Santa Slokenberga
Universitetslektor i förvaltningsrätt, Docent i medicinsk rätt vid Juridiska institutionen; Professorer, lärare, forskare
- Telefon:
- 018-471 74 20
- E-post:
- santa.slokenberga@jur.uu.se
- Besöksadress:
- Trädgårdsgatan 1, Trädgårdsgatan 20
- Postadress:
- Box 512
751 20 UPPSALA
Kort presentation
Santa Slokenberga, LL.D., is an associate professor in Medical Law and a senior lecturer in administrative law. Her research, teaching, and supervision interests focus on questions on the human genome and biobanking, AI, privacy and personal data protection, the quality of pediatric health care, as well as governance of rare diseases. She is an EAHL board member and a board member of the Nordic Permed Law and is engaged in health policy questions nationally and internationally.
Publikationer
Urval av publikationer
The standard of care and implications for paediatric decision-making: The Swedish viewpoint
Ingår i Routledge Handbook of Global Health Rights, s. 122-152, Routledge, 2021
Ingår i International Data Privacy Law, s. 132-145, 2020
- DOI för Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
- Ladda ner fulltext (pdf) av Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
Norstedts Juridik AB, 2020
Ingår i International Encyclopaedia of Laws, s. 1-170, Kluwer Law International, 2020
Ingår i European Journal of Human Genetics, s. 1159-1167, 2019
- DOI för The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
- Ladda ner fulltext (pdf) av The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
EU data transfer rules and African legal realities: is data exchange for biobank research realistic?
Ingår i International Data Privacy Law, s. 30-48, 2019
Ingår i Medical Law Review, s. 482-508, 2019
The Regulation of Human Germline Genome Modification in Sweden
Ingår i Human Germline Genome Modification and the Right to Science, s. 281-308, Cambridge University Press, 2019
Ingår i Förvaltningsrättslig Tidskrift, s. 199-222, 2019
Data Portability in Health Research and Biobanking
Ingår i European Data Protection Law Review, s. 296-307, 2018
Ingår i European Journal of Health Law, s. 517-536, 2018
Final Ethics and Legal Framework
2018
Ingår i European Journal of Health Law, s. 355-360, 2018
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
Ingår i Journal of Community Genetics, s. 117-132, 2018
- DOI för Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
- Ladda ner fulltext (pdf) av Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
The Rights of Children in Biomedicine: Challenges posed by scientific advances and uncertainties
2017
Legal and ethical governance of intercontinental biobanking: Some experiences from a H2020 project
Ingår i Förvaltningsrättslig Tidskrift, s. 169-192, 2017
European Legal Perspectives on Health-Related Direct-to-Consumer Genetic Testing
2016
Direct-to-consumer Genetic Testing: Changes in the EU Regulatory Landscape
Ingår i European Journal of Health Law, s. 463-480, 2015
Senaste publikationer
The European Health Data Space: Challenges and Opportunities
2024
Ethical and social reflections on the proposed European Health Data Space
Ingår i European Journal of Human Genetics, s. 498-505, 2024
- DOI för Ethical and social reflections on the proposed European Health Data Space
- Ladda ner fulltext (pdf) av Ethical and social reflections on the proposed European Health Data Space
Ingår i Developing World Bioethics, s. 139-150, 2024
- DOI för Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
- Ladda ner fulltext (pdf) av Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
A comparative ethical analysis of the Egyptian clinical research law
Ingår i BMC Medical Ethics, 2024
- DOI för A comparative ethical analysis of the Egyptian clinical research law
- Ladda ner fulltext (pdf) av A comparative ethical analysis of the Egyptian clinical research law
A proposal for an international Code of Conduct for data sharing in genomics
Ingår i Developing World Bioethics, s. 344-357, 2023
- DOI för A proposal for an international Code of Conduct for data sharing in genomics
- Ladda ner fulltext (pdf) av A proposal for an international Code of Conduct for data sharing in genomics
Alla publikationer
Artiklar i tidskrift
Ingår i Developing World Bioethics, s. 139-150, 2024
- DOI för Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
- Ladda ner fulltext (pdf) av Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
