bond Studies.
Part of In: (Eds.). Rethinking Disability, p. 445-462, Garant, 2016
"det mest talande beviset": En dövblind yngling, en falsk tolk och funktionshinder som ornament.
Part of Utopin I vardagen. , p. 206-224, Ellerströms förlag, 2014
Conference papers
Part of Selected papers from the CLARIN Annual Conference 2023, 2024
Curating a historical source corpus of 20th century patient organization periodicals.
Part of Proceedings of the Huminfra Conference (HiC 2024), 2024
Visualizing longitudinal trends in digitized periodicals from the Swedish diabetes association
2024
Reports
Other
Part of Social history of medicine, p. 429-430, 2023
- DOI for Alex de Waal, New Pandemics, Old Politics: Two Hundred Years of War on Disease and Its Alternatives, Cambridge/Medford, MA: Polity Press, 2021
- Download full text (pdf) of Alex de Waal, New Pandemics, Old Politics: Two Hundred Years of War on Disease and Its Alternatives, Cambridge/Medford, MA: Polity Press, 2021
"A sanitary war".: Corona, medical power(lessness) and responsibilization.
2020
Part of Historische Zeitschrift, p. 267-268, 2019
Gehörlose in der französichen Spätaufklärung.
Part of WerkstattGeschichte, p. 107-109, 2016
2016