Santa Slokenberga
Universitetslektor i förvaltningsrätt, Docent i medicinsk rätt vid Juridiska institutionen; Professorer, lärare, forskare
- Telefon:
- 018-471 74 20
- E-post:
- santa.slokenberga@jur.uu.se
- Besöksadress:
- Trädgårdsgatan 1, Trädgårdsgatan 20
- Postadress:
- Box 512
751 20 UPPSALA
Kort presentation
Santa Slokenberga, LL.D., is an Associate Professor of Medical Law specialising in European health data governance and data‑driven healthcare, with a particular focus on the GDPR, European Health Data Space, patient rights, and AI‑enabled medical decision‑making under EU and Swedish law. Her other interests include biobanking, regulation of the standard of care, and rare disease governance. She is a board member of the European Association of Health Law (EAHL) and Nordic Permed Law (NPL).
Publikationer
Urval av publikationer
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The standard of care and implications for paediatric decision-making: The Swedish viewpoint
Ingår i Routledge Handbook of Global Health Rights, s. 122-152, Routledge, 2021
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Norstedts Juridik AB, 2020
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Ingår i International Data Privacy Law, s. 132-145, 2020
- DOI för Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
- Ladda ner fulltext (pdf) av Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
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Ingår i International Encyclopaedia of Laws, s. 1-170, Kluwer Law International, 2020
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Ingår i European Journal of Human Genetics, s. 1159-1167, 2019
- DOI för The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
- Ladda ner fulltext (pdf) av The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
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EU data transfer rules and African legal realities: is data exchange for biobank research realistic?
Ingår i International Data Privacy Law, s. 30-48, 2019
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Ingår i Medical Law Review, s. 482-508, 2019
-
The Regulation of Human Germline Genome Modification in Sweden
Ingår i Human Germline Genome Modification and the Right to Science, s. 281-308, Cambridge University Press, 2019
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Ingår i Förvaltningsrättslig Tidskrift, s. 199-222, 2019
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Data Portability in Health Research and Biobanking
Ingår i European Data Protection Law Review, s. 296-307, 2018
-
Ingår i European Journal of Health Law, s. 517-536, 2018
-
Final Ethics and Legal Framework
2018
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Ingår i European Journal of Health Law, s. 355-360, 2018
-
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
Ingår i Journal of Community Genetics, s. 117-132, 2018
- DOI för Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
- Ladda ner fulltext (pdf) av Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
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The Rights of Children in Biomedicine: Challenges posed by scientific advances and uncertainties
2017
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Legal and ethical governance of intercontinental biobanking: Some experiences from a H2020 project
Ingår i Förvaltningsrättslig Tidskrift, s. 169-192, 2017
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European Legal Perspectives on Health-Related Direct-to-Consumer Genetic Testing
2016
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Direct-to-consumer Genetic Testing: Changes in the EU Regulatory Landscape
Ingår i European Journal of Health Law, s. 463-480, 2015
Senaste publikationer
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The European Health Data Space: Examining A New Era in Data Protection
Routledge, 2025
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The European Health Data Space: Challenges and Opportunities
2024
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Ethical and social reflections on the proposed European Health Data Space
Ingår i European Journal of Human Genetics, s. 498-505, 2024
- DOI för Ethical and social reflections on the proposed European Health Data Space
- Ladda ner fulltext (pdf) av Ethical and social reflections on the proposed European Health Data Space
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Ingår i Developing World Bioethics, s. 139-150, 2024
- DOI för Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
- Ladda ner fulltext (pdf) av Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
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A comparative ethical analysis of the Egyptian clinical research law
Ingår i BMC Medical Ethics, 2024
- DOI för A comparative ethical analysis of the Egyptian clinical research law
- Ladda ner fulltext (pdf) av A comparative ethical analysis of the Egyptian clinical research law
Alla publikationer
Artiklar i tidskrift
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Ingår i Developing World Bioethics, s. 139-150, 2024
- DOI för Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
- Ladda ner fulltext (pdf) av Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
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A comparative ethical analysis of the Egyptian clinical research law
Ingår i BMC Medical Ethics, 2024
- DOI för A comparative ethical analysis of the Egyptian clinical research law
- Ladda ner fulltext (pdf) av A comparative ethical analysis of the Egyptian clinical research law