A comparative ethical analysis of the Egyptian clinical research law
Ingår i BMC Medical Ethics, 2024
- DOI för A comparative ethical analysis of the Egyptian clinical research law
- Ladda ner fulltext (pdf) av A comparative ethical analysis of the Egyptian clinical research law
A proposal for an international Code of Conduct for data sharing in genomics
Ingår i Developing World Bioethics, s. 344-357, 2023
- DOI för A proposal for an international Code of Conduct for data sharing in genomics
- Ladda ner fulltext (pdf) av A proposal for an international Code of Conduct for data sharing in genomics
EVDT regulas priekšlikumsun Datu otrreizējās izmantošanaslikumprojekts
Ingår i Jurista vārds: una lex - una iustitia omnibus, s. 32-37, 2023
Veselības datu tiesiskā regulējuma transformācija
Ingår i Jurista vārds una lex - una iustitia omnibus, s. 6-7, 2023
Ingår i Technology and regulation, s. 135-147, 2022
- DOI för Scientific research regime 2.0?: How the proposed EHDS Regulation may change the GDPR Research Regime
- Ladda ner fulltext (pdf) av Scientific research regime 2.0?: How the proposed EHDS Regulation may change the GDPR Research Regime
Ingår i Seminars in Cancer Biology, s. 271-283, 2022
- DOI för Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden
- Ladda ner fulltext (pdf) av Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden
What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
Ingår i European Journal of Health Law, s. 521-542, 2022
- DOI för What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
- Ladda ner fulltext (pdf) av What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
Ingår i European Journal of Health Law, s. 327-340, 2022
- DOI för Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
- Ladda ner fulltext (pdf) av Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
Ingår i BIOLAW JOURNAL-RIVISTA DI BIODIRITTO, s. 223-250, 2021
- DOI för You can't put the genie back in the bottle: On the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe
- Ladda ner fulltext (pdf) av You can't put the genie back in the bottle: On the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe
Ingår i European Journal of Health Law, s. 285-306, 2021
- DOI för Case C-243/19, A v Veselibas ministrija, Judgement of the Court (Second Chamber) of 29 October 2020, EU:C:2020:872
- Ladda ner fulltext (pdf) av Case C-243/19, A v Veselibas ministrija, Judgement of the Court (Second Chamber) of 29 October 2020, EU:C:2020:872
Ingår i International Data Privacy Law, s. 132-145, 2020
- DOI för Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
- Ladda ner fulltext (pdf) av Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
Ingår i European Journal of Human Genetics, s. 1159-1167, 2019
- DOI för The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
- Ladda ner fulltext (pdf) av The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
EU data transfer rules and African legal realities: is data exchange for biobank research realistic?
Ingår i International Data Privacy Law, s. 30-48, 2019
Ingår i Medical Law Review, s. 482-508, 2019
Ingår i Förvaltningsrättslig Tidskrift, s. 199-222, 2019
Data Portability in Health Research and Biobanking
Ingår i European Data Protection Law Review, s. 296-307, 2018
Ingår i European Journal of Health Law, s. 517-536, 2018
Legal and ethical governance of intercontinental biobanking: Some experiences from a H2020 project
Ingår i Förvaltningsrättslig Tidskrift, s. 169-192, 2017
Ingår i Jurista Vārds, 2016
Direct-to-consumer Genetic Testing: Changes in the EU Regulatory Landscape
Ingår i European Journal of Health Law, s. 463-480, 2015
Ingår i Jurista Vārds, s. 8-25, 2015
Medical Aid in dying in Quebec - legal considerations
Ingår i Journal of Medical Law and Ethics, s. 109-121, 2014
Ingår i Jurista Vārds, 2013
Artiklar, forskningsöversikt
Ethical and social reflections on the proposed European Health Data Space
Ingår i European Journal of Human Genetics, s. 498-505, 2024
- DOI för Ethical and social reflections on the proposed European Health Data Space
- Ladda ner fulltext (pdf) av Ethical and social reflections on the proposed European Health Data Space
Ingår i Frontiers in Genetics, 2022
- DOI för Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
- Ladda ner fulltext (pdf) av Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
Ingår i Journal of Community Genetics, s. 117-132, 2018
- DOI för Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