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A proposal for an international Code of Conduct for data sharing in genomics
Ingår i Developing World Bioethics, s. 344-357, 2023
- DOI för A proposal for an international Code of Conduct for data sharing in genomics
- Ladda ner fulltext (pdf) av A proposal for an international Code of Conduct for data sharing in genomics
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EVDT regulas priekšlikumsun Datu otrreizējās izmantošanaslikumprojekts
Ingår i Jurista vārds: una lex - una iustitia omnibus, s. 32-37, 2023
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Veselības datu tiesiskā regulējuma transformācija
Ingår i Jurista vārds una lex - una iustitia omnibus, s. 6-7, 2023
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Ingår i Technology and regulation, s. 135-147, 2022
- DOI för Scientific research regime 2.0?: How the proposed EHDS Regulation may change the GDPR Research Regime
- Ladda ner fulltext (pdf) av Scientific research regime 2.0?: How the proposed EHDS Regulation may change the GDPR Research Regime
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Ingår i Seminars in Cancer Biology, s. 271-283, 2022
- DOI för Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden
- Ladda ner fulltext (pdf) av Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden
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What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
Ingår i European Journal of Health Law, s. 521-542, 2022
- DOI för What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
- Ladda ner fulltext (pdf) av What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
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Ingår i European Journal of Health Law, s. 327-340, 2022
- DOI för Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
- Ladda ner fulltext (pdf) av Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
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Ingår i BIOLAW JOURNAL-RIVISTA DI BIODIRITTO, s. 223-250, 2021
- DOI för You can't put the genie back in the bottle: On the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe
- Ladda ner fulltext (pdf) av You can't put the genie back in the bottle: On the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe
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Ingår i European Journal of Health Law, s. 285-306, 2021
- DOI för Case C-243/19, A v Veselibas ministrija, Judgement of the Court (Second Chamber) of 29 October 2020, EU:C:2020:872
- Ladda ner fulltext (pdf) av Case C-243/19, A v Veselibas ministrija, Judgement of the Court (Second Chamber) of 29 October 2020, EU:C:2020:872
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Ingår i International Data Privacy Law, s. 132-145, 2020
- DOI för Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
- Ladda ner fulltext (pdf) av Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
-
Ingår i European Journal of Human Genetics, s. 1159-1167, 2019
- DOI för The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
- Ladda ner fulltext (pdf) av The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
-
EU data transfer rules and African legal realities: is data exchange for biobank research realistic?
Ingår i International Data Privacy Law, s. 30-48, 2019
-
Ingår i Medical Law Review, s. 482-508, 2019
-
Ingår i Förvaltningsrättslig Tidskrift, s. 199-222, 2019
-
Data Portability in Health Research and Biobanking
Ingår i European Data Protection Law Review, s. 296-307, 2018
-
Ingår i European Journal of Health Law, s. 517-536, 2018
-
Legal and ethical governance of intercontinental biobanking: Some experiences from a H2020 project
Ingår i Förvaltningsrättslig Tidskrift, s. 169-192, 2017
-
Ingår i Jurista Vārds, 2016
-
Direct-to-consumer Genetic Testing: Changes in the EU Regulatory Landscape
Ingår i European Journal of Health Law, s. 463-480, 2015
-
Ingår i Jurista Vārds, s. 8-25, 2015
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Medical Aid in dying in Quebec - legal considerations
Ingår i Journal of Medical Law and Ethics, s. 109-121, 2014
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Ingår i Jurista Vārds, 2013
Artiklar, forskningsöversikt
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Ethical and social reflections on the proposed European Health Data Space
Ingår i European Journal of Human Genetics, s. 498-505, 2024
- DOI för Ethical and social reflections on the proposed European Health Data Space
- Ladda ner fulltext (pdf) av Ethical and social reflections on the proposed European Health Data Space
-
Ingår i Frontiers in Genetics, 2022
- DOI för Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
- Ladda ner fulltext (pdf) av Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
-
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
Ingår i Journal of Community Genetics, s. 117-132, 2018
- DOI för Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
- Ladda ner fulltext (pdf) av Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
Doktorsavhandlingar, monografi
Kapitel i böcker, delar av antologi
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Ingår i Governing, Protecting, and Regulating the Future of Genome Editing, s. 1-14, Brill Nijhoff, 2023
- DOI för Introduction: The Significance of ELSPI Perspectives in Governing, Protecting, and Regulating the Future of Genome Editing
- Ladda ner fulltext (pdf) av Introduction: The Significance of ELSPI Perspectives in Governing, Protecting, and Regulating the Future of Genome Editing