- Ladda ner fulltext (pdf) av Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
Doktorsavhandlingar, monografi
Kapitel i böcker, delar av antologi
Ingår i Governing, Protecting, and Regulating the Future of Genome Editing, s. 1-14, Brill Nijhoff, 2023
- DOI för Introduction: The Significance of ELSPI Perspectives in Governing, Protecting, and Regulating the Future of Genome Editing
- Ladda ner fulltext (pdf) av Introduction: The Significance of ELSPI Perspectives in Governing, Protecting, and Regulating the Future of Genome Editing
What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
Ingår i Governing, Protecting, and Regulating the Future of Genome Editing, s. 200-221, Brill Nijhoff, 2023
- DOI för What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
- Ladda ner fulltext (pdf) av What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
Ingår i Medicinsk rätt, s. 237-254, Norstedts Juridik AB, 2022
Ingår i Medicinsk rätt, s. 23-38, Norstedts Juridik AB, 2022
Vid vägs ände: några nutida och framtida utmaningar för den medicinska rätten
Ingår i Medicinsk rätt, s. 353-364, Norstedts Juridik AB, 2022
Ārstniecības iestāžu darbības tiesiskie aspekti
Ingår i Medicīnas tiesības, s. 99-123, Tiesu namu aģentūra, 2022
Ingår i Medicīnas tiesības, s. 69-98, Tiesu namu aģentūra, 2022
Ingår i Medicīnas tiesības, s. 21-27, Tiesu namu aģentūra, 2022
Ingår i Medicīnas tiesības, s. 165-227, Tiesu namu aģentūra, 2022
Ingår i Medicīnas tiesības, s. 258-300, Tiesu namu aģentūra, 2022
Ārstniecība cilvēka dzīves nogalē
Ingår i Medicīnas tiesības, s. 485-514, Tiesu namu aģentūra, 2022
Ingår i Medicīnas tiesības, s. 718-719, Tiesu namu aģentūra, 2022
Ingår i Medicinsk rätt, s. 237-253, Norstedts Juridik AB, 2022
Ingår i De lege Yearbook 2021:Law, AI and Digitalisation, s. 379-400, Iustus förlag, 2022
The standard of care and implications for paediatric decision-making: The Swedish viewpoint
Ingår i Routledge Handbook of Global Health Rights, s. 122-152, Routledge, 2021
Setting the Foundations: Individual Rights, Public Interest, Scientific Research and Biobanking
Ingår i GDPR and Biobanking, s. 11-30, Springer, 2021
- DOI för Setting the Foundations: Individual Rights, Public Interest, Scientific Research and Biobanking
- Ladda ner fulltext (pdf) av Setting the Foundations: Individual Rights, Public Interest, Scientific Research and Biobanking
Ingår i Medicinsk rätt, s. 23-36, Norstedts Juridik AB, 2020
Vid vägs ände: några nutida och framtida utmaningar för den medicinska rätten
Ingår i Medicinsk rätt, s. 277-284, Norstedts Juridik AB, 2020
Genetiska interventioner inom och utanför hälso- och sjukvården
Ingår i Medicinsk rätt, s. 185-200, Norstedts Juridik AB, 2020
Ingår i International Encyclopaedia of Laws, s. 1-170, Kluwer Law International, 2020
The Regulation of Human Germline Genome Modification in Sweden
Ingår i Human Germline Genome Modification and the Right to Science, s. 281-308, Cambridge University Press, 2019
Country report: an overview of animal protection in Latvia
Ingår i Scritti su etica e legislazione medica e veterinaria, s. 149-158, Cacucci Editore, 2017
Veselības aprūpe un Eiropas Savienība (EU law and health care)
Ingår i Medicīnas tiesīnas, s. 69-148, Tiesu Namu Aģentūra, 2015
Pārskats par seksuālajām un reproduktīvajām tiesībām
Ingår i Medicīnas Tiesības, s. 515-586, Tiesu Namu Aģentūra, 2015
Ārstniecība cilvēka dzīves nogalē un nāves tiesiskie aspekti: (Death and dying)
Ingår i Medicīnas Tiesības, s. 639-675, Tiesu Namu Aģentūra, 2015
Konferensbidrag
Rapporter
The European Health Data Space: Challenges and Opportunities
2024
2020
Analysis of the legal and human rights requirements for genomics in and outside the EU: SIENNA D2.2
2019
Final Ethics and Legal Framework
2018
The Rights of Children in Biomedicine: Challenges posed by scientific advances and uncertainties
2017
Samlingsverk (redaktörskap)
Iustus förlag, 2023
Norstedts Juridik AB, 2022
Brill Nijhoff, 2022
- DOI för Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
- Ladda ner fulltext (pdf) av Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
Tiesu namu aģentūra, 2022
GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe
Springer, 2021
- DOI för GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe
- Ladda ner fulltext (pdf) av GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe
Norstedts Juridik AB, 2020
Övriga
Ingår i European Journal of Health Law, s. 355-360, 2018