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What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
Ingår i Governing, Protecting, and Regulating the Future of Genome Editing, s. 200-221, Brill Nijhoff, 2023
- DOI för What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
- Ladda ner fulltext (pdf) av What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
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Ingår i Medicīnas tiesības, s. 718-719, Tiesu namu aģentūra, 2022
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Ingår i Medicinsk rätt, s. 237-254, Norstedts Juridik AB, 2022
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Ingår i Medicinsk rätt, s. 23-38, Norstedts Juridik AB, 2022
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Vid vägs ände: några nutida och framtida utmaningar för den medicinska rätten
Ingår i Medicinsk rätt, s. 353-364, Norstedts Juridik AB, 2022
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Ārstniecības iestāžu darbības tiesiskie aspekti
Ingår i Medicīnas tiesības, s. 99-123, Tiesu namu aģentūra, 2022
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Ingår i Medicīnas tiesības, s. 69-98, Tiesu namu aģentūra, 2022
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Ingår i Medicīnas tiesības, s. 21-27, Tiesu namu aģentūra, 2022
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Ingår i Medicīnas tiesības, s. 165-227, Tiesu namu aģentūra, 2022
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Ingår i Medicīnas tiesības, s. 258-300, Tiesu namu aģentūra, 2022
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Ārstniecība cilvēka dzīves nogalē
Ingår i Medicīnas tiesības, s. 485-514, Tiesu namu aģentūra, 2022
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Ingår i Medicinsk rätt, s. 237-253, Norstedts Juridik AB, 2022
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Ingår i De lege Yearbook 2021:Law, AI and Digitalisation, s. 379-400, Iustus förlag, 2022
-
The standard of care and implications for paediatric decision-making: The Swedish viewpoint
Ingår i Routledge Handbook of Global Health Rights, s. 122-152, Routledge, 2021
-
Setting the Foundations: Individual Rights, Public Interest, Scientific Research and Biobanking
Ingår i GDPR and Biobanking, s. 11-30, Springer, 2021
- DOI för Setting the Foundations: Individual Rights, Public Interest, Scientific Research and Biobanking
- Ladda ner fulltext (pdf) av Setting the Foundations: Individual Rights, Public Interest, Scientific Research and Biobanking
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Ingår i Medicinsk rätt, s. 23-36, Norstedts Juridik AB, 2020
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Vid vägs ände: några nutida och framtida utmaningar för den medicinska rätten
Ingår i Medicinsk rätt, s. 277-284, Norstedts Juridik AB, 2020
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Genetiska interventioner inom och utanför hälso- och sjukvården
Ingår i Medicinsk rätt, s. 185-200, Norstedts Juridik AB, 2020
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Ingår i International Encyclopaedia of Laws, s. 1-170, Kluwer Law International, 2020
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The Regulation of Human Germline Genome Modification in Sweden
Ingår i Human Germline Genome Modification and the Right to Science, s. 281-308, Cambridge University Press, 2019
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Country report: an overview of animal protection in Latvia
Ingår i Scritti su etica e legislazione medica e veterinaria, s. 149-158, Cacucci Editore, 2017
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Pārskats par seksuālajām un reproduktīvajām tiesībām
Ingår i Medicīnas Tiesības, s. 515-586, Tiesu Namu Aģentūra, 2015
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Veselības aprūpe un Eiropas Savienība (EU law and health care)
Ingår i Medicīnas tiesīnas, s. 69-148, Tiesu Namu Aģentūra, 2015
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Ārstniecība cilvēka dzīves nogalē un nāves tiesiskie aspekti: (Death and dying)
Ingår i Medicīnas Tiesības, s. 639-675, Tiesu Namu Aģentūra, 2015
Konferensbidrag
Rapporter
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The European Health Data Space: Challenges and Opportunities
2024
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2020
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Analysis of the legal and human rights requirements for genomics in and outside the EU: SIENNA D2.2
2019
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Final Ethics and Legal Framework
2018
-
The Rights of Children in Biomedicine: Challenges posed by scientific advances and uncertainties
2017
Samlingsverk (redaktörskap)
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The European Health Data Space: Examining A New Era in Data Protection
Routledge, 2025
-
Iustus förlag, 2023
-
Norstedts Juridik AB, 2022
-
Tiesu namu aģentūra, 2022
-
Brill Nijhoff, 2022
- DOI för Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
- Ladda ner fulltext (pdf) av Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives
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GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe
Springer, 2021
- DOI för GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe
- Ladda ner fulltext (pdf) av GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe
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Norstedts Juridik AB, 2020
Övriga
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Ingår i European Journal of Health Law, s. 355-360, 2018